Most Recent Messages

Post Message!

moving pacemaker

They are going to move my pacemaker from my shoulder to my abdomen so I can have radiation on my back chest area for cancer treatment. Has anyone had this proceedure done?

Read More...

ideas?

Hello all,
I had another event today where I felt dizzy. I have a dual chamber medtronic pm for bradycardia, it only works when my bpm get below 60. I've had 3 real good weeks. I'm not sure why but the last few days I have been feeling like I'm not all there. A little light headed at times. Yesterday, out of the blue I had a wave of numbness come over me and I felt hot. The lightheadedness continued today. After work I went for a run and after 15 minutes I stopped because I was getti...

Read More...

Coeliac Disease

Does anyone have or no anyone with a PM who has Coeliac Disease?

Read More...

new pacer

They are having a hard time setting mine up without me feeling it. Is anyone else having that problem too?

Read More...

Time to party, pacer!

<~*<~*~*>~>

Chris (third1): April 26, 1986

So, if you cant decide what to do on your b-day, here are some suggestions:
1. You can fly a kite….oh, but not if its raining, lol. Well, no, I guess you could fly one, but why chance it, I say.
2. You can make a request to NASA that you would like to attend the next flight into outer space. It only costs $20 million; great bargain yes? And if you don’t like your age, you can ask the astronaut to fl...

Read More...

How high will the pacemaker go?

I was just wonder if anyone know how high a pacemaker can be set for? My doctor seemed to thing about 140 but he really didn't seem all too confident with that answer. I have an exercised indused heart block so when I am exercising my heart rate will be at 150 or even higher and then my beats will drop all the way down to 60 and stay there for a few minutes before trying to catch back up. It is even happening at around 100 bpm now. I have had my PM for 5 weeks and I 've just started back work...

Read More...

Recovering

I am scheduled to have a generator (pacemaker) changed on next Thursday I had my last pacemaker changed when I was 19... they at that time moved the pacer to my right shoulder side what have you. Anyway I know that it hurt like heck for the first couple years and I was just wondering if it is going to hurt again for the same amount of time I am aware that I will not be able to golf and lift for a month or so but I was wondering if it is going to hurt as much as last time....
K Daniels

Read More...

First tech dropped the ball!

I just went in for a 6 month check up with St Jude. The first technician, who had 23 years with the company, said he needed to make a couple of adjustments. He did and I went home. I felt on edge and a little weak. I called my Doc and went back in the next morning. A new tech was there from St Jude and hooked me up to the machine. In five minutes she stopped and said she had to talk to the Doc. He came in the room in a few minutes and sent me for a chest xray. One hour later he showed me the xra...

Read More...

Future ICD's

I swear I'll stop posting so much soon, I just got on this site today :-). Anyway, I was wondering if anyone knew of advances in ICD technology, more importantly (to me anyway) the size of the devices. Does anyone know of smaller, thinner devices in the works? I've tried to find info on it but all I find is that St. Jude's came out with flatter leads. It seems like the devices haven't really reduced in size from the 90's. I think the problem is that battery technology has basically come to a hal...

Read More...

Chronotropic Incompetence(CI) - Need pacemaker

I'm hoping to find someone here with similar experience/situation who received a PM and had his/her problems solved. I've read thro' several posts here but nothing fits exactly. I'm primarily looking for advice on whether a PM will help me.

My problem, after 4 years of testing and some missteps by docs along the way appears to be that my heart rate does not go up with exercise as it should. I get dizzy, never have passed out, if I start exerting at some point. It's getting worse. 4 ye...

Read More...

Leads coming loose

Hi,
I've seen a few people write about leads coming loose from the heart or device. I was wondering how you know it has come loose, is there an intense pain, do you get shocked?
Thanks!

Read More...

Discomfort when sleeping AND weight lifting question

I had my pacemaker put in on March 23 and I still have a lot of discomfort. It has been 5 weeks and I am still having difficulty sleeping because when I roll on my sides the PM digs into my collar bone. Does anyone else have this problem? Its driving me crazy! I also have pain at the site, is that still normarl?
Also, is anyone else out there a weight lifter? I teach a class called Group Power at my gym and I am suppose to start teaching again next week. I am a little concerned about l...

Read More...

First Pacemaker Interrogation Questions

I was implanted with a Guidant 1298 on February 20, 2007 and will have my first pacemaker interrogation tomorrow. I was wondering what to expect, what to ask, what to be aware of.....

Not sure if I will see a rep fro Guidant or my Cardiologist but I do have many questions.......

Any info on just what is done during the first pacemaker interrogation would be helpful......

Thank you....... and I want all to know that this site has given me more answers than all the...

Read More...

Had the 2nd surgery after 10 days

Hi eveyone,
I got my first PM 4 weeks ago, I have 3rd degree of heart block which I noticed it about month ago. I was shocked when I heard that for the first time. Right after 7 days, I played soccer for about 30 min. I could not run much but I just wanted to convince myself that I am still alive! And can move, sine I love soccer and running. 2 days after I played soccer again for about 1hr. I went home and then the symptoms that I had before PM started. At the hospital they said the lead h...

Read More...

rate drop response

My pacer is a Medtronic EnPulse DR it is set for me at 70 bpm. The rate response is set so that if my heart rate drops suddenly within a 1 or 2 minute span (not sure which) by 25 points then the pacer kicks my heart rate up to 100bpm for 2 minutes. Then slowly it goes back to the setting of 70 bpm. This gets the blood pressure back up quickly and keeps a person from getting dizzy or passing or even from blacking out. This has worked great for VVS. Now those pesky little split second blackouts wh...

Read More...

ICD implant under the muscle

Hi,
I'm new here and just wondered if anyone has had their defibrillator implanted under the muscle? I just had one put in on the 13th of April and was told by my Dr. he had to go over 1"+ under the muscle to put mine in. The thing that is upsetting me now is that I can see the lump still. I would think being that far under the muscle it wouldn't show. I can also feel the hard box when I barely press on the area (I can even feel the edges of it). Is it possible he put it over the muscle and...

Read More...

Safe mode period

My pacemaker's battery is near the end of its life. It went into safe mode mid-march 2007. I'm 100% paced also. My question is how long can my device go in safe mode? The reason I'm asking is because I'm supposed to get it replaced this week, but I have a sinus infection which might have it pushed back. So i'm a little worried.

Read More...

Seeking Support Group in Ft Worth TX

I live in Ft Worth, funkytown USA, I'm looking for a support group in my city, does anyone now of one. I have a medtronic dual pacemaker that was inserted Feb 5, 07. Just want people in my city that I can get to know. I'm a 39 year old female very active and I feel like when I wear tank tops people see my scare and I get these wiered looks. So I feel I have to explain then I hear Oh your so young, be careful. I don't want peoples pitty I just want to get back to my life.

You know...

Read More...

Chat? Chat? Chat?

Hi folks~
I'll be hanging out at the chat room if anyone is interested. It is currently 7.17pm EST (New York) on Tuesday, April 24th.

Read More...

Groups in Southern England

Can anyone tell me of support groups in Southern England (Hampshire/Berkshire/Surrey). I'm new to all this. Thanks

Read More...

You know you're wired when...

You know the difference between hardware and software.

Member Quotes

My quality of life is better already and I know it will extend my lifespan.