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24 yrs old and tired of being tired!

Hello,
I'm brand new to this site and this is my first post. My short story is that I'm going in on June 5th to consult about/get instructions/and schedule pacemaker implant. I am 24, married with 2 elementary school aged children.

Here's the longer story: I have what my dr. calls a severe case of NCS or VVS (neurocardiogenic syncope or vaso-vagal syncope) with the extra kicker of >5 seconds asystole (heart stops when I faint), and thus he has been pushing the pacemaker for a...

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Heeeelp! Squeezing in throat...

I recieved my PM two weeks ago after a Holter test showed a sick sinus problem (Mobitz I & II). All went very well with the implant.
Prior to getting the PM, I would get a strange squeezing or pressure sensation in the hollow of my throat (just below the adams apple). I don't get pain in my chest though.
I have had 24 hr pH tests, X-rays, scopes, you name it - all negative. Of course, in readin many of the postings here, after a while they say it must be in your head, anxiety, panic, e...

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We're here ;-)

Hello everyone! Well we have good news... My husband and I are here at Peter and Nina's home. We are having a wonderful time! Peter is doing fine and Nina is beautiful!.. We are so thankful for the wonderful friends we ave made here in the UK. How very lucky are we.
We will keep you posted of our exciting activities as our visit progresses.
Hope everyone has a wonderful day.
Pacergirl and Peter .... Timbo and Nina ;-)

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Pace Maker Advice

Hello from Central Arkansas. I'm Angela, the big 50 on July 13th. I really would appreciate your advice knowing what you know now and your experience now. For two years I was misdiagnosed as having simple seizures because I couldn't wake up and my EEG was abnormal. Finally the doc discovered my heart rate was too low and took me off the seizure meds which were causing my problems. Thank God that is over with.

After lots of tears and tests we know I need a pace maker. My heart does no...

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my first

I am scheduled for a 3 wire on June 6th. I really have no idea what to expect. Most tell me it is easy. I have read a lot of negative things here.
I have also had 4 heartattacks.
the ast then bypass and then the bypasses collapsed one at a time and I had 3 more. Now this!!! I am stressed, and worried.
I have read aboput depression and I have had enough of that. the heart problems and losing my husband recently--enough.
i Also have seizures that started at age 34 and never...

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We are at the Airport ;-)

Hello everyone,
For those following our journey, (others please disregard) we have arrived at the airport and we have made our way through airport security. It's been a while since I have had a stranger touch me like that! No problems traveling with the pacemaker. The journey to meet Peter and Nina is going to be worth every mile we travel. My husband and I are very excited about the trip! I'll keep everyone posted as the day and miles go by. Presently in Wichita, Kansas..... Soon to b...

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Read this, pretty interesting!

Hello everyone!
I was searching on the internet and found this imformation. I hope you take the time and read this. I was going to have this done at the hospital when I had my DVT ( blood clot ). The doctors decided not to, why, I don't know. Sounds pretty interesting.
HEART FAILURE: Congestive Heart failure affects about 4.6 million Americans and kills nearly 45,000 people each year. When the heart is weakened, either by disease or defect, it can't move blood through the body...

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FU airline mechanic with ICD

  • by JWC
  • 2007-05-18 10:05:26
  • ICDs
  • 2438 views
  • 0 comments

This is followup from previous posting... from aircraft mechanic with major US airline. My concerns are related to the magnetic fields and others from the engine and apu etc as I work directly on these running and not runninig.The airline has recentluy approved a company to come into the work area to meaure the fields so that it can be determined if i can return to work or not. I believe this is the first time this would have ever been done. Risk management and legal are involved as I think they...

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IPod MP3 Interferes with PM

I just read a post on an Apple site which documented some research done in Michigan by a student.

He discovered that the IPod interferred with patients' PM in 3 different ways:

Oversensing of events
Telemetry interference
Inhibit of PM occurred in 1.2% of study group.


