Most Recent Messages in Coping

Pain

I had my surgery on February 23 this year. At first it wasn't as much pain. But now I have severe pain in my shoulder,arm,and sometimes in my hand/wrist. Have any of y'all been through this? My doctor's won't give me any medicine for the pain but they want to do surgery on my arm.

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Pain

I had my pacemaker put in March 5 and then again March 15, since one of the leads went through my heart and was pacing my diaphragm. My scar is still so sore and I get this burning sensation a lot. I’ve seen the Dr and he said I just have to get used to it. Wearing a bra strap hurts it. It is so sensitive. Will it stop hurting I wonder?

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nostalgia

last but not least patch who with a sense of humour helped many of us to cope with our new devices..karen pookie says hi susie pacergirl says hi and says she decided to retire and is doing well. he aslo helped me  many times to have hope to go thru the horrible billof goods my husband got dealt...thanks i can never repay..

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going back to 2006

in 2006 i was very close to death and for a few months it was missed when i would appear for tests. i fainted in the funeral home where we had visited to make arrangements. finally one day with a pulse of 28 i was invited to have an emergency pacemaker. after a few days i returned home and that night i felt so low and my supportive husband said you will feel like this for a year.i went on to find this club that evening where i met wonderfully supportive people who i consider friends forever,...

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Pacemakers

Earlier this month I was told that my 9 year old battery was running down and that I had 3 to 5 months left on it. I assume I am now at ERI stage and pm limited to 65 BPM. I am continually tired, slightly giddy and a little breathless. Is this usual? If so is there any way to alleviate this?

G

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So that's it...

So it is going to happen... the pacemaker. I'm 33 yo, my dad was 42 when he had is first device. I have WPW with SSS and having now frequent episodes of AF at 200 BPM. Had one cardioversion 1 months ago. In ordrer to give me appropriate medication (like BetaBlockers) I need a pacemaker, so my doctor says for the past 6 months. I can't find the words to say how sad it makes me feel. I feel broken. Has anyone felt like this? I'm scared, angry... bi...

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Ventricular-Pacing symptoms

Hi!

I just had a dual-lead Boston Scientific pacemaker installed about a month ago.  I have Bradycardia and 'Sick Sinus Syndrome', and my heart stopped for about 10 seconds while in the hospital for A-Flutter.  They did an A-Flutter ablation, then installed the pacemaker.

Most of the time I am not even aware of it, other than the lump on my left shoulder.  But I get periods of 'tightness' (not pain) in my chest and neck/throat (occasionally a little...

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Airport Secuity checks

I have been on two holidays with my pacemaker and I am struggling to cope with the intrusive physical body search - from the security staff - leaving no part of my body un touched, my breasts, crutch and even examining between my toes, hands around my waist belt down my trousers and swabs from my hands. 

 

I am begining to really dread  my next holiday . 

 

Is this normal or have I been unlucky? 

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SPOOKED!

I'm an A-V Node ablated dude and I've been unnerved a couple three  times over the past year or so regarding this situation: I'm sitting, relaxed, reading and suddenly, a he-man tachycardia event erupts. After 5 seconds or so, I brace myself, waiting for my pacemakers CRT-D to fire. Another 5 - 10 seconds pass, and the tachy event stops (no CRT-D involvement). Anything to worry about?

--Dave--

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Angry sparrow

Hi All, 

No questions about pacemaker, just wanted to know how is angrysparrow. Can I contact her, wanted to talk her and wanted to ask how she is doing. 

Can anyone help me.? 

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80 yr old

Today I was shocked to know that tomorrow my mother will get a pacmaker. Just about 3 1/2 months after I got mines. Don't know yet the exact specifics on why and what type of pacemaker.

I am worried because she is 80 yrs old. Does anyone know or has heard of someone getting a pacemaker at 80? Please let me know.

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Pre surgery worries

Hi I have had AV block related problems since pregnancy. Ectopcs tackycardia and now bradycardic and on sotolol   Had a VSD closure in 1993. Been told today that a pacemaker, defib, is going to be needed. Feeling so worried for myself especially as my baby is only 8 weeks old. Please can I have some advice/reassurence as to what to expect. Thank you x

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Pacemaker heart block

Hi my name is Alain pronounced (Allen) I'm 28 from Wisconsin recently I've been diagnosed with complete heart block. When I'm sleeping my heart rate drops to about 30 beats per min and my resting heart rate is about 57 beats per min. The thing is I really only have symptoms when I workout, I get very dizzy but I have never passed out. My doctor doesn't want to put a pacemaker in he said because of my age. But if it's the only way I can workout I think I want it done. Don&#...

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My New Friend's Name

Hi Everyone!

As a Newbie and scared I read a post that said it helped to name your device...So that is what I did; or rather what my family did.

My son created a spreadsheet and sent a group text to my immediate family telling them of a contest to name Mom's new best friend.  Each one got to submit 3 names and after all were submitted he shared with them the results at which time everyone voted on the name they liked best.  (You were not allo...

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How to cope

Hi I am new to the forum and have found this site useful since having my pacemaker fitted. 

I suppose I am writing this for abit of support.  I am 39 and had appendicitis in march 2017 whilst under the anaesthetic they noticed a heart problem.  I was sent for routine tests and after dropping a 48hr tape test off at hospital on a Sunday afternoon I reciever a telephone call from the hospital on the Monday (the day after dropping the tape off) to say I needed to come in imm...

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CRT

hi I posted about 3 months ago about my mum who had a CRT pacemaker. Unfortunately it hasn’t been very successful. Life is pretty frustrating for her. They have tried adjusting the setting but then it just pounds which is very uncomfortable. I know there is probably nothing more that can be done but I thought I would post again in case anyone has some suggestions. She is a very special mum. 

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Anxiety and depression

In January a PM was inserted after rescue run to ER. I'd been having sporadic feelings of faintness, and at the hospital they were attributed to pauses. The heart stopping. it came out of the blue. Before that I could walk six miles easily, spent 90 minutes 4x a week at the gym, my weight, BP, cholesterol are great, I don't drink, smoke. There are no structural, pump, arterial troubles. 

I am 74 and very lively.

But had a slew of unpleasant symptoms after th...

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Strange/Irregular/extra strong heartbeats with new PM

I'm a newbie here and would appreciate some input....I'm currently 66 years old and have a background of 30+ years of Atrial Tachycardia. It was mild at first and episodes were short in duration and most of the time the Vagal manuevers would stop them. In the past 6 months, the episodes had gotten progressively worse and lasted as long as 2 hours. I'd have heart rates of 180+ BPM long with light-headedness and difficulty breathing while simply sitting in my chair. We tried a numbe...

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defib going off?

Well today is m daugter's 29th birthday and I tink I experienced my first shock,  last Wenesday and Tursday I had to be interrogated.  Still can't drive my car or go sopping in mall or go near some electrical appliances without problems,  Yesterday I can swear I was shocked when i went to turn off light.  I've been having multiple pvc's and today while resting i felt beep beep beep beep then after te third beep 4 zzzz. no pain just slight zap. Called EP he...

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After procedure

I am 35 years old and up to a year ago everithing seem to be fine with me. Even though Ive always been a lil on the over weigh side... well maybe a lil more than a lil, Ive always been generaly healthy. All of a sudden last year the dizziness and chest pains started, usualy when I was resting. My heart wasnt beating fast enough causing me to be tired all the time and feeling dizzy and having really weird and irregular heartbeats. I was going to Drs back and forth to try and find out...

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You have a new body part.

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