Most Recent Messages in Coping

Worried and scared

Don’t have a PM yet, but looks like I’m headed in that direction, still trying to wrap my head around it, no heart issues other what looks like Sick Sinus Syndrome. Any words of advice, thinking about this is really starting to affect me, symptoms are scaring the hell out of me and are making me feel terrible. I keep thinking about, my kids, 14, 15 and 18. They would be financially set but I’m having these crazy thoughts like if I’ll be around to walk my daughters...

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Pace maker

Hey everyone, i need to remove my pm , i want to give it back to the doctors, i cant afgord the device reads and Doctor Vists,  i have no insurance and i know it runs 73 percent of my heart, but i dont want to owe something i cant afford. Its like a car that you cant aford. I told them before they did this to me that if it took money to survive i could not do it. But no one listens to the patient. I have tried to find out how to get it out. My question is can i just cut the wires off it...

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Help

Can anyone tell me if its normal to still be getting some fluttering and sick feeling a month after my pm implant any advice would be great iv been told that many diff things i dont no weather im coming or going 

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Local support groups?

Wondering if anyone knows of any local support groups for pacemaker patients with complications in the Lakeland/Orlando/Tampa area of FL?  Therapy isn't cutting it and would rather work with people/therapists who can relate to what I'm going through.

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Not seeing the light at the end of the tunnel

Background:
Began experiencing "odd" symptoms EOY 2015, slow, thunderous heartbeats, occasional almost passing out. EKG and blood tests from new primary care dr in Jan 2016.  Was told nothing was wrong other than very low iron, take iron supplements.  Symptoms worsened, primary care kept saying just iron related.  Went to urgent care in Feb 2016 and was told I was in complete heart block and had been even in Jan (primary care missed it on EKG).  Rushed over...

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New pacemaker

I’ve recently had a pacemaker fitted 12 nov had my first check at hospital all is well back in a month this happened really quickly in my case saw cardiologist on 8 nov told I needed a pacemaker had it done 12 haven’t had time to think ask questions research I’m a week in with no idea what has just happened to me  I live in South Yorkshire  uk I’m 48 and I don’t know how I feel it feels like a have a large rock in my chest and I’m c...

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Still dealing with anxiety

Almost four years since my pacemaker has been implanted for a complete AV block. I work in a cardiac specialized hospital (yes I know, very lucky) and my cardiac arrest happened while I was working in a very traumatic way.

After that episod, I dealt with anxiety, panic attacks and hypervigilence. Four years later, I rationaly know that my heart is fine, even better, but I am still dealing with anxiety and fears concerning my health, especially my heart. I’m still af...

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Pregnant with an icd

Im 13 weeks pregnant with my 4th pregnancy but 1st time with an ICD i suffered my 1st cardiac arrest 3yrs ago and 2nd shortly after nothing since though icd has paced a few times no shocks.

How have your pregnancies gone was you and baby ok, did u have to take new meds? 

Thanks for reading 

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Post surgery symptoms

It’s been 6 weeks since my PM implant due to bradycardia. I’m 59 yrs old and very active before surgery.  I actually feel worse than begs the discovery that I needed a PM.  Every single day I experience Ringing in both ears, light heart burn (NEVER had that before), light chest pressure and a general feeling of feeling lightheaded.  Pacemaker technician has made couple of adjustments but symptoms still happening.  Very frustrating!  Have Any of you ex...

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10 year pacing anniversary

Wow!  The site has really changed since tha last time I logged in.  Ten years ago today I was rushed to hospital blue lights flashing with 3rd degree heart block.  I was terrified!  I was fitted with a pacemaker and joined this club shortly afterwards.  I can never thank you all enough for all the support, encouragement and information you gave me.  In time I stopped being anxious about pacing and am now a fit, healthy, retired - well semi retired lol, mum, nan a...

