Most Recent Messages in General Posting

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Support Groups in Rhode Island

Does anyone know of any support groups in RI or maybe even Southern Massachuesetts? I am a 44 year old female ane would love to find other people to talk with!

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unsuccessful lead revision

Hi,
Am 16 mos. post PM implant for 2nd degree HB and vaso vagal syncope. Went in to have my ventricular lead replaced due to a gradual decline in its sensing ability but my Ep found scar tissue and new capillaries had grown around the lead where it enters the vein totally blocking it. After 1 1/2 hrs. attempting to insert the new lead he gave up and closed.

Now before removing the old pm and inserting a new one on the opposite side he'd like to do a tilt table test saying this...

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Three strikes and you're out!

Has anyone had this experience? In the past 10 months I have been into surgery, first to implant the PM and then to repair the leads twice. In each case I have become very ill two days after returning from the hospital. I mean sick in bed! No appetite, weak, sick to my stomach for two or three weeks! The Drs can't figure it out. They say you must of caught the flu in the hospital. Three out of three times? Could a PM make you sick like that in recovery? Help

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Fluoroscopy

I have moderate to advanced arthritis in one of my hips and tomorrow I will have a fluoroscopy with cortisone shot. I was wondering if any of you have had this done and if it gave you nay problems with your pm. Also, did you have to take antibiotics before the procedures. I have to take that for any dental work.
Thanks in advance.

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Small shocks

Last night I was awakened by what felt like small shocks or pin pricks in the area of my heart. I am 100% paced because of a complete heart block, have had my pacemaker for 3 years and never had this happen. It worried me, lasted about 15 minutes, with some shortness of breath, but I didn't get out of bed (was too worried to get up)
Has this happened to anyone else? Should I mention it to my EP or cardiologist? I am fine today.

Megthered

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cortizone and PM

I have had 3 spinal injections with cortizone where they used an xray to guide the needle in. No problem with PM. I did have to stop warfarin for 5 days prior to the procedure.

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Honeymoon with recent PM implant

I'm 22 years old and I just got a pacemaker implanted a week ago. I'm getting married in 3 weeks and we're planning on flying to Colorado for our honeymoon. What do you think about flying so soon after having a pacemaker put in? I've never flown, so I'm a little nervous about that, plus flying across the country with a new pacemaker (I live in VA).

Also, my family is traveling to Disney World in June. I'm hesitant about riding the rides with shoulder harnesses because of the contact i...

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That weird "whew" feeling with NCS

I was going to post to an earlier topic but have had computer problems, so I thought I would start my own topic. I also get strange feelings due to NCS like ela-girl described. When it happens to me it occurs about 5-6 times in one day and then not again for a month or so. Something just happens to your brain for a short moment and all these weird thoughts rush in at once. A while ago I was having one of these days. I was at work in the tea room and while I was walking with a full cup of hot tea...

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Questions for first checkup

I am going for my six week exam. Is there any questions I should be sure to ask? I know I have my list but I don't want to forget anything. I still occationally have pressure in my chest which is only relieved by taking advil for at least 24 hours. I though this would be gone by now. Does anyone else have this?

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Here I go!

Hello there! I'm 32 years old and I'm so glad to know I'm not the youngest person with a pacemaker (or will rather..lol) I'll be having my pacemaker put in on the 9th. Switching out a monitor that is alrady been hanging out for a few weeks. I guess what I wanted to ask is: How long should I take off from work. I am a retail store manager. I was fine after about 3 days when they put my monitor in. Will the pm be that much different really? Also the whole lifting my arm above my head thing. Is tha...

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Neurocardiogenic syncope

I have been diagnosed with Neurocardiogenic syncope (NCS) and a I had a PM implanted 1-18-07 to prevent me from blacking out. My condition is rate drop, beta blockers are not an option because I’m an asthmatic. On an average I have 15 to 20 rate drop episodes daily. The parameters of my setup is a rate drop of 40 bpm in 15 seconds or less with the pacemaker intervention then raising my heart rate to 90 bpm for two minutes. During the day my low limit rate is 60 bpm & at night when in sleep m...

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CHF

I have an ejection fraction of 20%. I am on meds to try and increase. I am a canidate for a bi--ventricular pacer after 3 months of meds if they fail. Does anyone know how I can get some info on the best make and model.The companys just issue some general information. I probably will get only one shot at this and would like to make the best decision possible. i am wearing a life vest at present and trying to live as normal as possible

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Just to Say: Hi Again

Hello Pacers.

It seems ages since I logged in and then I find the site has been updated. Congratulations to Blake for the changes. I am getting used to it all - have been off air due to computer breakdown.

Well, I had a fantastic time on holiday with Rewired. Kay and I get on so well. She is a wonderfullady and a wonderful friend. So supportive. ( I have been going through a really bad bout of depression) So, if I need a laugh to cheer me up I ring her. MY photos a...

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Coincidence

Hi I notice a pacer Billie Hyde. Well my name is Billie too.

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TO THE LADIES

I AM 49, WITH A PM PLACED IN MY LEFT CHEST. I AM INTERESTED IN BREAST AUGMENTATION AND WONDER IF ANY OF YOU HAVE SAFELY HAD THIS DONE OR WHAT KNOWLEDGE YOU MAY HAVE. I AM JUST BEGINNNING TO EXPLORE THE POSSIBILITY AND HAVE NOT YET SPOKE TO MY CARDIO PEOPLE YET. THANKS, LESLIE

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Anyone else with Lupus too!

I was just wonder if there is anyone else out there with a PM and Lupus? I'm 44 and have had lupus for 15 years. My doctor does not seem to think my heart problem is from lupus but I was curious if it might be.

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Support for women with pacemakers

Just a reminder that our group WIRED4LIFE is dedicated to providing support and understand to women with pacemakers. Feel free to drop a note & let's commiserate about the 'joys and fumbles' of being a wired woman! ~Dawnhuberty@wired4life.net, on the web: www.wired4life.net

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A Birthday Announcement for a Special Pacer

Happy 8 to the 2nd power + 4 Birthday!

You should tell people to write that on your cake. That way, they are obligated to buy the biggest one they have.

I hope you have a great birthday BobR! (if you say that fast, it sounds like “barber”)

BobR: April 28, 1939

Take care,
~valerie

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Coeliac disease

Coeliac disease is not an allergy. It's an auto-immune disease, which means that the body produces antibodies that attack its own tissues. For people with coeliac disease this attack is triggered by gluten, a protein found in wheat, rye and barley. Some people with coeliac disease also react to oats.(www.coeliac.org.uk). I was first diagnosed in 1956 and put on a gluten free diet and have been on one ever since apart from a spell of 12 years from mid teenage years. I was tested for a suspected h...

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Coeliac Disease

Does anyone have or no anyone with a PM who has Coeliac Disease?

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You know you're wired when...

You prefer rechargeable batteries.

Member Quotes

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