Most Recent Messages in Conditions, Meds & Tests

Unexplained heart block? Insist on being checked for cardiac sarcoidosis

Hi all...

After seven years of symptoms (ignored by my doctor), I suffered complete heart block in 2014 and was fitted with a pacemaker (in Greece, no less!)  I've been 100% dependent on it ever since.  Sadly, no one on my medical team wondered why a fairly fit middle-aged woman had suddenly developed a heart block and so did absolutely no further testing.  Fast forward to 2017 when I was (after a long comedy of errors) diagnosed with cardiac sarcoidosis, which appear...

Read More...

Metoprolol with nodal ablation and pacemaker

My husband is 88 and  after years of controlling and not controlling erratic heartbeat with meds , conversions etc he had a complete nodal ablation 4 years ago . He has had zero issues , very few stray beats and no issues with the procedure and pacemaker. 

He has been taking 25 mg of metoprolol twice a day and I am wondering why he needs that and what the risk of discontinuing it would be. 

Getting him off meds would be a plus as he is sensitive to everything.&...

Read More...

Pancreatic cancer surgery with pacemaker

A CT scan two days ago show I have malignant turmor in pancreas.  I will get details Tuesday and find out stage and if it's operatible.  How will my pacemaker for SSS complicate matters if I have surgery?  I never expected this as I have none of the risk factors except age (79).  Don't smoke, drink, not obese,   no family history.  I am very frightened.

Read More...

Weird heart (?) episode last night.

I received my PM nearly four years ago due to asystole; and while I've definitely had times where I can feel it pacing like crazy, last night, I got home and was feeling fine. I sat down because I suddenly felt flushed and nauseous. I went and laid down, and was sweating profusely for about five minutes; I then cooled back down, and besides the headache afterwards, I felt fine. Has anyone else experienced anything like this before? 

I should mention I'm 38.

Read More...

flecainide

hey all,

 

so i have been posting a lot recently so i do apologise xx

so i have been prescribed the above drug for my irregular heart beat ( i have a leadless pacemaker or the ventricular standstill.. pauses)

im petrified about taking this drug. i've read a lot of articles saying it can be fatal for people, i am slightly concerned . any advice guys? 

 

krissy xxxx

Read More...

medication for afib?

hey guys! 

 

so ive come here again because it's nice to talk to people that understand what i'm going through.

so as some of you know i have a micra for ventricular standstill....

but my ep gave me absolutely nothing for my afib. 

i contacted my eps secretary who said i need to be re referred not helpful and extremely frustrating.

 

anyway over the past two weeks my afib has been terrible, irregular beats you name it and i...

Read More...

Tikosyn vs. Pacemaker

Greetings!  I am a 68 year old male with a thirty year, complicated history of afib, flutter and tachycardia.  I had Robotic Maze surgery in 2008 and was med free for four years.  I have had two ablations in the past year.  September '17 and April '18. Two weeks ago I was admitted to the ER with a heart rate of 170. I was had a cardio version and currently I'm in bradycardia with a pulse below 60 and am on Sotalol 120.  I have been prescribed many hea...

Read More...

Stress Echocardiograph results

Please help with the interpretation of "No atrial pacing during exercise". I understand most of the repport except this phrase. Does this mean that my heart did not pace on it's own during the exercise and I was reliant on the pacemaker's atrial lead?

I have had progressively worse breathlessness and weak legs on exertion. It started in January and I had the pacemaker taken out in April due to blood culture negative endocarditis with a 12mm vegetation...

Read More...

Breathless with Pacemaker

I have RVDR01 Revo MRI SureScan since 2011 after a 3rd degree AV block.

Currently I am suffering from a severe lack of energy and breathlessness when I walk or do anything more than sit.  Is it possible to have another AV block (2nd degree perhaps)?

Read More...

