Most Recent Messages in Coping

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Doctor frustration

I wonder just how many people on this incredible forum are as frustrated with their medical care as I am? In November I was doing well, and all of my doctors were fine with the idea of me coming in after a year if all went well and there were no complications. Then came the complication of getting a shock for a serious A-fib that could have taken me out if I didn't have a defibrillator. That caused a rash of new appointments and another echo of which didn't result in any new news. On...

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Medical Mariijuana

Does anyone use THC to relax ?

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Increased HR, any ideas please?

Hello there I hope you are all doing well,

 

I have been experiencing some strange symptoms for a couple of weeks now and i wondered if any of you have had similar experiences, or have any ideas as to what could be going on. 

 

My heart rate keeps randomly increasing from its usual 65 ish beats to around 95 beats. It stays like that until I eventually go too sleep, and this could be for hours. I'm not quite sure what is causing it? when it happens i...

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Sleeping on left side

Should I be able to sleep on my left side?  I get some pain in my ribs but there is no PM there...

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Neurological symptoms after pacemaker insertion?

Hi guys,

Going through a tough time with symptoms nearly 3 months after 2-lead PM insertion and would love to know if anyone has gone through anything similar.

I'm a pretty healthy 57 year old.  I was diagnosed with permanent A-Fib in the summer, and two months later had a successful Cardioversion which restored my natural rhythm but unfortunately led to bradychardia and HR in the low 40s.  After admission to hospital, and while still taking bisoprolol and amiodarone...

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Multiple Questions

Hello everyone 

I am finding this site an amazing source of information and reassurance. I have now had my PM for just ovr 2 weeks and have already had it reset twice - initially DDD but now in VVI mode because I had a lot of ectopics and the PM would fire off causing uncomfortable sensations in my chest. I am now symptom free but have been left in a rather anxious state generally and finding new things to worry about! 

The first relates to how much activity I can d...

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I Sometimes Have Panic Attacks Now

Hello fellow club members!

I just wanted to talk about a tough experience I'm having. I hope others can read about it and not feel alone with similar experiences.

I got my first pacemaker about 1 1/2 years ago, after suddenly beginning to wake up in the middle of the night feeling sick, only to pass out within a few minutes. This turned out to be due to vasovagal syncope with asystole, trigger unknown.

The first time it happened I thought it was just a fluke, maybe...

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Pacemaker recipient since birth

Hi, my name is Aletheia.  I just turned 19, but I was given my first pacemaker at 3 days old in 2004.  I also had heart failure shortly after that.  I'm also on several heart meds.  A couple of years ago one of my leads broke and I got a new three lead pacemaker.  That new pacermaker has helped my heart a lot and I've gone from moderate to severe heart failure to mild.  My life is pretty normal except for the fact that I have never been able to be in PE o...

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New to having a PM

Hello. I am new to having a PM as the procedure was on Nov. 21, 2023.  I am a 51 year old female that is pretty active. I was diagnosed with synope and 3rd degree heart block.  I had wrecked my car on June 28th due to an episode and a loop recorder was implanted and then another episode happened on Nov. 18th and on arrival at the ER, my loop recorder was scanned and found the problem as 3rd degree heart block, so as I stated before I had a PM implanted on Nov. 21st.  The p...

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So discouraged and deflated

I'm not a trusting person, especially doctors. But when I started to feel better after my ICD implant surgery, I began to hope. I let my guard down and just accepted the positive reports and my life had a green light to go again. It felt amazing. For a month I was so elated, and I finally let go of 10 years of negative thoughts about my condition. 

Then I got the shock from my defibrillator on Monday. I had the idea that unless I did something physically demanding, I wouldn'...

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Lightheadedness

I just got my pacemaker on Nov 2/23. I was suffering from lightheadedness & like my heart was skipping a beat. I noticed that it happened mostly in the morning and at night. Sometimes as much as every ten minutes.

However today I noticed it wasn't happening when I had my cpap machine on. So I decided to focus on my breath without hyper-ventilating and no more lightheadedness!

I hope this might help someone.

This is a great site!

 

 

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New to having a Pacemaker

Hello everyone,

My name is Chrissy. I'm 37 and I got my pacemaker on 10/16/2023. I recently came across this website looking for a support group. Let me know if any of you have experienced what to have. I think I may have needed a pacemaker for a few years without knowing it. I started running in 2015. It was really difficult. I had no energy and I would tank or lose energy very quickly. I thought for a few years that maybe it was because I was out of shape or I was n...

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Pacemaker

Does anyone with a pacemaker out there ever feel when their heart rate is changing. You don't feel dizzy or light headed and you don't have a head ache but your head feels slightly different at times?  My heart rate is between 63 and100 according to what i'm doing. My pacemaker was put in about 11 months ago and i had a complete heart block. 

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Pacemaker question on fatigue

Hi everyone, I had a pacemaker put in two months ago. On my 4 week check up they made an adjustment which cleared up my flutters and twiching.  For the next month I felt more energy and was doing well.  Now it's been about 3 weeks I'm back to feeling tired like when I first had it put in.

The incision is still sore to the touch but healing up fine. Is this normal to experience fatique again?  I am in my 70's and maybe it's just old age?  Any idea...

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General information

Hi 

I'm a 32 year old male and just got a pacemaker last week. 

I'm looking for general advice on do's and don'ts when it comes to lifestyle choices and how to carry on as normal. I have no underlying health conditions that led to my pacemaker I was however passinging out due to my heart stopping for periods of time throughout the day. So far everything is working out fine but I am still in the recovery process. 

I would just like to know if th...

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TAVR & Pacemaker

I had a TAVR procedure and pacemaker implant five months ago. I am still not feeling as well as I anticipated I would. I was wondering if anyone else could comment on a similar experience? Is five months not sufficient recovery time?

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work pressure from managers & help needed

Hello, I am under a lot of pressure from work. they read somewhere that I should have made a full recovery within 6 weeks and that a pacemaker is a small procedure. 


I work nights in tunnels, hauling heavy machinery up and down stairs on one side of the body all night, occasionally coping with sleep deprivation. 


My cardiologists advised me to gradually build up my body, and I am also suffering from lack of sleep owing to pacemaker sensitivity, for which I ha...

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Tool usage

I have had  apacemaker for several years now and I have seveal things I know I can't do.   where I work I can't work in he department with a microwave oven the size of a small car, I can't drive an electric powered fork lift. and I can't ge within 1 ft of our power panels with my chest.     also I can't operate a welder or chain saw.     

but now I am seeing these pole saws with a little 10 inch chain saw on the end and po...

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Neck Issue?

Hello,

I hope everyone is well. I firstly want to thank the commentors from my last post, you provided some very useful imformation, I spoke to my hospital and they said that the increase in heart rate is completely fine and a normal human body reaction to alcohol consumption, and that they are not at all concerned by that. 

I have had an issue that has been on my mind for a long while now that I have never got round to finding an answer for. I have been feeling a weird press...

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Chafing / soreness around incision scar tissue

Hello people,

It's been a few months now since I received my (first) pacemaker and overall, all is well. I'm still feeling it when it kicks in, and when it runs a self test, but I'm used to the feeling by now. The scar has healed well, no signs of swelling, redness, or anything like that.

I do however feel soreness around the scar tissue, especially if it's warm and I'm wearing clothes that rub against the area. Do you all have any tricks for reducing this? Cre...

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You have a dymo-powered bike.

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