Most Recent Messages in General Posting

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Soon to have ICD

Hello everyone,

I am a career- paid firefighter. I have a genetic gene (long story) but did a blood test and confirms I have a gene that causes hypertrophic cardiomyopathy of the left ventrical. I am 39 and will be getting an ICD placed asap due to 20-25% scarring in my left ventricle. 
 

I am worried that my administration and city admin will not let me return to work. On that note, I cannot find any law that says I have to tell them and or them not allowing me bac...

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Medtronic home monitor

Looks as though another problem has developed with Medtronic MyCareLink home monitor.

This is type with hand held chest reader.

Display lit up, been on for too long now.

All three LEDs on the reader flashing. No idea what's wrong.

This is the second unit gone on the blink.

If it doesn't stop flashing, I'll pull the plug on it to see if it fixes it.

That's two problems in the space of three years. Not impressed.

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Advice for upcoming surgery

My daughter is 15 and will be having surgery in a couple days to implant a pace maker.  This is all very sudden for all of us and Im trying to learn as much as possible in a short time. 

She was diagnosed with third degree heart block last year after having Covid.  She has always had a normal heart rate in the past and now has complete heart block and her resting heart rate stays in the low 60’s.   At that time she was not experiencing any heart related sy...

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Not good, but not bad echo results

Hey ladies and gents... for anyone that was curious about my echo results from yesterday; it turns out that I'm still a 16. Not surprising considering my hurdles over the last 5 months. I thought I'd be really upset about it, but actually was grateful that it didn't go down. I'm sustaining...holding my own. That is good. 

The next step will be to up my Carvedilol to 12.5mg twice daily, as I'm on a pretty low dose right now. I'm not willing to experiment with...

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Medtronics

Just wondering if my Medtronics monitor needs to have anything done like being reset after it was done unplugged by accident?

Their website has very little information and they take weeks to respond to text messages...

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Organization for women with heart issues

Hi All, 

Want to share this organization for those ladies with heart issues and men who want to learn more about it for the women in their lifes.

 

https://www.womenheart.org/

 

 

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GENERAL CHECK UP

Hi all, hope everyone had a nice holiday. I recently saw my EP for a general check up and he changed the settings on my pacemaker from 55 to 60 which he then told me was normal. My last EP who since retired had my pacemaker set on 55 to save life on the battery. I dont know if its me or the higher setting but I feel im not sleeping the whole night and feel my heart more so since he raised the BPM. I was wondering if I should say anything or give it some time> my check up was 2 weeks ago.

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notifications

Today i recieved an email saying someone had posted a comment to my query of "vaccine".  Knew that was an old one looked it was from Oct.  Did PM that person  and suggested  that they post in the forum their question.  So that aothers would see and give answers.  As we do not generally look at ours or other old posts.  Nor at this point our  we notified about someone posting to an old query except the poster.

new to pace

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Stupid Magnets

Hello! I'm new. I tried Joining 526236 times before and it never let me verify. But then I was like "what if my long name is the problem!?" And I was right!

So to celebrate I just wanted to say hi and introduce myself. I am a 35 yo dude who has a problem with passing out due to Vasovagal Syncope which is caused by a cocktail of conditions under the Disautonomia Family. I got my pacemaker installed the day before Thanksgiving, and I can almost sleep ony left side again. I a...

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General Anesthetic

Hi I'm new to the site 

I had a pacemaker and ablation surgery 18 month ago and now I have got to have surgery on my shoulder.  I'm worried about having it done the first private hospital said it could not do it but I have found one that says it can. Can any one tell me if they have had surgery after having pacemaker and ablation surgery and what the risks are.

 

 

 

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An Exciting New Chapter for the Pacemaker Club!

Today, we are reaching out with an announcement that marks the beginning of an exciting new chapter for the Pacemaker Club. First and foremost, we want to express our gratitude for your continued engagement, contributions, and support for this forum that has helped so many. The Pacemaker Club has been a vital community for individuals with pacemakers for over two decades, and we are honored to be entrusted with its future.

