Most Recent Messages in General Posting

Kardia Mobile/Apple watch

I have occassional a fib as indicated on my annual pacemaker check.  One cardiologist suggested using a device like Kardia Mobile to check in order to avoid constant use of blood thinners.  Now I am hearing that these devices are not recommended for people with pacemakers.

I sometimes get good readings from my Kardia mobile and sometimes do not.  Does anyone use these devices to check for a fib?  Is there interference between the device and my pacemaker?  Are th...

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Going to a theme park for the first time since getting pacemaker

I'm going to universal studios Florida for the first time since getting my pacemaker. I contacted Boston scientific and they told me I can't ride roller coasters or anything that go against gravity. I'm good physically to ride anything I just was curious if there's any other types of rides that would affect my device such a motion simulators. Thanks!

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None of you drain my battery

Just to be clear from my last post, absolutely none of you drain my battery. I simply meant situations where I am out and about. In person situations. You see, I worked about 10 years in this area, 5 years as a cashier in a local grocery store, and the other 5 years as a reporter and photographer for our small town weekly newspaper. In a community with about 1200 people, I got to know pretty much everyone...and they know me. So every time I go to the store, people stop me and talk to me, whic...

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asking for help

Since i did not want to hijack another's query.  Thought i would put my comment of this separtely.  To me asking for help is a sign of strength.   We all know how hard that is to do. I have found in recent years when asking make sure you are clear about what it is or where the  help is needed.

This past Nov. - March i had to hire a lawn service to pick up the fallen leaves.  Was unable to do becuase of torn tendon, arthritis in base of thumb and finger...

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My thoughts on therapy...

I know many of you have encouraged me to get some therapy for my healing process, of which I have taken under advisement. However, I wish to clarify some reasons as to why I'm really not keen on the idea of seeing a shrink. You'd have to really know me to fully understand my reasoning, but I'll try and explain myself so you can at least follow along.

First: I'm extremely introverted. Yes, I worked for most of my life, usually in some form of customer service, which only...

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CRT-goodDog

😊 

Hi Dave, hope your good experience continues ❤️ and good luck 🤞🏻 

Best wishes for your next venture 🥰 

Michelle 

 

 

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Ear buds

Is it generally safe to use wireless earbuds.?

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My upgrade from a dual chamber to a CRT

Finally have my upgrade to a CRT with a new lead (3-lead) on this Tuesday at the Cleveland Clinic Main Campus in Cleveland! Had my pre-op testing yesterday with all my results posted to my Chart within a couple hours. The people there for the testing are wonderful; especially the Pacer Tech. Probably the most knowledgeable and nicest that I've ever had. The way that I judge that is; I felt better (mentally) leaving her office than before I walked-in.

BTW: I am hoping...

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Patient App

Has anyone figured out how to get the Patient App to work?  I just get a message saying there's a problem with the connection.  I tried everything.  I would appreciate any help you can give me.  I have an iphone SE.

 

Thank you!

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And the Count Down Begins

  Finally have a date for my CRT-P placement:May 1.  Yep, only 8 weeks away.  *sigh*  That's soonest available (short of an emergency which to date I'm not).  But I will be very busy during these next 8 weeks still exploring other options. 

I need to get a second opinion from a different system with regards to pocket placement options actual device.  My EP is knowledgeable but really, really, really does not want to do anything other than...

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Tricuspid Valve repair/replacement

Does anyone have any suggeastions or experience in getting their tricuspid valve repaired or replaced?. What questions should be asked of the potential surgeons. I am seeing three different surgeon for opinions over the next two weeks and want to be informed as possible.

Tony

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You Can Prevent a Stroke Book by Joshua S. Yamamoto and Kristin E. Thomas

I couldn't find any references to this book on the site (I tried searching by author and by title). It's not about strokes, it's about the heart and the cardiovascular system; lead author is a cardiologist. It's short, very simple, easy reading and probably doesn't contain anything that people on this site don't know. I'd still recommend it because of the focus on the systemic plumbing rather than particular systems. I suspect it's mostly aimed at people who ar...

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Indigestion??

Many times I have had an uncomfortable episode, often after eating. My heartbeat is slightly irregular, my throat and upper chest are tight and heavy and I feel light headed. Afterwards I burp quite a lot and I have never been a burper.  I spoke to my Doctor about this and she prescribed 20mg Omeprazole once a day which helped as I was getting episodes much more often during the day. I think the pills have helped.

However, I am scared. I have to go to the hospital for my yearly&nbs...

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Gemita

Hello 👋🏻 Gemita

just read  FAQ you took time to write ✍🏼 ....wow,  I not only love it ❤️   But also like that all basic concerning information we all have is in one place !!

 Thank you 🙏🏻 

I will reread it ALL again ❤️ ....few times 🥰 

all the best

Michelle

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Can a Pacemaker Malfunction?

Hi everyone, I have done some work(!)

I have prepared a long document on Can a Pacemaker Malfunction, which I have placed in our FAQs if you go to Learn, then FAQs, then press the down or up arrow at Club Information, then scroll down to The Pacemaker/Defibrillator, then press Choose Category, where you will find the document in three parts.  I have provided a List of Contents for Pa...

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pace trigger

Had pacemaker put in in April of 2023 so I am a newbie so to speak.

I have an unusual expierience that I have mentioned to my Cardiologist as well as my PM technician with no real clear answer. I am scheduled to have a yearly pacemaker check on the device so maybe this situation will be resolved   At exactly the same time every night my pacemaker causes my heart rate to increase not drasticly, but it goes from 62 beats to about 78 for about a minute or less duration, It s...

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Advice and Wisdom for Newbie - CRT-P 101

Now for CRT-P 101 boot camp basics .....  

What advice would you share to help help the hospital / returning home process go smoothly?

1) What should I make sure I have available immediately after placement?  Seatbelt pad? Bra strap pad?  Front button down shirts?  Front closure bras?  I live about 40 miles from the "big city" where the docs and hospital and retails stores are located, so it will not easily convenient to run back and forth f...

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New Pacemaker

Just had a St Jude/Abbott Labs PM-2272 installed 3 weeks ago.

Since installation, I have been getting intermittent shock feelings in the area when the PM was installed.

They feel like a TENS pad type of shock.

Have Dr appt Feb 27

Any comments?

Thanks

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why do i continue to check this site

  Want to see if someone asks a question that i might know the answer.  I am not technical and do not take any prescribed medications, only practical knowledge.

new to pace

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Pacemaker self-test and voltage

Hello everyone! 

I have a question about the self-test voltage vs. manually programmed voltage. 

I have an Astra Sure Scan Medtronic pacemaker (Model X2DR01) to manage my LongQT (Type 2). I'm paced at 80 bpm all the time. I've had this particular pacemaker for 5 years (but have had a pacemaker for nearly 25 years). For the first 4 years of this pacemaker I couldn't feel the self-test and only in the past year started feeling it. This seems weird to...

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You know you're wired when...

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Member Quotes

This is my second Christmas with my pacemaker and I am so happy to be with my family.