Most Recent Messages in Conditions, Meds & Tests

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Xarelto

Thank you soooo much Gemita and Old male.  Your feedback truly helps to calm my jittery nerves.  New medication makes me antsy.

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XARELTO

Happy New Year to all.  Another happy pacemaker year has passed and more happy ones are to come.

I had my first battery change in May 2022, Biotronik.  I found out the battery and leads do not have to match.  My leads are from St Jude's inserted in 2011.  The Biotronik "sales rep" who was very nice, mentioned in the operating room he was surprised I was not on a blood thinner.  I have rapid heartbeat since the battery change.  I went...

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My Pacemaker details❤️

First thank you  🙏 Gemita and Lavender for your interest and welcome 🤗 

 I will add a bit more information about my device and while I live in Australia over 50 years I was born and raised in Slovenia 🇸🇮...Europe 
I am not on any medications and I was fitted with  Medtronic:Ensura DR MRI SureScan Pacemaker....Model: EN1DR01 on 22/04/2016. But on 27/04/2016 ; while still in hospital they find out one of the leads did not function,so in we go again🤔 I am pace...

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Up date with the results from pet scan and last remote transmission

Pet Scan was advised by the Cardio Doctor after a surprise remote transmission from Nov 27.  Not the regular one that was at that time scheduled for Dec 20th.   Was on shedule.   Because at that time was reported that i had 2 Ventricluar high rate episodes.  Thought maybe an artery was blocked going to the heart.

  Was surprised that i received the results so fast. When i was leaving after the scan asked the tech when i would hear the results, was told...

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Tinnitus

I was diagnosed with tinnitus last year! The sound I heard was a cricket noise! Just last week I developed another different noise in my ear, a heartbeat sound, it's a low whistling sound.  My ENT said it wasn't pulsitile  tinnitus and wants me to do a sleep study and allergy testing? My family doctor wants me to repeat carotid artery tests, I have an appointment on Jan 6 for carotid artery test.   Last year the same test said I was at less than 50% blockage a...

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Anyone else here experience Cold drink heart?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9037514/

I have only been shocked 2 times and both times I went into ventricular tachycardia I had extremely cold beverage in my hand.  

The first episode I ever had of vtach was at 28 pre icd was while drinking a Jamba juice smoothie.  After that episode is when I was first implanted. 

Over the years I have noticed that for me that cold drinks trigger my arrhythmia and I am wondering if anyone else experience...

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High BP after implant - does it go back down?

I had a Boston Scientific PM implant 3 days ago.  61 yrs old.  Sick Sinus Syndrom.  Otherwise good health.  Have my whole life had good BP - always around 120/80.  Never any BP issues.  Since implant surgery 3 days ago, my BP is spiking to 170/100.  Doctor has prescribed lisinopril.  Has anyone who has experienced a post implant BP spike found that it returns back to normal and they can get off BP meds?  I don't want to be on BP meds unless I h...

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Radiation therapy

I have a St Jude's PM implanted right side.  Recently diagnosed with breast cancer in right breast. Treatment involves surgery for tumor removal followed by radiation therapy every day for 5-6 weeks. Surgeon says radiation not possible due to  PM.  

Has anyone had radiation therapy with PM  and how did it affect PM ? 

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Recovery

It has been 3 weeks since my implant and I am still always tired.  Not as tired as before but still very tired.  

Has anyone else experienced this type of recovery?

 

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Grapefruit

Well, I'm back (of course!). Don't think this is serious enough to call my doc, but I was dumb. I take tikosyn (dofetilide) and this morning I enjoyed a large glass of "mixed citrus" juice. Didn't know that grapefruit was one of them--duh--until my daughter turned down a serving saying she doesn't care for grapefruit. How bad is the interaction with the drug? No info on how much of the mix is grapefruit, but after it was pointed out, I can definitely taste it. Yikes....

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update number 1 on ventricular tachycardia

In todays Stamped mail recieved the information for Pet Cardiac Scan for Dec 22.  Wrote to the Dr. via the portal for the site.  Asked if that was the earlierest.  She wrote back they are really busy and if someone cancels.   They will let me know.

Guess i will glow in the dark after this scan. 

new to pace

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ventricular tachycardia

Today through the heart centers portal recieved an email notice that  cardiologist recived a message from their device clinic.  They stated that they are picking up some VT on my device.  The Dr. is recommending that i have a stress test.  She would like to determine if there are any concerns with obstructive disease that may be hindering blood flow to my heart.

Did think yesterday morning might have something around 8am.  Was getting ready to hea...

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Got a new pacemaker

I had a generator change Oct 11. Before the change my resting heartrate was 73-74. Since the change it is 77-78. The pacemaker base rate, then and now, is 70.

I feel fine at rest. But I am puzzled, because I am pacemaker dependent--the sinus node working less than 1% of the time. Where are the new beats coming from?

When moving around, particularly if I'm standing any length of time, I don't feel so good. I feel weak, nauseated, dizzy, break into a cold sweat. My whol...

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Colonoscopy and a fib

Thanks Gemita!

A fib is certainly not funny is it?
best wishes

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Colonoscopy and a fib

Hi all

i recently posted that I had been asked to have a colonoscopy after an abnormal bowel test and was wondering if Edoxaban may have caused bleeding. Thanks to Gemita, Marybird and Ian for responding.

I had the colonoscopy last week, they found a polyp which they took out, but also found evidence of diverticulitis which had been bleeding. They were not sure if Edoxaban might have triggered this.

I am going to ask Cardiologist next week to look at my dosage and see if it...

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Nitroglycerin

Cardiologist prescribed nitroglycerin for emergency use at my last visit. I have sick sinus syndrome which pacemaker addresses. Wondering how many others are carrying nitroglycerin around. 
 

Thanks

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Tetralogy of Fallots

This may be a bit of a longshot (or maybe not since we're all here for the same reason) but is there anyone else here that has Tetralogy of Fallots? I've been told all my life that my condition regarding this is good, and that I may never need to get the replacement valve.

They've also said that my needing of the pacemaker, the fainting spells I get due to my heart pausing is NOT related to my previous condition? It just does seem connected but I suppose they're the prof...

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Change of Meds Sotalol 160mg

Hi All,

My pacemaker issues are well documented on here so I won't go into details again. However, post implant I've been getting PVCs, some of which are severe and leave me feeling unwell for some time post event.

My question is about the new meds my consultant has prescribed. I was on Bisop 2.5mg but my consultant has changed to Sotalol 160mg to try and 'calm' everything down.

Two weeks in and I'm finding the side effects of the new drug really unpleasa...

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Sss and frequent sinus pauses

Hello everyone. Please delete if you feel nessesary as I do not have a pacemaker currently. I'm currently in the middle of getting diagnosed with sick sinus syndrome ( suggested by an ER doctor)  and there's very little support groups or anything with information on the internet for what I'm going through. I began getting a heart workup (normal stress test and echo)  because I started having random bouts of tachycardia and then during an er visit it was found I...

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Bisoprolol dosage

Anyone here have experience with beta blocker dosages? I'm currently taking 5mg Bisoprolol twice a day to control my arrhythmias. My electrophysiologist wants to increase my morning dose to 7.5mg (and revisit it in 6 months). Is 12.5mg/day of Bisoprolol considered a low, medium or high dose?

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You know you're wired when...

You have a $50,000 chest.

Member Quotes

Do feel free to contact the manufacturer of your device. I have found them to be quite helpful when I have had questions and concerns.