Most Recent Messages in Coping

Funny feeling in throat & chest

New to the club. I just had a dual lead PM implanted on 05/01/23. Since then, I have an occasional tickling (for lack of a better word) sensation in my throat/chest. It doesn't hurt, just annoying. I've been told it will go away in time, but I'm not so sure. Has anyone else experienced a similar sensation?

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Over analysis of your condition is injurious to your health

Yeh ! Seriously, I think that i am doing over analysis of my condition. It is only a month after my operation and I am like super depressed about me being dependent on that pacemaker. After my operation, i basically Googled every thing about pacemakers. Like what is the mortality rate of young patients of pacemakers, What might go wrong after pacemaker operation... !!! like every thing! Now , the main problem is ,i can't even think anything positive. I can't see positive in anything....

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Ladies bra

To you ladies here-I have tried many bras and sports bras but they all seem to cross over my device making the fit uncomfortable. I have yet to find a high neck brand that completely covers the device. Does that make sense?  TIA

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New pacemaker and svt

I received a surprise dual lead pacemaker on February 20, 2023 for complete heart block.  I had no idea I had a problem until one day my fit bit told me my heart rate was way too low.  It's been scary trying to adjust. The testing done in the hospital showed my heart is otherwise pretty normal and healthy.  I have had some sensations of a squeezing feeling in my chest that come and go, and apparently I am also having SVT. I came home on lopressor 25 mg a day, but I was told...

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Any Occupational Therapist?

Hi there, 

 

I'm currently an occupational therapy student. Today is the second day of my attachment, and I'm struggling with tiredness/a little breathlessness/a little weakness at the end of day. I have congenital complete heart block and have been paced since birth. Wanted to know if there are occupational therapist out there with a similar condition and how did you cope with the demands of work?

 

Thanks in advance! 

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Missed beats

Hi Guys , could someone pls reassure me 😉 I have had my latest PM for 18 months , for about 6 months IV been experiencing missed beats & a horrid thud feeling now & again , had pacemakers 10 years & never suffered from until now , went for my PM check a few weeks ago & told them , they said only 1 episode could be found & were not concerned, but I'm now having them loads more often , is this normal please? They are really scary . UK member & I'm 100% paced &hea...

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Fluid Retention

Hi Pacemaker Club,

was just wondering how many of you deal with fluid retention. I am suppose to weigh myself every day and if I gain 2 lbs. in 1 day then I need to take Lasix. The problem for me is I don't notice any ankle swelling or leg swelling and that worries me because I don't want fluid in my lungs. Any comments will be appreciated. Thank You

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Any Ideas or Suggestions would be great

Hello All, I hope you are well,

It seems that I post on here a lot to complain, moan or say there is something not quite right. And i know it may come across that way, but I value the opinions, suggestions and help I receive on this group. 

Since January now I have been feeling completely exhausted all of the time. I am so tired and have a complete lack of energy and it is really starting too get me down. 

My legs have also been in a lot of pain and aching, and bec...

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Help With Definition

I am curious please give me your input, in particular I am interested in members who have their cardiac condition stabilized.

How do you define yourself

A.  Healthy

B.  Sick 

My answer is I consider myself Healthy.  Yup, lots of Orthopedic issues Cardiac junk and undefined neurological problems. I define sick as when my cardiac condition put me in the hospital, COVID caused me to be sick.  Most of the time I do not consider my self "S...

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New med

Hello everyone ,I have had my  pacemaker 2 years now ,it adjusts  when my heartbeats too slow.Just lately I have been having more frequent palpitations and Cardiologist has asked my Dr to  change my 180 mg twice daily Sotalol to 100 mg of Flecanaid   Twice daily ,I have to cut back Sotalol to 80mg twice daily for one week then 40 mg  twice daily for following week .I then start  on 100mg of Flecanaid twice daily ,I am nervous of cutting down S...

