Most Recent Messages in ICDs

Flicking

I had my ICD implanted in May 2017. I have an issue with uncomfortable "flicking" since it was implanted. Does anyone know the cause of this? They lowered both pacing setting and threshold but it is still happening. TIA

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Av block and falling EF

  • by Mars
  • 2018-01-14 06:19:42
  • ICDs
  • 630 views
  • 5 comments

Hi, I am now on here, I had a CRT-D fitted November 30th 2017.

I had an echocardiogram September 29th 17, which showed my EF was 49% which was an improvement over my post MI echo of 34%, five years previous. At a routine appointment on the 27th of November, my pulse was checked and was found to be low and skipping beats. I was sent for an ECG which showed 2nd degree AV block type 2. 

Does anyone know of a reason why I would get AV block 5 years after my MI? And why my EF drop...

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Help requested

Hi all,

I am posting to ask if anyone would be interested in helping our start up company develop a product for ICD patients and their loved ones. The idea is outlined at loismedical.com. We are initially looking for 100 hundred ICD recipients for some market research and then eventually some of these people would be invited to help us test the actually product in the field. We have filed a patent but we would like to prove a real need before we spend too time and effort in a produ...

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riding motor cycles

hey can people like us .. still ride motorcycles ... i know we can drive .. just not sure about motorbikes

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S-ICD

Happy New Year!

Does anyone have S-ICD (the lead under the skin, is not in the vein and heart)??

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Nw PM/ICD Recipient Questions

I just got my device 3 days ago so I''m very new to this.  I have a trip scheduled in April whereby I will be gong on a train over the  mountains and will be at elevations from 5000 - 9000 feet while on the train.  I won't be doing anything physical but will tis affect my device in any way?  The length of time in that altitude is about 27 hours.

 

Fred

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EP Study

Hi everyone, I am a 70 year old male, with a St Jude CRT-P implanted in July of this year. My recovery went fairly well, up until mid-October, when I started experiencing runs of V Tach during my rehab sessions. As time went on they became more and more frequent and more and more intense. The first thought was pacemaker mediated tachycardia (PMT), but they could not adjust it out. I am scheduled for an EP Study on January 9. The EP will be prepared to perform ablation if they can id...

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Migrating ICD

Hello Everyone, 

New to the group - First ICD installed 2004 - On my third device. 
This third device has been nothing but trouble since it’s change out in May 2014.  

The silly thing keeps migrating around - The first was immediate after the change out. Kept telling the Device Techs that something was not right, they kept telling me, it just needs time to heal. October 2014, insisted that Doc look at it and here it was just days away from break...

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ICD and adjustments

  • by TMo
  • 2017-12-19 12:44:23
  • ICDs
  • 525 views
  • 5 comments

I have a ICD device since 2011 and replaced generator in 2015 I have the Riata lead and was told there is a magnet we can get to turn off the device in the case of multiple shocks is there such a magnet and has anyone used it? Thanks TMo 

 

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Turn it off

  • by Nunya
  • 2017-12-08 03:34:33
  • ICDs
  • 653 views
  • 1 comments

Has anyone had their ICD deactivated? I've had mine since 2012 and it has never done anything or recorded any events. 

I want it deactivated. What's the process?

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V-Tach Storm

  • by nefus
  • 2017-12-05 02:14:50
  • ICDs
  • 628 views
  • 1 comments

I just got out of the hospital yesterday. I had received 32 appropriate shocks during a VT Storm. It was terrifying. 

What was your VT storm like? Or shock storm (inappropriate shocks)?

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ICD Removal

Has anyone ever gotten their ICD removed? Starting my research for it and what better way than to hear personal experiences! 

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Travel to Europe

Received my first shock the other night from my pacemaker/defibrillator and it was not pleasant. Implanted in May 2017 and had booked a tour to Italy.  Has anyone experienced ICD issues in Italy !   Thank you.  And be well !   

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ICD and a DVT because

Hello, I’m new to the club. I’ve had my ICD for 12 years now. Back in 2013 it was replaced because my lead was recalled. Who whole device was replaced so that I had more battery life. With that said this week I was diagnosed with a DVT in my upper left extremity which from what I have been told is extremely rare. The Doctors determined that it was provoked by my ICD lead since that is where the clot is located. My Electrophysiologist was not to concerned and gave me...

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Dizziness

I have got an ICD implant model number: EDIGA DR D394DRG on 30 August 2017 at a hospital in Bangalore, India.
I have been experiencing dizziness and lightheadedness even while I am relaxing. After these episodes I got tests like Holter, ECHO and ECG which have tuned out negative. I also feel a loss of stamina and general feeling of weakness. During these episodes my BP has been normal and my heart rate is generally at 52-56 .All this symptoms are worrisome. Please advise

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Turning off ICD

  • by DMJ
  • 2017-10-18 15:57:57
  • ICDs
  • 886 views
  • 4 comments

Hello, I did not see anyone comment on turning off ICD at the end of  human life.  I understand that the pacemaker funtion can remain, yet the ICD be turned off. I'm looking for a form to put with my end of life care so this can be done.  I'm very afraid of being shocked when I'm dying.

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9 Days Away from ICD

  • by OKJoe
  • 2017-10-16 21:03:44
  • ICDs
  • 765 views
  • 4 comments

I discovered this forum a week or so ago and have really enjoyed the good information and insights.  Here's the deal:. I'm 61 years old,. Ejection Fraction of 16, severly dialated left ventricle, global hypokinesis, moderately dialated left atrium.  On the positive side, I have absolutely zero arterial plaque, no edema and no CHF.  I am 40 to 50 lbs overweigt but I'm working on that.  I am scheduled for a n ICD implant on 10/25. 

I am right in the ce...

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Medical costs

I have recently posted on this site for the first time. I have received some fabulous advice and information. I enjoy reading your quotes which appear at the bottom of the page. But today's quote mentioned an ICD mortgage. I'm from England so NO medical costs but am I correct in thinking that you must pay for this life saving treatment in USA?

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So frightened

My pre assessment is on 06 oct 2017 with CRTD implant booked for Nov 1st. I am really not coping with the thought of going through this. I have two arguments going on in my head... have it, it will save your life. Then.....I feel too well to be as ill as they say I am. Perhaps they have mixed up my medical notes with someone else's! I guess this is denial but it sure feels real.

I am a "healthy" 65 year old "life and soul of the party" type of gal. They tell...

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When an ICD is EOL. When to replace?

A friend of a friend is very upset because he has been told his defibrillator is near its end of service.  His understanding is that because of insurance issues, it has to quit, be dead, be totally out o power, before it can be replaced. All he has been told is to call the doctor's office when it buzzes and it will be replaced immediately. Middle of the night? Yes, call. On a weekend? Yes, call.

His fear, of course, is that he will need it between the time i...

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Member Quotes

I'm 35 and got my pacemaker a little over a year ago. It definitely is not a burden to me. In fact, I have more energy (which my husband enjoys), can do more things with my kids and have weight because of having the energy.