Most Recent Messages in Conditions, Meds & Tests

PVCs Ugh!

Not quite 3 weeks post op with a new Medtronic Claria MRI Quad CRTD and AV Node ablation.  32 years on my St. Jude mitral valve, I know a lot about heart valve replacements.  I know next to nothing about pacemaker/ICD's and am trying to learn.

I have Grade B heart failure after 7 years of a-fib that wasn't well controlled by meds.  My EF is now 32-34%.  I have no outward signs of heart failure.  The reason for the AV Node ablation was so I could be...

Read More...

Toprol XL

New dual chamber pm 8/4/23 for symptomatic av block.  I was prescribed Toprol XL 25 mg at discharge. I don't have have high blood pressure, my pvc and pac burden is less than 1%. It really disrupts my sleep and makes me tired during the day, even if I take it at night. At my 6 week device check, the EP fellow said I didn't have to take it, to see how I feel without it, I could always begin to take again. I asked why they even prescribed it, he said it was for pac and pvcs. I...

Read More...

quarterly remote transmission

This time it was a shorter quarter as I was there Aug. 25,2023 in the  pacemaker clinic for my yearly check up of my pacemaker.   Since it was a shorter time frame was better able to track my A-fib episodes.  Noticed again when i had reactions to my food sensitivites, was the same  time as the A-fib episodes. 

In the comment section .  This time only had 191 atrial high rate episodes detected.  The longest lasted  0;04;16;37 in dura...

Read More...

EF lower than 6 yrs ago

Hello!  It's me again.  Please indulge me as y'all might have answered this previously but I am perseverating about the results of my most recent echo.here's what is happening:

1.  I see a new to me cardiologist tomorrow .  I need to know what questions to ask.

2.  I got my 3rd battery Medtronic dual chamber 2 weeks ago.  Echo was 16 days ago.

3.  Last week I visited a friend.  We played pickle ball, went biking and kayakin...

Read More...

I have "Dilated Cardiomyopathy" Stage III CHF with no coronary blockages....Anybody else ?

I am (New) to this site, just joined...looking to connect w/others...I am Stage III CHF and have "Dilated Cardiomyopathy" with pacemaker n defibrillator...I am 58 and have had HF since 50 yrs old...

Hi I am from Mississippi and was 50 yrs old when I was diagnosed w/CHF....Heart got weaker 5 yrs later and I got a pacemaker and defibrillator in 2020....I am Stage or Class III HF....Looking for people with similar experience and friends to connect with đź’ž

My diagnosis is &qu...

Read More...

Amiodarene

My cardiologist wants me to take amiodarene 100mg two times a day for  2 months then reduce it to 100mg afterwards.    He originally wanted me to take more at first! I told him that im reluctant to do that. He's insistent because I had  an episode of V tack in august!  He wants me to take this to PREVENT another possible episode. My heart rate and blood pressure are very normal right now.  Sometimes my blood pressure runs 95/66, 113/70. &n...

Read More...

Remote Setting Adjustments

Can anyone advise whether or not there is any way that the auto self test on my device can be turned on and off remotely? 

My device is a 2272 Abbott Assurity PM.  

Read More...

Magnet over pacemaker during surgery

i got my PM 2 months ago and I have a minor cosmetic surgery scheduled next January.  My plastic surgeon asked me to get approval from my cardiologist which he willing did in a letter to approve the surgery.  He noted that a magnet should be placed over my PM during surgery.  I was surprised because I thought PM wearers should avoid magnets.  What am I missing?

Read More...

Panic Attack Like Symptoms

Good afternoon-

I became a proud owner of a pacemkaer in June of 2023.  No prior history other than a span over four days of " fainting episodes" which ended with a period of "flat lining". (20 seconds). Overall I am in fairly good health weigh 140 lbs, drink very little, did drink caffeine.  Lead an active life, but don't do a lot of cardio exercise.  My initail recovery went well.  I am now back to work and doing what I do.  I had my ch...

Read More...

Risks of long-term RV pacing - episode 2

In my earlier post "Risks of Long-term RV Pacing", I was enquiring about the risks of long-term RV pacing for someone like myself who has total heart block, but a functioning sinus.