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Difficulty Sleeping - Adjustments

I had my first pacemaker implanted 09/25/18. Suffered from Bachycardia way too long, Im 58 years old, and have my vitals recorded twice daily for the last year now. My doctors greatly appreciate is, as I show them each appointment. I was lucky if my pulse hit 55 before surgery, usually 40s. I was having dizzy spells, especially when it hit the 30s. As it turns out, 48 hr heart monitor showed it dropping down to 23 several times during sleeping hrs. I had the surgery on a tuesday and returned...

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Implanted 5 days ago - words of wisdom please

Please tell me it gets better. I’ve read many of the good posts on coping. I thought this was a simple procedure no big deal you’ll be better in 48 hours ? Trying to get out of my own head. I’ve been through worse ? My house was a total loss in the Ventura Fire in Dec 2017 - at least I still had my health- not . I have hypertrophic cardiomyopathy genetic. I was without symptoms for 50 years. I’m 51. After the fire had AFib was corrected with ablation then my gradient i...

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Sharp pain after 1 week of pacemaker implant

Hello all, It’s my first time here at the Forum.

I just have may implant last 10/19/18 and about to see the Dr today. Does anyone have this sharp/ shock pain around left chest that last for a few second and is this normal?

What are the things I need to find out and ask the Dr?

it makes me feel so anxious that i took Ativan to relieve my anxiety.

any comment/ experience shared is deeply appreciated

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Pacemaker surgery last week

I'm 48m and had a complete av block stemming from a heart attack I had 2 months ago. I'm one week out from the implant. I've never been part of an online support group and thought I should give it a try.

I'm having a hard time coming to grips with the heart attack and now with the pacer. I have been fairly active but now can't seem to get out of bed and am constantly checking my HR to be sure the pacer is working.

 

 

 

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Rate Drop Response

Hi Everyone;

I'm three'ish' months post op now and there is improvement in day to day life but I'm still having what i call mini pass outs. I was warned that if it was a 'true' vasovagal syncope issue that the pacemaker may not rectify everything so I get that. There is a feature on the pacemaker that is called a 'rate drop response' feature and was wondering if any of you had experience in that area and if so, did it help you. I'm headed to the big c...

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AFib

this week i got diagnosed with Afib. I went in for cardio version and they used my icd to convert it back. That happened on Tuesday. I have been waiting for my energy to return. It still hasn’t. Anyone else ever had it done? and how long did it take

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CHF

I have been pacemaker dependent for over 40 years and this year it was discovered I was in CHF and a CRT-P was implanted on July 30th.  Since the implant, thankfully I am no worse and can actually breath better at resting, but my heart is still struggling and having what I call- throwing temper tantrums mainly at night.

I have a problem with the very least amount of caffeine whether iced/hot tea, coffee, or chocolate consumed.  Do you all experience the same? A cup or glass wo...

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Numbness and pain

Hi everyone. having a lot of pain and numbness in my left arm on the side of the pacemaker implant. My arm stays cold most of the time. my chest has been sore, wondering has anyone ever had a problem with their arm being weak numb feeling cold. 

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New Implanted Loop Recorder rather than PM

Hello groovey PM friends.   I was diagnosed with 2nd Degree AV block Morbitz I in AUG this year.  Was initially advised that I would need a PM because I was symptomatic. ( recent syncope which left a nasty bruise and cut on my face.) I got a second opinion and have ended up with an Implanted Loop Recorder yesterday.  

It was impanted in the center of my chest between my clevage.  Feels very strange.  Bruised and sore to touch.  I cant sleep on my side as th...

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Should we have another baby post pacemaker surgery?

First of all thank you to everyone who responded to my last post. I wish the site allowed us to like, as well as respond to replies. Again I'm a 39 year old with third degree AV block, my pacemaker surgery was on 9/17/2018. 

My wife and I have been trying to have another baby for close to 3 years now. During our last check up our doctor told us our best option would be IVF which would be very expensive and still not guaranteed. Due to the cost alone we have been hesitant t...

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