Most Recent Messages in Conditions, Meds & Tests

Genetic Testing

Has anyone here had genetic testing for heart block? I finally had my appointment with the inherited cardiac conditions team today (1 year later than it should thanks to covid) and they want to carry out genetic testing, despite it potentially being non-beneficial.

I am wondering what genes can cause heart block?

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p m device

thank you all for your answer  about my bedside devise. mine is a biotronic no buttons. they tell everything is ok. if anything wrong they

will advise. still need to know how it works. again thanks to all

 

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Jardiance

I am about to start jaurdiance in addition to my many other HF meds.  I am not diabetic and have HFrEF.  Has anyone taken this medication for HFrEF that was not diabetic?  If you have did it improve how you felt? We're there side effects? And what "reasoning" did your doctor give you for starting the medication (if they gave you one)?

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Echo Accuracy

I am going for my annual echo on Thrusday. Just wondered how accurate echos arre in general.  Mine as fluxuated between 42 and 28 the last few years and has gone up and down and up again. I just do not want to freak out if it goes down again.

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CPET results (looking at you slewyn and crustyg)

So I got my complete CPET results (done for transplant consideration and prognostic marker). I saw the advanced HF/Transplant doc today, he says it's time to start talking about transplant (which I thought was funny because clearly we are already talking about it, it's why we ordered the test.  Some of my results came back better than expected some worse so I am not sure where I stand really.  He drew blood today for antibody testing and pro-bnp as well.  Anyways the su...

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LQTS Genetic Testing and Ongoing Care

Hi Friends!

Does anyone have experience receiving care at Stanford, Cedar Sinai, or UCLA? If so, would you be willing to comment on your patient care experience? Possibly recommend a physician?

Also, has anyone run into issues getting insurance to pay for genetic testing? If so, do you have any tips?

Thanks in advance! 

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Beta blockers

Has anyone had trouble with beta blockers. Whenever I take them my stomach is a mess and I get very sleepy and sluggish. I hate them but don't know what to do, I have to say I have trouble with most medications stomach wise and wonder now if it could be an intolerance to a specific ingredient

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CPET

Does anyone know if a cpet is accurate if you are paced.  I'm mostly curious because they did not change my settings for the test so I went into pacemaker weinkebach before I hit anerobic threshold.  I am pretty sure they use you max heart rate to calculate you VO2max, and mine would show an artificially low heart rate due to the wienkiebach(I am sure I prob misspelled that twice). I had to show it to the nurse post test and explain because during the test she exclaims "wow...

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Medications

Before my icd was put in back in November, my cardiologist prescribed me entresto metoprolol. Well I just checked the drug interactions between the 2, I'm shocked the risk of death is high and there is no reason why it stated. The interaction between entresto and spironolactone is kidney failure, well my cardiologist hasn't done a blood or urine test. My cardiologist (nevada heart and vascular) considered the vast nevada, so WTF. My ct results came back and everything is good accordin...

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Problems

Had pacemaker implant Oct 2020 and have had at least 6 adjustments! Having dizziness and feeling that my heart is beating loudly and weakness feelings. Asked nurse to check if any events had shown up from the monitor that is by my bed! All looked ok she said! Why am I getting these symptoms  if nothing is showing! They come on with no warning and I am not doing any strenuous activities. The reason for my pacemaker is bradycardia and sick sinus syndrome! This is a scary situation for me!...

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Semaglutide

Anyone here had experience of Semaglutide? I've been offered a slot on a trial (double-blind) on a "Research Study to Investigate How Well Semaglutide Works in People Living With Heart Failure and Obesity (STEP-HFpEF)" and am inclined to take it.

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Will they let me complete CPET test if I start having NSVT?

Hello all,

Yes I know I have been a question maniac lately and I apologize!  I just have a lot going on, trying to talk to my partner about stuff is like trying to explain calculus to a five year old.  He is smart just doesn't understand all the cardiac stuff, y'all are my people!

I got my CPET moved to the 16th, but I got curious on whether or not they will cut me short if I start having runs of NSVT?  I really need the data from the test as a prognostic ma...

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Unexpected side effect of weight loss -- just venting

So, I saw the Heart Transplant team last September and they said I pass all their tests for progressing to the next stage of assessment except for my BMI (and eliminating amyloidosis as a cause of the problem). I needed to lose 6kg (13lb) and be signed off by the National Amyloidosis Centre [NAC] before they would move me on. 

Not a given I'll decide to go for it -- major surgery, and I'm not sure I've got the support they want -- I live alone for example 75 miles from...

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Not sure what to think

Warrning long post but I need advice. I am a 41 y/o female who was sent to a cardiologist for abnormal EKG and elevated heart rate at resting. So echo cardiogram, stress test, holter monitor came back normal. King of hearts showed that I had a resting heart rate of 112. The cardiologist at the time decided to refer me over to an electrophysiologist. With that appointment the whole 5 seconds he spend in the room stated my blood pressure was to low and if I can get my blood pressure up then my...

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Anyone have a sample ecg strip of a crt patient with a fib?

I can't seem to find any examples online. Thanks!

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Flecainide

My doctor prescribed Flecainide for my arythmeia  Inam  afraid to take this med because if the many side affects I have read.  Is anyone taking this med? If so have they had any bad affects? 

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second dose Moderna, new cardilogist

The only problem that i have is a sore muscle in my left arm.  Thought that might happen again.  Since i sleep mostly on right side, thought left would be better.

Was a little  nervous about getting the shot before my checkup with the cardiologist the next day.  All went well.  Did get his permission to change doctors.  In fact he likes the one i picked.  Told him since he might be retiring soon. in practice by himself.  Would be good to do this n...

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Pain - thank you x86

Been quiet awhile was in the forum. It's 13 months now since my incision. I still cannot slept my left side so much so that I wanted to or it will sore the next day. Also when I do grocery's and lift, put a  a bit of weight on my left, my upper arms tightens and sore the next day. My nurse practitioner asst to my cardiologist as I complained about why it seems my pacemaker moved if I lift up my arms as if moving down to the side of my armpit now. He found yes it did moved up if I...

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AFib

Has anyone out there been diagnosed with AFib after their pacemaker and then been put on medication.  If so did they have any futher tests prior to the medication?

 

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LVAD and Transplant criteria-EF fraction?

Hey all,

I know there aren't specific LVEF benchmarks for LVAD and transplant list because each case is evaluated on a number of criteria, but I am curious if anyone on here has been put on the list or received an LVAD and what their LVEF was at the time?  If you want to include the other conditions that were included for the decision that would be helpful as well.  Anything specific to dialated cardiomyopathy, complete heart block, and severity of RV systolic function, ar...

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Member Quotes

A pacemaker suddenly quitting is no more likely to happen than you are to be struck by lightening.