Since the announcement last week that ForHearts Worldwide has ac...

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Daughter needs a pacemaker

Hello, my name is Lucas. My wife and I recently welcomed our daughter who was born prematurely at 35 weeks. She was diagnosed with complete heart block at 21 weeks in utero, and since her birth, her heart rate has not increased as we had hoped. She was given a temporary pacemaker and is currently supported by high flow nasal oxygen for breathing, having progressed from an initial breathing tube and CPAP.

Our medical team is planning for her to receive a permanent pacemaker. They have su...

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Battery Life

I live in a third world country by choice. I am from South Florida. In 2017 I had my St.Jude pacemaker/defibrillator implanted and 90 days later I moved to Philippines.I found a Cardiologist at Makati Medial Ctr,Manilla who read  & printed out my reports every 6 months for 6 years now.  (cost @ $36.00)  My Rythem specialist in Florida told me to track the battery life and when it got to 6 Mo. remaining to plan on returning for a battery devise upgrade. About 2 years&nb...

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Tough question...

I was wondering if there is anyone in this club that has come back from an ejection fraction of 16 or less? Someone with a similar diagnosis of CHF with cardiomyopathy and LBBB. Mine is hereditary and I have no other health problems like diabetes or kidney failure, etc. I'm pretty healthy other than my heart failure. 

If you have gotten stronger and improved your EF, how did that happen? Thanks in advance! 

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Learn Tab

Just noticed that the Learn tab on the bar above has been updated.  Don't know when this happened and I may not be terribly observant, but the FAQ section is now pretty good! Check it out before you answer a post on a subject that comes up a lot and save yourself the effort of giving out all the usual information.

May I contribute a bit of feedback on the 'web links' contained within the 'Learn' Tab? 

The pacemaker manufacturers don't in...

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email notification

this morning Dec 18,2023 i received finally an email saying a comment had been posted to my message.

Someone was either paying attention to our comments or they were on vacation over the weekend.

new to pace

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Email??

Thank you all for quick confirmation about email.

So,my email appear in Spam and now that I want to give my consent it does not allow me to click HERE to confirm my intention to stay? I try my iPhone and my iPad both are saying "insecure" and that is the end!??

Any suggestions how to proceed? I know I got one month before being unsubscribed,but I'm not procrastinator ❤️ 

many thanks 🙏🏻 

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Strange email

Hello 👋🏻 all

Has anyone received an email...very long one. ...informing us that Pacemaker Club has been taken over by ForHearts Worldwide? It's written very well and for that reason I will have open mind !!!!??/

Back in my last post I mention my newly discovered issue.....mild  dilated ascending Aorta 🫀{39mm}   I just have my normal checkup and discussed this concern 🙁 in length with my cardiologist. So...all is well with my Pacemaker....replacing time left at l...

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We are meticulous machines...

This is of course just my opinion, but I want to share it in case it resonates with someone else. 

First of all, I believe in a higher power, a creator, a being that is bigger than us. Religion and politics aside, I don't think we "just happened." With that in mind, I also believe that nothing happens without a reason. Our bodies are a finely tuned machine, given the right input of nutrients, sleep, emotional support, fluids... etc. Every single blood vessel, org...

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Hawthorn berry

ANOTHER UPDATE:  DR. cleared me for using Hawthorn Berry extract.  Am feeling just fine.  Am so grateful to each of you.

Anyone ever tried Hawthorn Berry for the heart?  Am starting to hear about it but wondered if it actually works or is a new "health rumor"   Several practitioners support its use.  

Hawthorn Berry is supposed to help heal and regulate the heart, etc.   Not taking it yet, but might try it. 

Anyone attempt it...

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You know you're wired when...

You have an excuse for being a couch potato.

Member Quotes

Sometimes a device must be tuned a few times before it is right. My cardiologist said it is like fine tuning a car.