Most Recent Messages in ICDs
Status Update
Hi everyone and Merry Christmas,
Well since last time I have had 10 days in hospital and now hopefully have a new plan. The docs think that the reason I was having so many shocks was because the amioderone had finally leached out of my system (I was taken off it in August) and the bicor alone wasn't keeping the arrythmias under control. Short story is my thyroid has been knocked out so it can'y be affected any more and back on the amio - loading dose at the moment which is still leaving me...
Mho's reached one year
Sparky (my first and very problematic ICD) left me on December 17th, 2010, and was replaced with Mho within an hour. OK, Mho is the one that shocked me twice when I didn't need it, but he's treated me quite well in other ways. Glad to have you Mho, but can we keep the juice to a minimum now?
Dustin
Scared of the procedure
- by raiderralph
- 2011-12-21 04:12:06
- ICDs
- 1681 views
- 8 comments
The cardiologist told me I should consider an ICD because I have cardiomyopathy and left bundle branch block, a condition I have had for 14 years. My pulse is fine and I get around pretty good. I am at risk for sudden cardiac death however. I am scared to death of the procedure. I have never been in the hospital as a patient, but I do work at one. Any advice? please and what does the conscience sedation feel like..Thank you
Oh yes I meet with the doctor late...
Providing Patients with ICD Data directly
I am currently working on a corporate strategy assignment that has tasked me with creating strategy that would effectively increase the value propostion of a St. Jude Medical ICD.
One of our ideas involved a system that would provide ICD users access to their data directly via simple web based user interface equipped with tools and applications that would allow to somehow correlate data to the daily lives.
My Professor is constantly asking the question. Is there a c...
We need research for Sarcoidosis
If you have an ICD because of cardiac Sarcoidosis, first ... you're lucky you caught it in time. And second, you're waiting for some research breakthroughs.
Whether you have Sarcodosis or not, I'm asking that you please sign this online petition for research. And if you have a robust social network, please share so that others can help, too.
Thanks you.
http://tinyurl.com/6rw999k
newbie too
Hi- I was a frequent visitor here 5 years ago when I had my pacemaker implanted. I was scared then and u guys helped me. I am 61 and within the last month I have had an interrogation done on my pacemaker, a tachy heart rhythm found and an ICD implanted. I am scared of it going off and scared of it not going off. I have had not much time to adjust to all of this and feel overwhelmed. I dont know what to expect ..
You helped me once before -HELP again.
submuscular ICD
- by maggiedavis
- 2011-11-30 01:11:13
- ICDs
- 2053 views
- 2 comments
I got my first CRT-ICD in 2007, replaced in 2010, and now my batteries are runned down again. Problem is, I have lost 70 pounds in the last 11 months and the ICD is no longer in the pocket but above my left breast.
The electrophysiologist says he can’t do this and has referred me to a heart surgeon for a submuscular ICD. Has anyone had this done, and what can I expect? I am 70 years old, have left ventriclular failure, and a widow of 8 months.
Amiodarone
Hi, 58 years old. Recieved a pacemaker and ICD in late June. Had 2nd heart attack with VT. Continued to smoke after 1st heart attack 8 mos earlier. Not smoking. On amiodarone.. 200 mg. Problems with thyroid. On 80 mcg of Synthroid. Eat NO FAT and NO SALT. Cholesterol down from 160 to 80. LDL and HDl and triglicerides are all good! Dr. wants to take me off of amiodarone and "let's see if you fire or not. If you do we will treat you with Sotalol." I AM TERRIFIED! Anyone out there have an ICD and...
help
i just had my medtronic defibrillor placed oct.21,is there anyone havin trouble getin adjusted to it like i am.?im 52 yrs old felmale and live in south carolina.would love in hear from someone with the same problem.
Galvanic Spa
Hi, Has anyone used a galvanic spa or had a galvanic treatment by an estitision(sp)
Fatigue after therapeutic shock?
Fatigue after therapeutic shock?
I have an ICD to deal with some tachycardia. It has not discharged in several years, but did recently (twice within a month),Im having a some fatigue and mild dizziness after the last discharge, this is new to me, anyone else have this sensation after a therapeutic shock? Ill be seeing my doctor Friday, to follow up with her,
Thanks all,
Michael
MRI with ICD
The doctors think I had a mini stroke so I have an MRI scheduled for December. I'm terrified to have the test done, though. I'm afraid that the MRI machine will either rip my ICD out of my body or burn me on the inside. I remember before I had my ICD implanted, I had an MRI done and the nurse walked into the room where the machine was and she had keys on her waist and the machine let off this huge alarm sound because of the metal. That, to me, is a clear warning sign to not go into that room wit...
need ppl to talk to
- by boonda2199
- 2011-11-04 01:11:35
- ICDs
- 1681 views
- 9 comments
hello
my name is brenda and i have had my icd for 8 years now but im having a hard time with it, i have bad anxiety about it and would like to have some ppl to talk about this and more stuff
thank you
brenda
Too much Pain with my ICD
I recently had a ICD implant put in on Sept. 20th it was a month ago yesterday. In the last 2 weeks i have made 5 ER visits , 3 office visits, Catscan, Echo, x-rays, and the makers of my implant check my ICD 3 times. I am hurting under my left brest. I have felt them calabrate my ICD i know what it feels like. And now im feeling like they are calabrating constantly it never goes away. My heart is beating fast staying around 100-105 . But this morning I called my dr. and got we have done everyth...
15% EF
I have CRT-D, 100% dependent, AV Node Ablation and 15% Ejection Fraction. How does one cope with the such dire circumstances?
Cardiac Rehab
I will be starting Outpatient Cardiac Rehab 3 times a week. My Cardiologist thinks this will help my heart muscle. I was just wondering if anyone did this and if it helped. I am hoping that it will get my energy level back up and help my heart muscle. I have Severe Cardiomyopathy, I have had my CRT-D for over a year now. I am also feeling very bloated and my tummy is very tender to touch. I would appreciate any comments. Thanks..
Hospital stay or Day Surgery?
I had my ICD implanted in 2006, in Oct I will have first replacement. They tell me the leads are fine, but I what I understood would be "day surgery" has become a 3/4 day stay. I am to be admitted to hospital one day, procedure done the next day and then was told to prepare for 2 day stay after that. Anyone else have to stay in hospital?
Canada to US - health insurance issues
Hi
I am looking at the possibility to take a job in the US. I am a Canadian & US citizen. Is there any insurance companies I can get US coverage from? I want to retain my Canadian coverage but want to also explore what options are available to me in the US. Now that there is medical coverage for those with a pre existing condition has that helped people with ICD's get coverage?
Thanks
Travel wait after ICD replacement
How much time do I have to wait after I have my ICD unit replaced before I can travel and insurance will cover me again. Normally for a pre-existing condition it is 90 days after a change...is that the correct lead time?
Sept 12th
Having mine put in Sept 12th, my stomach is in knots, the reason is my heart had a viral/baterial infection , left side only working at low 20 des , right side high 80 des, being told the blood is not getting pumped properly out of the left side of my heart , having shortness of breath issues and low energy , my heat rate generally into the high 90 des, becuase of the infection , slow the PM will slow it down and turn up the pumping rate on the left side,
Read alot of low heart b...
You know you're wired when...
The mortgage on your device is more than your house.
Member Quotes
Yesterday was my first day mountain biking after my implant. I wiped out several times and everything is fine. There are sports after pacemakers!