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Whooshing in ears/dizzy when he moves his head

Hello

i'm new here and have joined on behalf of my husband who is nearly 80. We are in the UK. He had a pacemaker fitted 4 days ago and came home the next day. Everything was fine for the first 3 days, but today he is getting whooshing in his ears, especially when he moves his head to the side, and also when he moves his eyes from side to side. He also feels slightly dizzy when that happens. 
 

He's had a/f for a few years. He had open heart surgery las...

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Sensation or quasi-pain when paced

I have had my pacemaker for a little over 5 months now.  It has been excellent, base rate of 60, solved my low H/R and pauses at night, and generally everything is fine.  However, there are times when I can feel a sensation or even a minor sharp pain when it is is pacing as as a result of a PVC.  I admit I am over sensitive to H/R issues and ectopics as I also have very occasional Afib.  But it is odd to feel this...sensation...when it is pacing the ventricle.  It som...

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I FINALLY have my WHAT! Now we just need the WHY....

Ladies & Gentleman I FINALLY have my what! After 3 years of countless doctor appointments, ER visits, testing, etc; we finally have the cause of my issues. Unfortunately it falls outside of the scope of this website but since I've shared my journey I will gladly share the outcome. I'll begin by saying its rare and it took countless hours of research, and one doctor at UCLA to finally believe me. 

The partial diagnosis came from the invasive cardiopulmonary exercise stre...

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Shortness of breath just going up stairs or walking

I have had a pacemaker for 10 years because of complete heart block. I just received my second one last July. When I tell my doctor about shortness of breath and weakness in my legs going up stairs or just taking a walk he tells me my pacemaker is working. Does anyone else have these issues?

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One Year Anniversary

Hi all!! wanted to comment I am having my one year anniversary on Sunday march 26th. It was a nightmare a year ago was on vacation in Florida having a great day in the sun and surf!! But that night was passing out all over the place. Thanks to my wife's quick action in getting me an ambulance and the closeness and expertise of the hospital I sm her today to talk about it. 

A year later I seem to be no worse for the wear. Feeling good blood pressure is perfect and my blood...

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Preserved left Ventricular Systolic Function?

Hello,

 

I have written many messages on here an always get great help back, and I just have a question please that is quite worrying me.

I had contacted my cardiology team about a few symptoms I have been facing recently ( extreme fatigue, headaches  and no energy ect.) and I had a phone call and a letter sent back. 

In my letter the notes say Jun 2022, normal LV function and size with no aortic root dilation. 

But then further down in t...

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Pacemaker battery nearing the end of power.

I've been told my pacemaker had several weeks left. I totally rely on it because of total heart block. I'd rather get a new one sooner rather than later. I'm so nervous that it will just stop one day and my heart will stop right along with it. My cardiologist says insurance won't cover the procedure until I need the device changed. This is freaking me out. How close do you have to be to flatlining before Medicare will cover the procedure?

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New PM

Good evening, 

I had my PM placed on Monday the 13th of March. Big surprise to me. Micra AV.

I'm 58 years old. 

I have so many questions and looking for help. 

1. When do the PVC's calm down?

2. Is it normal to be so emotional? Anger, crying, anxiety and fear?

3. Are there any online support meetings?

Thank you for the acceptance to this forum and grateful for any help. Feeling alone and scared!

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Pain at Site of implant

I got my pacemaker inserted on Valentine's day...now over a month has passed and the bruises and swelling have pretty much gone away. The skin over my pacemaker is very sensitive and still painful. I can feel all the bumps and where the wires connect if I run my finger over it. Just about everything I wear rubs against it. I bought the pads you attach to bra straps, but as I don't wear one, they aren't much good. I tried taping them over the site, but they aren't soft enough a...

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any help or advice would be great, getting fed up

Hello Again,

I am looking for some advice/ knowledge please. 

For about 3 months now I have been feeling bad, I am extremely tired, lacking energy and motivation to do anything, and I have had almost constant headaches throughout this time aswell. 

 

More recently a few weeks ago, my legs began to ache and really hurt. This pain gets worse when I move around, and nothing seems to be helping the aching and pain. 

I feel weak and tired all...

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