As the discussion developed, several contributors with SSS joined the discussion to add their own, very welcome, Qs & As. This leads me to ask whether there is any difference in the risk level for heart failure between the two groups. I.e., does it change anything that the signal to pace my RV...

Read More...

CT scan and contrast

Hi All

Having an abdominal CT scan with contrast next week for an issue totally unrelated to my biotronik edora 8drt. My 1st ct scan since I got the pm last year due to complete HB.

Intuitively, and medically as well (I am in the medical field) I know neither the ct nor contrast will affect my pm. I guess I have to hear it though from my fellow pm wearers. I probably should be more concerned for actually needing the ct scan in the first place (haha) but I am more focused on t...

Read More...

Risks of long-term RV pacing

I have total heart block, but my Sinus Node is working OK. Consequently, my Biotronik Enitra 8 PM is operating in Right Atrium Sensing/Right Ventricle Pacing mode: effectively bypassing the AV block.

This is now working well and I was feeling optimistic about the immediate future until I read recently about the risks of long-term RV pacing! Various unpleasant sounding consequences, including heart failure and death, are apparently possible. My pacing burden is necessarily 100%.

I...

Read More...

What’s next

If the protocol is ICD pacer, Coreg and amiodarene, Whats next?  Ablation ? 

Read More...

Results of echo

Hello again, everyone.  Thank you for all the help you have provided to me in a different ..thread?  
I know I will be getting the info I am asking here sometime today but waiting is not my best trait so here's my question:

My 14 Yr old dual chamber Medtronicpm went  into safe mode Aug 15th.  I wanted to get the battery replacement asap and it is scheduled for tomorrow, Sept 7.  I had the echo yesterday and the report said I have mild regurgitation in t...

Read More...

CRT and arrhythmia

Hello everyone. I'm a reasonably active, slim and otherwise healthy 45 year old female. I've had cardiac arrhythmia since childhood. In 2011 I was diagnosed as having a RBBB. On August 7th, this year, I was diagnosed with a Complete Heart Block and received a CRT-P pacemaker implant on August 15th. I wish I could say I'm doing well. I'm trying my best to present that way, but I am very frightened. Morning and night time are the hardest. I'm still experi...

Read More...

Amiodarone

Has anyone ever taken the anti arrhythmic medication called amiodarone? I was prescribed 200mg , 2x a day? 

Read More...

Tachycardia

In April, I received a new ICD with  3 leads due to an episode with tachycardia! After new medications and new device my ejection fraction improved from 30% to 50-55%.  I started exercising and have been feeling great! Then, out of the blue, I had another tachycardia event! Luckily, my ICD did its job and my rhythm went back in 6 seconds! Has anyone had reoccurrence of VT after ICD implant?  What triggered it? I did exercise that day and ate a chocolate bar, which I genera...

Read More...

I am lost, please help

Hello, i have Afib, PVC, Mobitz 2, type 1 (Wenkerbach). I am exhausted all the time, can have one day good aerobic excercise, next day, i am bedridden. Cardiologist ran an array of tests, 4 ECGs. Heart rate during excercise 150, at night 30 to 50, never above! Cardiologist doesn't see any problem with that, his conclusion: "Mobitz 2:1 and low heart rate at night is normal for trained healthy individual". Had cardioversion - 3 Months in NSR, didn't feel any better. Here goes...

Read More...

Additional diagnosis?

Hi everyone, 

My original diagnosis before implantation was tachy brady syndrome.

Just saw my cardiologist on Aug 18 for my first follow up visit since my implanation on July 18.

Now the doctor mentioned 2:1 heart block and SVT. I'm starting bisoprolol 5 mg per day. He changed my blood pressure med to Hyzaar. 

Is this an additional problem? Or just a more specific clarification of what condition I have?

Found out that I am only paced for less than 1...

Read More...

Ejection Fraction

My question is whether or not a low EF% always suggests heart failure?

I ask because many members with SSS and / or AVB post on here to say that their low EF% improved with pacing to a normal %EF. I note that many do not mention a prior heart failure diagnosis. 

Can SSS and/or AVB alone cause a low EF % or does a low EF% always suggest that there is a heart failure component? 

 

 

Read More...

You know you're wired when...

You can take a lickinÂ’ and keep on tickinÂ’.

Member Quotes

I am very lucky to have my device.