Most Recent Messages in ICDs

can you have one turned off or removed

I had a icd put in jan 9 2012...It is horrible...I was out last night and had danced some which i have done for years..and it shock me 4 times in a row...I do not ever want to go thru that again ...it was horrible you yell out and it hurts so bad like a lightning bolt of electricity...I would rather take my chances....Can it be capped off or can the defib be turned off..it is a boston scientific ICD...I think I would just stay in my home forever if I have to worry about it shocking me again ou...

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Contradictory Results - What's the Explanation?

I had a very puzzling appointment with my cardiologist at Toronto General yesterday. I went for an echo, blood work and cardio-pulmonary. I then met with my cardiologist to review the results and that’s where it got confusing.

My cardio pulmonary results improved dramatically from 6 months prior (which was not surprising since my exercise routine had increased), but the echo demonstrated the my EF had dropped to 20% (I know this is not the best way to measure EF but 6 months earlier...

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Broken Spirit

I'm new to this site; was recommended to join by the cardiac rehab team. They thought it may help with my anxiety. Quite frankly reading through some of the postings increased my anxiety a bit. :0
I was born with Tetrology of Fallot and had it repaired in 1974 at the Hospital for Sick Children in Toronto. Had a pretty good life from them on with no issues. Never ever considered my congenital defect as an excuse to prevent me from living my life. But things changed in 2007 when it was discov...

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Anyone set audible warning on?

  • by mrag
  • 2012-01-26 07:01:11
  • ICDs
  • 1981 views
  • 4 comments

My (new) CRT-d from Boston Scientific can be set to issue an audible alarm when the device begins to charge to POSSIBLY give me a shock. Basically it is about a 10 second warning. And the alarm does NOT mean I will definitely get a shock, just that there is an increased likelihood and it is beginning to charge just in case. I understand professional roofers with ICD's like this option and I was thinking it might be good for driving on high speed highways. Anyone have this turned on in their icd?

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Doctors appt tomorrow

I am going tomorrow to schedule a date...Needless to say I am very anxious. I do have a very good doctor

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Solar Storm Effects?

  • by zocks
  • 2012-01-23 10:01:58
  • ICDs
  • 3958 views
  • 11 comments

There's very little information online that I can find... I hope that's a good thing. I want to know if tomorrow's major solar storm will cause any effects on my Boston Scientific ICD?

In fact, I've had the defibrillator function turned off, so it's only acting as a pacer. I am most concerned with the threat of having the defibrillator turn on and get zapped - or just get zapped one way or another due to interference. Should I be concerned?

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pulse change

  • by Alena
  • 2012-01-19 12:01:27
  • ICDs
  • 1408 views
  • 2 comments

I had a Medtronic ICD implanted Oct.3, 2011. I test my oxygen and pulse with a oxymeter everyday. Suddenly two weeks ago my pulse (normally between 97 and 88 has changed to between 52 and 44. I don't feel any different. What could be the reason?

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Thank you Don

  • by Alena
  • 2012-01-19 01:01:05
  • ICDs
  • 1285 views
  • 0 comments

Thank you so very much for your fast response, Don. I feel so much better now. Having an ICD implant is anxiety enough. My oxygen number hasn't changed at all. It's only the pulse that has changed. I just tested again. The oxymeter immediately reads a higher number and then drops after a few seconds, but stays at the lower number until I turn it off and then retest. Your explanation was clear and I could understand what's happening. Thank you....thank you.

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a new 3-wire in December, 2011

March 2011 I got my first ICD, a Boston Scientific 2-wire. At a check in November the cardiologist said I was "ready for a 3-wire", so since I wasn't satisfied with my shortness of breath I agreed. A BIOTRONIK 3-wire was implanted December 2011. At a follow-up a week later the check showed that the 3-wire wasn't performing and now the cardiologist may have to go back in and repaid. I'm often even more short of breath than before. My next scheduled check-up is March 27, 2012. Should I be worrie...

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Phil Hutton

  • by PDH12
  • 2012-01-15 12:01:55
  • ICDs
  • 1290 views
  • 1 comments

I have just had a Guidant E110 implanted. My question is that if my wallet card indicates two separate leads would that indicate a dual purpose unit. I only saw the surgeon for a few seconds before the implant andbriefly after. This is just for my own knowledge. By the way, the leads are 4087 and 0185.

Regards
Philip

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Batteries?

  • by cc49
  • 2012-01-15 11:01:39
  • ICDs
  • 1438 views
  • 4 comments

Hi, My name is Cheryl i had a ICD implanted on Jan 10,.2010 does anyone know how long these last till i have to get another one put in or how does it get changed???? thanks any info would be great. thanks

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Got head butted in ICD

Okay so me and my two kids were laying on the couch watching a movie when my kids started picking at each other. Well my 4 year old feel back and hit my device full force with her head. Now it hurts and is kinda swollen. It is always somewhat sore there anyways but now it is much worse. Do you think I just bruised the area around it or what?

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wild pacing

2 yrs ago when I had my biventricle implant while in the hospital it seemed it was going to jump out!My understanding was, it was setting up the pacing.The site of it surprised my sister and I! Now it started again,the PA @ the device clinic tested my device and concluded "my device was working"......Is my heart getting worse?Sometimes I get awakened by this "new pacing".Anyone else had the same experience?

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Pacing out of VTor something else?

== Begin quoted message ==
I am brand new to this site and I got a Pacemaker/Defibrillator implanted on 11-22-11. The current settings start pacing me down at 100 bpm and paces me up at 70 bpm. Do you have any information on why a heart rate would jump from 70 to 100 while at rest? I think my heart is trying to start into VT but the pacemaker is straightening it out, but I'm unsure. Anyone else ever have this occur?
It is pacing me all the time it seems and it is very annoying and...

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Injection site

Did any one feel pain when you were given the shot to numb the surgical area ?

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Can it be too big???

I had a Medtronic ICD placed last month after fighting with cardiologists for the last 7 years because of it being disfiguring. I work as a model and am incredibly thin. I knew that the ICD was going to be visible, but I didn't expect it to be so heavy. I keep thinking it is going to come out of my skin!

Every time that I bend or reach it feels like it is pulling...painfully. And the slightest touch where the implant is at causes extreme pain. I am still taking pain meds (narcotics t...

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Riata Recall

Hi All. I am new to this group and glad I found it.  I had a St Jude ICD implanted in 2004 with one of my leads being a Riata. Since I got this in 2004 I was shocked once in 2007 for no reason. They replaced the ICD with a Medtronic and I still have the St Jude leads.

Since 2004 I’ve gone to all my visits for my ICD check and it is still over sensing.  I know they have a recall on one of my leads.  I had a chest xray done and I&...

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horseback riding

I recieved my ICD in June 2010 and was told by the surgeon not to ride a horse. I am 68 and have rode all my life. Has anyone else been told not to ride. I still continue to ride but not like a did before the implant.

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New Unify- CRT-D

  • by LadyB
  • 2011-12-26 09:12:08
  • ICDs
  • 2191 views
  • 2 comments

Hello,

How many individuals have the Unify CRT-D model?

Lady B

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New To the Forum

  • by LadyB
  • 2011-12-24 11:12:37
  • ICDs
  • 1558 views
  • 8 comments

Hello everyone!!

I am new to this forum. Merry Christmas to all. Just had my second defib/heart pacing implant on December 21th. Home recovering at this time. I thank God for modern technology! Would hope to make friends and spread some smiles and humor to all.

Lady B

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