I am taken aback by this finding, but I do believe it is correct.
For more info, google "IPod interferes with pacemaker"

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What to expect after pacemaker surgery

I am having a pacemaker put in Tuesday May 22, 2007. In the past I had two ablations and one epicardial ablation, the totally ablated my SA node. I do not have a SA node that works. I have no sinus rhythm. My AV node is trying to control my heart. Because I am in juctional rhythm my heart rate ranges between 40-60. This is the reason I need the pacer. I would like to know what to expect when I wake up from surery pain wise. Does it hurt a lot? How long is it sore for? What helps to reduce the pa...

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family matters

another quick question...my cousin who is 3 years younger than me (she's 19, i'm 22) did a tilt table test yesterday and the dr. thinks she has a lighter version of my condition (vaso-depressor syncope) (during the tilt table test i passed out and flatlined for a few seconds, my cousin did the same thing except the dr. had to give her a drug to induce her passing out.) he put her on beta blockers, which i am also on, but told her that eventually she may need a pacemaker, which i just had put in...

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Help! Is there anyone out there like me?

I am so frustrated. I recieved a PM on Mar 23 at Mass General Hospital where my Doctors don't have anyone else like me. They can't seem to figure out how to set my PM. I have second degree heart block and a very high hear rate when I exercise. Before my PM my heartrate would drop from 160's or so to the 80's and stay there for a couple of minutes causing me to become dizzy and light headed. Then my rate would jump back to the 130's even though I was resting. Now that I have my PM it seems it...

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chest and throat pain

i got my pacemaker about 3 weeks ago and soon after the surgery i started getting pain in my chest and my throat when i would breathe in. it went away, but it has started again, mainly when i go from a sitting to laying position or laying to sitting. last night i ran up the stairs in my house to answer the phone and when i got to the top of the stairs my throat was hurting really bad for about a minute when i would breathe in. i went to the dr. about it about a week after i had my PM put in and...

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single Lead VS double lead

Hi,
I have my PM (single lead VDD) 6 weeks ago because of 3rd degree heart block . I had no problem running for 1hr before it.
Since I received it I am having problem with fast walking or stairs. I talked to PM clinic last week, she turned the switch mode (or something like that) off to see if that helps, but didnt. They told me that my upper part of heart is fine, and lower part needs to be paced.
When I was in the PM clinic, she told me if I had a dual leads PM she could do a b...

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Question re Leads

This may be a very stupid question, but I'll ask it anyway. I know someone in this very helpful group will have the answer. If I had a different brand of PM implanted, would the leads also have to be replaced? In other words, could the existing leads still be used? Betty

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Skipped beats

Hi everyone,

I just wondered if anyone could help me with a problem I've never seen on here before.

When I crouch down and bend over e.g. when looking under something, or cleaning the floor, my heart pauses. It feels like it's skipping a beat and doesn't do it any other time.

I've had my pacemaker (for heart block) since January and have had many settings problems but I'm worried that this is more of a placement issue as it only happens in those positions. My p...

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knowledge seeker

Anyone recommend a good book on AF that is really helpful?

any members in greater Boston who know about the bestg AF Dr's around here? Jim in Newton, MA

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PM and AF

Hi All,
I had a pm implant 2 weeks ago for because of low pulse problems.I also have AF but I thought the pm did not help with AF but at least one posting indicated that the pm was helping with AF.So I'm confused. Jim

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Follow-up

Hi all.
Just an update. I finally got to see my cardiac specialist for an follow-up and interogation. They turned my voltage from 5 volts to 2.5 (I was told going to a lower voltage does not help battery life) and set my lower rate at 60. It kind of different as my pulse has been so fast for years and I can now feel each beat.

The nurse told me to walk and lenght of the hallway twice and if I made it back I could leave the ward. I guess if you don't die in the hall you pass.

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Thank you

Hi,
I just got several very thoughtful and helpful responses to my postings.My question:
Is there someway to e-mail the individual person to thank them or ask a specific question based on their response. Jim

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You know you're wired when...

You have a 25 year mortgage on your device.

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