Most Recent Messages in Complications

Pacemaker pulsing

Hi

I had a pacemaker implanted in September 2022. For the first month I felt nothing unusual but since that time I have had intermittent but very pronounced pulsing, showing up in my abdomen, directly under my ribcage on the left side, so pronounced that I could take my pulse just by watching the movement of of my shirt over the abdomen. This pulsing often wakes me during the night and is so pronounced that my wife can feel it from her side of a wide bed. The cardiology department...

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on going problem with double pacemaker

I had a double pace-maker put in 18 months ago - took 18 months and finally a loop recorder inserted that told them my heart was stopping for 14 seconds whilst I was asleep.  Right from the start I have had a pain middle of my chest - now and then to start with - I have been back 4 times to pacemaker place and each time they say the p.maker is fine working perfectly. Paid to go back to heart consultant twice  as it is quite painful now - does not happen when I am doing things - main...

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Heart pain with physical exertion

Hello

I have had a biotrnik Edora for third degree complete av block for a bout a month.  I though i was going to be able to do some liftening especially with my right arm/hand.  I am finding it increasingly difficult to bend over and pick things up, like the occasional weed in the yard.  I also find carrying things with my right arm/hand causes pain in the heart and down the center of the chest where I assume (though I may be wrong) the wires are.  My device ge...

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PM movement and vein thrombosis

Hello everyone,

i would like to tell you my experience as I have taken great encouragement from reading here the accounts of others.

I had a subpectoral implant nearly three month's ago for Sick Sinus Syndrome. The actual procedure took an hour and a half under local and was not pleasant. 

Like others, I found the post-op pain much worse than I had been prepared for.  I perhaps should have suspected this because thankfully I was given a good...

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accelerated junctional rythm

Anyone have a junctional rhythm abnormality? 

My pacemaker is working well but I have this additional diagnosis of accelerated junctional rhythm.

Now being treated with calcium channel blocker - I feel better but still have some symptoms.

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My whole world stopped

Hi everyone across the world.

I'm doing OK with my pacemaker friend, Gerry.

However, I experienced a very strange, for want of a better word, 'episode' today. 
I was watching TV. Got up to go to the kitchen to make a cup of tea. No warning. Everything stopped. I wasn’t dizzy, lightheaded or anything. Numbers came into my head. Very bright. I thought it must be the beginning of something serious. I stopped moving and truly thought I was on my way somewhe...

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CRT-D Extraction

Well they finally extracted the pacemaker and the leads after 5 infections to the site.  It wasn't plain sailing as people had suggested, it was a real adventure.

Sit down buckle up and break out the popcorn.

I suffer from depression and was in a Epworth Camberwell, mental health unit for a week to settle me down for the upcomming pacemaker extraction.  I was discharged from there only to go home into a house full of Covid.  I isolated as much as I could and was...

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Hello everyone!

Very refreshing to have such a civil and sincere bunch of like wired people with a common interest. I had a Biotronic 2 wire pacemaker put in just six weeks ago. I have type two heart block which caused several fainting spells caused by very low HR. So glad to have the PM which gives me the piece of mind that something is keeping my HR above 60 and it's doing that very well. So the low end is set to 60 and the high end at 130. I'm 75 and still in fairly good shape. My problem is not u...

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Pre-ERI issues?

Hello all, I've had a pacer for 28 years, different generators of course. I have been less than 3 months to ERI for a month now and over the last couple weeks I've felt completely fatigued, with chest pressure, and sob with activity. I have an interregion appointment tomorrow, because the at home checks show the pacer is fine, but I don't buy it. Guys I just don't feel right, has anything like this happened to anyone else?

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Some discomfort

Hi Everyone! I am 6 months post op with pacemaker insertion. I am still having mild discomfort. I was told it could take 6 months for the nerves to settle down. Scar looks good, no infection, or temp. It feels a bit itchy still and tender. I can feel the device which surprised me. When I move or lie on my side there are times can feel it. Its still achy. I have a high pain tolerance but this is a bit unsettling. Surprised I'm feeling discomfort still. Did anyone have this experience? My c...

