Most Recent Messages in Coping

Pacemaker

Hello Everyone, 

This post is actually very hard for me but here we go. I am a 41 year old female and in August 2022, I had cardiac arrest which required CPR and an AED machine to revive me. After a week in the hospital I had no diagnosis.  Everyone was cracking their heads. I was told that I had gone through stress enduced trama that cause me to pass out which caused me to go into cardiac arrest.  I have absolutely no health issues what so ever.  I just so...

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Long Term Effects?

Hello All, I hope you are well,

 

It has been a long while since i've been on here, firstly i wanted to wish everyone thanks for their support over my last post, the messages both private and public where lovely. Sadly In april my mum lost her battle at age 38, and passed away, cancer is a horrible horrible disease. 

I mainly wanted to come on here to ask about complications of long term pacing. I have been doing really well lately, physically and mentally, but...

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Recent insertion of pacemaker

I have Mobitz 2 and had a pacemaker fitted in November 2022. So far I haven't felt any better at all, still breathless and dizzy, especially in the morning, does anyone know how long it will take for me to start feeling well? I am 84 and have always been a very fit bloke but this has really floored me.

Would appreciate any comments or advice.

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Advice, please

Recently, I have experienced some episodes of light headedness.  I suspect it may be because of low(ish) blood pessure.  My readings run about 94/65 with a pulse at 64.  I do take medications (Entresto, for one) that do affect my blood pressure.

I had my CRT-D recently (on the 12th) scanned and it is working fine.

I  suspect that the problem may be related to the fact that I do not drink enough water.  I am a bit like a camel in that department. ...

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Palpitations when flying?

Hey PMC!

Hope this post finds all of you blessed and feeling well. I wanted to find out from others if they’ve experience palpitations when flying. Ever since the PM I’ve noticed I get really bad palpitations once in the air. I’ve taken something to relax me (Ativan) but they still persist. Once I land I start to feel better. Anyone else experience this or found a way to stop/reduce them? Thanks for any input and thanks for reading my post. Take care everyone! 

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Heart pain

I've had my pacemaker for 10 weeks now. And I constantly feel a slight pain in my heart. Is this normal?

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New pacemaker member

Hello all. I'm trying to cope with having a pacemaker installed this week due to a 3rd degree block. I've now developed a decent case of anxiety. I'm 59 and thought I was healthy in the cardio world. I was also diagnosed with early stage prostate cancer and wondering if this newly installed PM will delay my treatment plans?. Does anyone have similar experience? This whole this is scary 

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iCPET Update

Hello everyone!

Yesterday morning I completed the iCPET at UCLA. It was quite the production and I hope to never repeat it again. The catheter in my neck was so uncomfortable. Anyhow I don't have an answer just yet. I was told they need to review all data and blood work. The doctor did tell me I do not have exercise induced PH, but when I asked him about EI HFpEF he simply said "it's close" but he has to review everything first. He did tell me that he is going to...

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Update medicines

So I started taking cartia 30mg 3 times per day and been taking metropolol 25 half tablet 2 times per day . This is what i notice my heart feels more relax more slow is that good? I check my blood pressure before n sometimes be around 135/85 now is 118/80 just examples . The only complaint is this I feel weird in my head a little bit comes n goes like a lightheaded weird. Will I get used to it ..also can I drink a few beers ? Would it be better not to drink my medicine that day ? Or it don...

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wearing a shoulder brace on pacemaker side - pain in left arm and shoulder

I had open heart surgery and a pacemaker placed in March 2022l  Before the surgery I had to sleep sitting up in order to breathe correctly.  I think I may have pulled a muscle or the shoulder cuff (?} I can't lift my arm ovner my head and My arm pops  alot. I  recently saw  The Compression Shoulder Brace™ advertised.    [Compression Shoulder Brace – Healthy Lab Co] It looks reasonable to me. What I need to know is it okay if I...

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Good grief!

