Most Recent Messages in Coping

Hard time dealing

I had my PM placed in May 2024. It was a fast process from the diagnosis to the placement I didn't have much time to process anything. Since the surgery my QOL has decreased. I'm in constant pain at the incision site, my body rejected the stitches and started "spitting" them (imagine fishing line coming out of your chest, terrifying) Feeling of pressure, pulling, pinching, ect... I work as a nurses aide and it's physically demanding, the cardiologists office gave me 4 we...

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Heart beat sensation

I'm almost a year out from getting my PM.  For much of the last year I am very conscious of my heart beating harder than usual even at complete rest.  It feels like it's beating harder than it used to pre-PM.  I'm 100% paced in my ventrical.  Is this normal?   It's not painful but it's weird.  My resting heart now is 70 so it's not high but I'm stuggling to feel ok with this constant pounding.

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New member

Good afternoon 

I'm pleased to have found this forum.

I had a pacemaker fitted 4 weeks ago because of Brady tachy. Unfortunately I collapsed at 1.30 am which resulted in me being blue lighted to hospital. The positive is the pacemaker was fitted well before appointment was due.. I've been ok but can still feel nervous at times. Today it feels like the scar is pulling and having twinges. Hope this is common 

Thanks for reading 

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re entresto

Thankyou too the two responses to my Entresto questions....i havent had a Covid injection for a while now so cant blame that, i did have a bit of a heavy cold though that may have triggered the rigors...so had blood tests an x ray..awaiting results...chrs for your thoughts, Dave

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Bras and protruding pacemaker

Over the past year, I've lost a significant amount of weight. My pacemaker is now protruding. Among other annoyances, it's very difficult to wear a bra now as the straps often get caught on it while I'm moving it's very irritating. 
 

Anyone ever heard or had this problem? Wondering if a breast lift would be covered by insurance so I wouldn't have to wear anymore...

 

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Crippling anxiety

Since my pace maker install 6 weeks ago I have had crippling anxiety. It made me feel sick. I went back for a checkup, but the Dr said everything looks great. I feel tired, and it feels like my heart is in my throat. It feels like im suffocating. 

It is slowly getting better, and I have so much appreciation for everyone that has posted here. It is amazing reading all of your stories and advise. I no longer feel alone. 

I have second degree heart block, and therr was only...

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Off Subject

My garden is full to bursting with flowers, Roses, Rhodies, Iris, Peonies, Lavender, etc.

My very modest payback to our Military is  take flowers up to Willamette National Cemetery, in Portland, Oregon. My time zone Pacific Daylight Time.

I am more than pleased to place 🌺 🌹 on your loved ones memorial.

The offer is valid until Saturday May 25 @1800 hrs. PDST

Send me a PM with the particulars, name, date of death, plus any other identifying information.  I do...

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Tick tock

I've had my bi-ventricle PM / ICD implanted for about 5 weeks now, after some serious sustained VT's. Everything seems to be going well but I am specifically but not consistently experiencing times when I can distinctly feel my heart beating. It seems to only happen in bed. And if my arm is laying across my chest, I can feel the beating into my arm. 
Anyone else experiencing this? 

I have a fu appointment on the 29th of the month.

thank you 

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100% pacing

Had my 6 month Medtronic check and I am not pacing at 100%. I will have had my device two years in June and my pacing has increased every checkup. I have an echocardiogram on Tuesday but not sure what time will tell me. I feel fine and live my life but have to say this has depressed me. My wife and kids almost lost me and I can see the fear in their eyes. I didn't know I had an issue when my heart stopped. I have addressed every issue as soon as I became aware of it. I know I am better of...

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Hooray for the return of AgentX86!

So happy to see you posting again, AgentX. We've missed you.

I filed this post under "coping," because seeing posts from people I've come to know and trust is absolutely an important part of coping for me.

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Curious - Palliative Care

I am curious how many PMC members are using Palliative Care?

My daughter seems love the term "Palliative Care". She has used that term for years. 

Most of the people I knew who were using Palliative Care had Cancer and all avenues of treatment had been exhausted. Palliative Care was pre Hospice Care.  I worked at The Cross Cancer Institute in Edmonton, Alberta, Canada, so my experience is tilted toward Cancer treatment, plus so many people are fighting some for...

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When more medication isn’t always the answer

I thought I would share this with you all because I can see the funny side of it now but of course it is a serious matter.

As some of you may know, I struggle at times to look after my husband who has several difficult to control health conditions.  Last night I panicked when I saw his blood glucose level hitting an all time low of around 54 mg/dL (3.0 mmol/L) if my Freestyle Libre sensor was accurate.  Levels should be above 4.0 mmol/L. This happened because I was told to inc...

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Pacemaker Side Effects

Hello.  I am three months post pacemaker implant and continue to have shoulder and neck pain.  I have read that this is a common side effect and wonder if any other members have experienced these pains.  I found numerous studies and found that at least 50% of cardiac implants have these side effects but cannot find an answer as to why.  Thank you for your input.

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Cold weather

I have biotronik Enitra 6 DR-T implanted two months ago. How would cold weather affect it? 

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PM progress since 2-8-24

On December 15, 2023 I discovered my pulse was a pretty constant 41.  No wonder I'd been having 'brain' problems, and was week and unwell.  I had bradycadia.  So, I saw my doctor and things moved at a rapid rate.  I had my PM implanted on 2-8-24.  Just 16 days ago.    My energy level is up.  I can walk further than I've been able to walk since Oct '23.    I am still learning some things every day of course, and trying to ta...

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Serious coping....

(Edit to add: For those of you that want to say that I need a good therapist, we don't have those where I live. I would have to travel over an hour one way to see one and that just opens up another can of worms that isn't feasible.)

Yesterday I went to get into our Jeep, we live on a ranch and I got out to close the gate and got back in the Jeep... that was all it took for my chest to hurt for half an hour. Like really hurt. The kind of pain you want to cry at but don't beca...

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Delta Waves

Hello,

 

I recently purchased an apple watch, and have joined a community that look at ecgs and such on the devices. One common comment about my ECGs are the appearance of a wider QRS and Delta Waves. I was aware RV Pacing causes the appearance of a wider QRS, but i'm not sure if delta waves are also part of this? 
 

Everything online says Delta Waves present in cases of WPW, which i don't have. 

 

Thank you for your hel...

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Pacemaker hurts!!

I had my pacemaker surgery 8/31/2023, I have told my doctor at every visit that it hurts and it's not in the same place as it was, he completely ignores my complaints, the nurse writes everything I say about the pain but after the visit the doctor writes patient has no complaints. I even have someone with me at each appointment that knows I have mentioned this many many times. Now it feels like an area is going to literally poke through my skin, it was never like this before, I know most...

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Study highlights risks of anxiety and depression after cardiac device implantation

 

I counted today over 100 entries, using the search feature on the Forum, with the word “anxiety” in the message.  Many other posts had words like “stress” or “fear” or depression” in the messages.  Anxiety, fear, stress and, even, depression are incredibly common issues amongst us.  Who hasn’t experienced a moment, especially when the device was new to us, where we didn’t stop and think to ourselves “wait,...

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Dental Work

Is it necessary to take 2 grams of antibiotics before a visit to the dentist for a dental bridge? Pacemaker biotronik Enitra 6 DT implanted 7 weeks ago. Thanks.

 

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You know you're wired when...

You trust technology more than your heart.

Member Quotes

I consider my device to be so reliable, that I never think about a failure.