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Medtronic Pacemaker vibrations

Is it possible my newly fully activated pacemaker vibrated at me in the middle of the night? It's been implanted for 2.5 months but only fully activated yesterday after my AV node ablation. 

It was monitored after the ablation and was working normally as it continues to do. 

Any advice appreciated. Thanks. 

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Finally some answers!

Hello,

Sorry for my absence on here, I am in the middle of A-Levels and have been very busy! I hope everyone is well and happy. 

So following from my last post about dilation... I managed to get in contact with my old team and they have said that,

"Looking back at your previous ECHO’s they do report a dilated aorta and left ventricle. Your aortic root is normal. The dilation in your aorta and left ventricle is to a certain degree expected in your conditi...

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Pacemaker Infection

Has anybody here had one? How did you feel? How did they find out? What did they do about it? How are you now?

I haven't been feeling well the last 2+ weeks and if it was the flu I thought I should be better by now. So help me out with your experiences.

Thank you, FG

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heated electrical vest

Hi all....heated vests have finally arrived in NZ...yes its taken a while...just checking in if they interfere with my 3 lead pacemaker at all..? There's a bit of different information out there..mine is a St Jude Pacemaker..thnks for any info..cheers Dave

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Misdiagnosed

In 2011 I was diagnosed with Brugada syndrome when I was 19 so a ICD was placed..long story short I was misdiagnosed and do not have anything wrong other than SVT that was fixed with an ablation in 2018. I just found out I now need to get my pacemaker & leads removed completely. Has anyone gone through a lead extraction? I am 31 years old & extremely nervous for this surgery as it is high risk and I have two little ones that need me so I'm quite nervous. 
 

...

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Blood clots

Had to go back to ER last week bp 205/133 chest xrays show blood clots in lungs Has anyone had this happen? Pacemaker has been in 4 weeks this thursday 

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Not sure if my pacemaker is working

May 1st I had a Medronics pacemaker installed that was CRT-P with AV node ablation. The Dr set my BPM window at 60-130. I have had chronic AFib for years and the drugs were no longer working at all so I opted for the pacemaker. I've been in AFib for 5-6 days at least and until today my resting HR has been in the low 60's as it is supposed to be. In fact, everything has been wonderful, haven't felt this good in years. Today I felt odd and checked my BP and HR and the HR was staying...

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Painful pectoral muscle by pacemaker site

I'm curious if anyone else has had pectoral muscle pain by their pacemaker implantation site? I am 2 1/2 years post-op implantation of my 2nd pacemaker, both on left side. This pacemaker was implanted by a different doctor than the 1st and he implanted it in a completely different site than the first, up high near my shoulder. My 1st was lower at the top of my breast. Also I had rotator cuff surgery on the same side about 3 months after the new pacemaker surgery. I am having constant...

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Dentist

Once again thanks Penguin for all your help. Will definitely contact Medtronic.

Can I ask does everyone have a Medronic thingy plugged into the mains next to their bed . I call mine The Watcher. It emits an eerie green glow and apparently sends information to my team. I just wondered if this was the norm.

B

Regards Y (I am not good on computers either but I try).

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dentist

Thank you docklock, Penguin and Tracy E for your quick replies.

It seems sonic scaling is o.k. I would ask my team but cannot get through to them on phone , always busy. I think maybe I will stick to hand scaling by my dentist as he is left handed and apparantly its awkward for him with the lead.

NHS so busy all the time its difficult to speak to anyone let alone ask for a letter to be sent but appreciate your replies. Its all so new at the moment and I am finding it difficult to...

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You know you're wired when...

Titanium is your favorite metal.

Member Quotes

At age 20, I will be getting a pacemaker in few weeks along with an SA node ablation. This opportunity may change a five year prognosis into a normal life span! I look forward to being a little old lady with a wicked cane!