New defibrillator

Early june I took a stress test. they determined that my heart rate was not elevating properly. So they made a change to the defibrillator's settings. My heart rate went to 45 and it was supposed to be maintained at 60. Went back in a few days later and they determined that the leads weren't functioning right. But then a doctor said it was scar tissue in my heart that was causing the leads not to deliver the necessary charge to pace my heart. So they increased the power to the lead. A...

Read More...

PM

I’m new to this group..I’m from Cali and had valve problem and had valve replacement 3 years ago..from been ok and recently develop afib and now candita for pM according to my doctor/Ep.Anyone had the same problem as mine Pm after valve replacement?im on the process of decision if I need to do Pm feel nervous and low pls help..I’m 39 TIA!

Read More...

Will heart block second degree get worse?

Hi. I was diagnosed with exercise induced second degree heart block 2:1. It’s at the level of the AV Node and not below. It’s not type 1 or type 2 because it’s 2:1. Will it get worse if I don’t get a pacemaker? 

 

I got diagnosed late April and the solution is a dual chamber PM. My doctor has been very patient with me about this. I had started exercising lightly to see if it got better. It did for about a month but when I started to slowly go back...

Read More...

Side effects of pacemaker install

I had a CRT-P installed two weeks ago. Had to go 4 days without Diebetic medicines. My blood sugar in mornings was 130-150. Now it's 175-200. Same diet,same meds. It did not do this three years ago on first pacemaker. Meds appear not to work now. Anyone have similiar?

Read More...

New member

I had an ICD implanted 10 days ago. Still sore where there is significant swelling and bruising is going on. I guess I have a couple questions. 1. How long does it take for the swelling and moderate pain go away? 2. I’m on a medication called Amiodaron HDL. I’ve been dizzy since first getting on it. Hard to walk a straight line. I’m down to one pill now from the start of four pills a day. Is this normal and if so when does that go away. I’m ready to Get ‘ ur goin...

Read More...

My Future

Before I begin to whine, this story is my inspiration: https://www.mensjournal.com/health-fitness/heal-thyself-taking-a-fatal-diagnosis-into-his-own-hands-20141128  

In short, A-Fib ablation(s) by the top rated Austin, TX enterprise solved nothing. EP allowed a NSR 125 heart rate to continue untreated for 3+ months  until a giant A-Fib event erupted. I chose A-V Node ablation w/pacemaker. Life was much better, BUT...........a cardiomyopathy had begun (left ventr...

Read More...

this is frustrating

hey all.

 

so i'm getting myself really worked up.

so i have a micra leadless pacemaker to help with my ventricular standstill but i also suffer from afib. i had my pacemaker fitted 19th june this year and two adjustments to the pacemaker.

last night i had a severe episode of irregular beats... making me feel sick and very dizzy. i rang the arrhythmia nurses about this and they said that they might put me on beta blockers? 

i guess i'm getting u...

Read More...

Any LVAD users here?

Curious if anyone here is "lucky" enough to own both a pacemaker and left ventricle assist device.

--Dave--

Read More...

hai from Kuwait

Dear All....

Any private hospital in Kuwait is having the St. Jude interrogator..?

Please reply urgent...!

Thanks

Niyas

Read More...

3 Brief Blocks in 6 days: Pacemaker?

On a 6 day Holter,  had 3 complete 3rd degree AV blocks, two at 3 secs and one at 5.4 secs, all while asleep.  Also subject to SVT's when training -- just back off and they go away.  70 year old male, train every day, but not a maniac -- just maintaining fitness and tone.

No other heart disease.  Not on any drugs.

Ventricles did produce escape beats during the pauses.

The Dr. recommends pacemaker for the 3 AV blocks out of half a million beats.&n...

Read More...

stress test

92 years old have pacemaker one year everythung dandy... they suggest stress test ..why

Read More...

You know you're wired when...

You get your device tuned-up for hot dates.

Member Quotes

I finished 29th in London in 2 hours 20 minutes 30 seconds which is my fastest with or without a device so clearly it didn’t slow me down ! I had no problems apart from some slight chaffing on my scar - more Vaseline next time.