Hey PM Club!

Just a quick update on two items. First I have my Invasive Cardiopulmonary Exercise Test (iCPET) at UCLA on 12/22 at 8am. I can't wait to get this done and see what's happening to me. 

Test Link: 

https://www.uclahealth.org/medical-services/pulmonary/pvd/conditions-treatments/invasive-cardiopulmonary-exercise-testing-icpet

Next update is nothing short of shocking to me. So I thought to do some stretching and some easy exercises at ho...

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Blood thinners

Hi  long term arrhythmia, bradycardia controlled by single lead pacemaker for 8 years, cardiologist recommends anticoagulant but I depend on a good diet and exercise, anyone else who takes this approach I would be interested what you think thanks,

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Cruising

I want to take a Cruise with my husband. I was wondering how did you feel while on it. Did you feel dizzy or did your Pacemaker function properly? I am really worried. I took Cruisi's all the time before Pacemaker was installed, this will be my first experience with it.

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New Pacemaker

Hello everyone.  I am new to both this site and having a pacemaker implanted back on October 5, 2022. Let me first introduce myself.  I am from Kentucky, retired military and retired from the Federal Prison system.  I am new to the pacemaker world and to be honest with you I am scared to death.  I know many of you are saying that heck I have been involved in several wars and this pacemaker scares you.  Well the answer to that statement hell yes I am.  War is abou...

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Latest Update (Long Post SORRY!)

Hello everyone! It’s been a while since I’ve been on here so I wanted to provide a rather lengthy update regarding my current health status. These last three years since my heart issues were discovered have been disheartening to say the least. I’ve gone through so many tests, scans, hospital visits and still have no answers. I am getting close, but I am still in the testing phase with my new doctors. I started with the VA, then used my private insurance (Optum) and now...

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Biotronik identification card

Hi I'm a newbie, 41 having (very suddenly and shocked) had a pacemaker fitted 12 days ago.  I left hospital with my "identification card" which was a piece of half a4 paper, looked like recycled paper which is no way going to last 10 years!

I contacted Biotronik to see if they issue cards he said no unfortunately not. 
I feel I need to have a card for longevity can anyone advise of where is best to get one and what details I need on it exactly? Xx<...

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Emotion Gene is Missing

I have an Abbott dual chamber heart pacer implanted that beats my heart 100% of the time due to my 3rd-degree heart block.  My pacer beats my heart exactly at 60 bpm 24/7 except when I exercise it will automatically sense and speed the rhythm up.

Now that I am paced my heart does not react to adrenalin rushes like a normal heart in flight mode.  Today I was in a situation that would scare anyone and cause a sudden rush of adrenalin but since I am bionic I don’t get the a...

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Pain around pacemaker pocket

I am on my third pacemaker in 19 years. I have third degree heart block and feel wonderful.  Except for this last pacemaker. I received it May 19 and had lots of pain post placement.  My two previous pacemakers were no problem, almost no pain. This one has hurt since placement. Wakes me up at night pain.  And it itches constantly.  I contacted my EP and was told that they had to go through a lot of scar tissue so it will be uncomfortable longer. Don't worry.  But...

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Frequent premature ventricular contractions

Hi,

I have a dual chamber pacemaker insitu for 2:1 AV block. Recently I've been having palpitations and monitoring shows sinus rhythm with frequent premature ventricular contractions. Does anyone else have experience of this?

I'm already taking Bisoprolol 5mg and Lisinopril 2.5mg daily. 

Many thanks 😊 

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Placement of the pacemaker

My pacemaker was fitted 2 weeks ago... it was a complete shock. I knew something wasn't quite right, but wasn't sure what it was. I had chemo 2 years ago and it seems this has affected my heart. I'm a bit concerned about the location of the actual pm... it seems to be very close to my shoulder and I it seems to obstruct the movement of my left arm across my body... anyone else had this experience?.. thank you 😊 

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