Most Recent Messages in Coping

One year on a St Jude Pacemaker.. opinions needed 100% dependable

I have a St Jude dual lead Pacemaker, Just got my one year check up and was told I went from 60% dependable to 100%. I really dont know what to think. They are talking about changing me to a 3 lead unit.  I am 66 years old decent health and decent shape.

Why wouold I go fro 60 to 100 so fast?  What is the prognosis for me? My cardio guy sent in the ST Jude rep  and nurse practioner to inform me but I really dont understand all the lingo.

opinions and questions ...

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1week after surgery

I keep reminding myself to look on the positive side of things. It is difficult at times though. I can be grateful I could get in the shower last night with very little help drying off. I just would like more physical strength to match my mental thoughts that tell me, I am able to do things when in fact physically I am not there yet.

In one week I go for my two week checkup. I am hoping by then I am much further along. Of course, I do need to remember I am not as young as I was the &nbs...

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21 year old with 3rd degree heart block

I got my pacemaker implanted on March 2nd and it was all so sudden. I never had any previous heart related issues and I cried like a baby once I was told I had to get a pacemaker. 

I have not had much luck with finding others who are as young as me that could relate to how I am feeling. Is there anyone on here that I could talk to who is in the 20-25yr age range? This has been so hard emotionally and mentally and I just feel like no one around me understands. 

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Newbie

I'm relatively new to this as well. It is definitely a learning curve. The "reveal" was unsettling but I am getting used to my new normal, what choice do we have?! and I'm sure in time it will be transparent. Best wishes.

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Newbie here

Just now removed the bandage for the 'reveal'.....anyone else see a 'golfball' under their skin and is it because of swelling?  How long before the swelling went down?  Granted I am petite and weigh little over 120, but yikes!  It's my new 'best friend', so I don't mean to complain but it is just a little difficult to look at.  

Thank you for some encouragement.

 

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more detail

I had had fainting spells for a year and noone knew what the cause was.  Then they implanted a medtronic cardiac loop recorder that caught my blood pressure droping and heart pausing for 4.5 secs causing a faint.  Now nearly x2 weeks later I have a PM/ICD.  I am in shock as I have always eaten relatively healthy , with no heart problems in my family.

The wound looks as if it is healing well.  I had a sore arm but I think that is getting better too.  I am tr...

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newbe

I'm new tell me anything and everything, so far I have found my information very limited.  I am hoping I will find out more here

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I hate it

I have brugada syndrome and had an icd implanted when I was 15 as a preventative measure. I'm 22 now and it's made me miserable every day since. When I was a kid all I ever wanted to do was fly for the air force, it was my single driving passion and it consumed me. Later on my opinion on the military changed and I wanted no part in it but I still wanted to fly. 

Obviously the military was out of the question and that was hard to cope with for a few years but what crushed me...

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The Begining

The Beginning

On the 20th of April 2018 age 41 my life changed forever it was hard to come to terms with and I started writing this 2 weeks after so the reality is that I am still coming to terms with what I know, I already perceive that I will have to come to terms with things I don’t know yet (I know that sentence sounds rubbish, I know stephen Hawking could do a better job in explaining it but sadly he died about a week ago)

I thought I w...

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Request information/advice on getting a pacemaker- 39 year old mother of a 9 month infant with bradycardia

I am seeking advice on where to get a pacemaker and a doctor to provide a second opnion on if I need a pacemaker.  I am an active, fit 39 year old female with an infant son and would like to continue running, diving etc.  I am hoping to manage my bradycardia without a pacemaker so I would like a second opnion, but if I need one I would love to have recommendations on what hospitals/doctors are the best for people who will require having a pacemaker for at least 40 years (I hope). &n...

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New Pacemaker

Hi ladies,

i am new to having an ICD pacemaker implanted 19 days ago on my right side.  I had breast cancer in 2000 with a lumpectomy on my left breast. So that I would not have lymphodemia issues due to lymph nodes removed in my left arm, my electrophysiologist implanted the ICD pacemaker/defibrillator on my right side. Being right-handed has made it a challenge when blow drying my hair now. I hold my round hair brush in my left hand and hair dryer in my right hand....

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Pacemaker

Hi , I just had my PM installed about 3 weeks ago and I am having issues with getting out of breath just slightly after slight exertion. Is this normal?

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Pacemaker

Hi I am new here and looking for some help. After 4 ablations for afib and svt I was still having major attacks. On April 25th I had a Medtronic biventricle pacemaker implanted and the av node ablated. I am extremely anxious that the pacemaker will fail as I am 100% placed. My arrhythmias started in 2013 and since then I have developed PTSD and severe anxiety disorder. Despite bi weekly therapy appointments and meds I am mentally getting worse and live in constant fear. Since I am 100% paced...

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New to the club; not a pacer, yet.

Greetings,

Have been lurking on the site and reading the forums for a couple days. 
I don't have my ICD yet but will likely be getting one in a month. 

A bit of backstory - I'm 42, was pretty active, then went to the ER last month with shortness of breath. 
Was admitted to the hospital where I was diagnosed with endocarditis and chronic heart failure. 
Ejection fraction was at 25%. 

My cardiologist has put me on several me...

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Pacemaker

Interested in the health of others with a long term history of pacing. I've  had a pacemaker since 29 due to brachycardia and now am 57. Daily fatigue has returned. You know the kind- not I'm tired - I'm so tired I can barely move. Had all the usual tests, blood, stress, heart efficiency.  I gave no other underlying health issues. Heck, this is why I got the pacemaker in the first place!

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For the females

I got the Pacer October 7 for second degree heart block. My question is ever since, every time my monthly cycle comes now I have weird PMS. I will get rib pains, increased anxiety, and just notice any little aches. My doctor says it's my body still adjusting to the foreign object. Thoughts?

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site discomfort

Had a St. Jude's dual lead pacemaker implanted in Feb. of 2017 due to a random and unexplained cardiac arrest at age 69. Now lately I have been having some site discomfort.  I don't do strenuous exercise anymore due to a rotator cuff tear in left shoulder, so that can't be it.  I do play drums in a rock band, but that doesn't pull on my chest muscles.  Anyone else have this?  I know that I overreact to stuff since this happened because I flatlined for 8+ se...

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Shoulder Pain

I had my pacemaker surgery on the 11th and have had shoulder pain off and on throughout the day and wondered if this is normal and if others have also experienced this..

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still tiredd just not feeling well

It has been 6 weeks since my pm implant and I'm still tired, and now very irritable and cranky and when I walk my breathing is labored I only have a few days with energy but those are far a few I just don't understand I thought I would be feeling better by now.

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Is Exhaustion normal after pacemaker

I am a 71 years old male and have had an active healthy life.  This past summer I was diagnosed with an auto immune disease called Sarcoidosis. This is a misunderstood disease that I won’t go into here, but it has no cure. It typically affects the lungs and can spread to other organs or lie dormant. In my case it affected my hearts electrical system by disrupting the pulse rhythm. My Symptoms were pulse in the low 30’s and exhaustion when doing just about anything. I had a 2...

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You know you're wired when...

You play MP3 files on your pacer.

Member Quotes

A pacemaker completely solved my problem. In fact, it was implanted just 7 weeks ago and I ran a race today, placed first in my age group.