Most Recent Messages in ICDs
Decision to get an ICD
Hi, thank you for the support that this group offers! I’m a 62 year old male and am trying to weigh the risks and benefits of having an ICD implanted and would love any and all perspectives and inputs that you can provide.
According to my doctors, I am on the “cusp” of needing an ICD. I have a slight risk of having a heart attack, but only slight. I guess any risk is not a good one. I have medium hypertrophic cardiomyopathy, meaning that the wall of my heart has...
UK Drivers
- by Piggers365
- 2019-07-30 13:32:43
- ICDs
- 1676 views
- 3 comments
Does anyone know if you need to inform you insurance company that you have had an ICD fitted ?
I have not had any symptoms to date and have it fitted as a precaution as I have an underlying hereditary heart condition.
Can any UK drivers please advise on their experience.
Did you inform your insurer ?
Did the cost of insurance rise dramatically ?
Thanks as always !
Ejection Fraction/Pacemaker
I have a pacemaker/defibulator combination with a three wire lead. My EF prior to receiving the pacemaker/defibulator was 15-20. My question is how can you get an accurate echocardiogram if your heart is being pumped artifically with a pacemaker? If the pacemaker was not inside me would I still have the same EF that I have with the pacemaker implanted in me?
Leaving Work
- by Chowchowma
- 2019-07-27 00:21:11
- ICDs
- 1229 views
- 4 comments
My primary care physician said that I work too hard and might consider disability.
I have had my device for 4 months today. I returned to my job 2 months after implant and ablation. I am working full-time but by Friday I am exhausted. I spend Saturday in bed giving my body the rest it seems to crave. Episodes of PTSD still exist but lessened. Though I am acutely aware of my heart beat. Because my issue appears to be genetic it's not going away, prompting me to dance between &q...
Travel After ICD Shock
Hi,
I recently had a shock from my ICD. The Doctors office just told me to "keep on doing what I have been doing". I am planning a trip next month to France and wondered if there will be travel restrictions put on me due to my ICD going off. Also, will my remote monitor work in a different country?
Thanks
Cleveland Clinic
- by sam.tipton
- 2019-07-07 19:53:14
- ICDs
- 1317 views
- 5 comments
I'm scheduled to see Cardiologists Dr Wilkoff & two other MDs at Cleveland Clinic in Aug 2019. Any advise for how to deal with hotels, transportation, apartment rental, etc while I will beT in Cleveland waiting on APPTs, Procedures or tests?
ICD Activity Aftermath
Hi,
Has anyone else felt a little tired after your ICD is triggered? It has been a few days since my ICD went off and I find myself a little tired (also a bit anxious that this may happen again).
Thanks
ICD went off due to heart arrhythmia
Hi
I was told my ICD went off the other day. I had thought I fainted but the nurse said that the ICD shocked me out of it.
She said the Dr. will likely change my meds. What type of meds would help arrithmia? I also think that my Entresto has something to do with the arrithmia since my issues started after I was on a full dose.
Putting third wire into CRT-D
Hi
Does anyone have a recommeneded EP in New York to place a third wire into a CRT-D? My EP tried twice without success. He says I need someone who specializes in difficult placements of these wires.
Long term recovery
Hi. I have a crt device fitted eighteen months ago. It’s complicated as I also have diabetes and kidney disease, but I find I’m still easily exhausted. I'm only 64 and not quite ready to give up on it all just yet. I can’t get answers as my docs are so pleased with my improved EF. One just talks settings, the other medications. My GP says I shoukd just accept what is. So not me.
Medical I’d bracelet
hi y’all I had a ICD and crt-d put in a few days ago. Do I need to get a medical I’d bracelet
discomfort at night
hi does anyone else get scared when inbed? my pacemaker moves about and it frightens me but am told this is normal it is qute heavy too as I am very thin now but it has changed my life so hey ho x
arm pain
I would like to thankyou both for your kind commentsand help here I had not realised maybe I could get help I know that Physio is useless and also tried acupuncture no good my arm was taped up and immobile for 5 hours so I gue that s why as you said just have to live with it now x thanx again guys
Twitching/muscle spasms
I received my BVICD 3 weeks ago. I have been experiencing twitching/muscle spasms over my whole body since i received the implant, mostly at night. Please let me know if any of you have had this experience and how you resolved it. Thank you
Pain after surgery
- by Christine68
- 2019-05-22 15:38:21
- ICDs
- 1351 views
- 1 comments
I'm brand new to this group. I just turned 51 and was told 9 weeks ago i have cardiomyopathy. After several tests, angiogram, cardiac mri, chemical stress test etc they found i had a blockage in my circumflex artery. I was awaiting the stent procedure this month, was scheduled for May 9, 2019. On May 5th i passed out from Ventricular Tachycardia, was brought to hospital where 4 days later had an icd implanted. It is now approx 17 days later and i am in so much pain in my left shoulde...
Lasik rejection due to ICD
Went to get evaluated for Lasik - but was rejected due to my ICD - was told that the laser equipment may interfere with my ICD (not the laser itself, obviously)
Anyone else experience this? Any alternatives or Opthalmologists that DO perform Lasik in an ICD friendly setup?
Still new to this. All advice still welcomed... But, I feel much better and stronger.
I'm coming up on my two week mark after having my ICD implanted. My strength level has returned oh, the pain has subsided substantially, and I can no longer feel my heart beating when I used to feel my PVCs all day all night and everywhere in between. Evidently the medication they put me on which is Lisinopril with hydrochlorothiazide and a beta blocker the starts with the letter C and I still can't pronounce, is doing its job in conjunction with my new low salt diet, exercise, and&nb...
Pregnancy/giving birth with an ICD/pacemaker
- by lildanishgirl
- 2019-05-13 10:15:47
- ICDs
- 1616 views
- 6 comments
Hi! Soooo...my husband and I were trying for a baby before my unexpected cardiac arrest in December 2018. It has been 5 months (today) since my SCA (4.5 months since my ICD/pacemaker implant). My diagnosis was: Arrhythmogenic Mitral Valve Prolapse. I know this is a personal question, but do you think it's too soon to start trying for a baby again? I'm pretty stable emotionally, I think my ideal beta blocker dosage has been figured out (I'm on 5mg of bisoprolol - which is supposed...
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Member Quotes
I, too, am feeling tons better since my implant.