Most Recent Messages

Dreams

Thanks for sharing your dreams (nightmares) with me. Once again it is good to know I am not alone and not going 'nuts'! Going to have a go at the affirmation before I go to sleep - thanks for that.

Re medication, I am not on a heart meds and my blood pressure meds haven't be altered since my PM and I've been on them for years - amlodopine, lisinopril, indapamide plus an aspirin. My BP is well controlled at the moment. So I do think it is anxiety related and this is also affecting...

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Thank you all

Hi everybody,
I just wanted to thank you all so much for your support. It is so great to know that I can go on this site anytime and know that I am in good hands.
I love reading everyones posts and seeing all the helpful responses that are given. I know sometimes we may not always see eye to eye on things, however this truly is one big family...and I am so proud to be part of it. This family grows daily and you all take time out of your days to help someone out.
I love this n...

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HELP Still in the Hospital

I have got a lot of e-mails asking if I am ok, I am doing. I am still externaly paced and that causes every beat to come with pain. Currently both of my leads are not working and getting a DR to fix me was difficult. I was transfered to a different hospital yesterday and am still waiting to be fixed. I have a post that I need some help with.

I have talked with many of you in the chat room would like to ask for your help again. I am a deaf young woman who knows very few people in the...

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how it feels

i am suppose to have a defibiulator surgery on april 11,2008 can anyone tell me what to expect or if i have anything to worry about.

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Feeling like a big CHICKEN...Help!

August of 2007, I was diagnosed with Congestive Heart Failure(EF-25%) this was after about 4 month with the doctors thinking and treating me as if I had asthma. Wow do I wish this could be treated with just an inhaler...lol. In December 2007, I received a Bi-ventricular Pacemaker/Defibrillator. I am 36 years old and was looking for some support and ran across this website. It has not been the best 3 months with the implant; I have had to go back for surgery 2 more times because my leads con...

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Weight training post PM

There are some observed contradictions from my doc and his pacemaker staff about weight training post PM. My doc has always said that I could do 'pretty much anything I wanted to after 2 months. I am now at 12 weeks. The pacemaker nurses tell me not to do anything overhead like presses or pull downs. When I asked the doc he said it was OK but don't do anything real 'heavy'. He also told me that he had placed the PM taking into consideration my 'active' routine. He said the leads are under the co...

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PACEMAKER HACKERS.

Hello all.

I was looking for some information in response to pacemakers and wireless laptops, when I came across this article.
I debated as to whether I should post it, as in the past, some articles have caused some to panic.
I decided that in this day and age, you can't be too careful, and knowledge is power.
So, please just read it carefully, as well as the comments made by people who have already read what you are about to read.
May be you already know about it...

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More about herat block

Does this mean that if you are pacing at 100% in your top chamber that there is no electrical pulse between the upper and lower chambers does that constitute a thied degree heart block?

I am pacing at 75% in top atrium due to dual lead out pacing afib which is intermitent but now controlled at under 1% by beta blockers
Does this mean I will go on to 100% top atrium pacing dependancy and if so will that lead to a heart block and then require a defibrillator?

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one year update

Hello friends,
It's been a little over one year since my pm went in. All is well!!!
I'm 48 and have SSS. I passed out on St. Patricks day. After a trip to the ER they put in a pm because my bpm were in the low 30s. Since that time i have done 2 half marathons and a few shorter races. I'd like to share what I have learned over the past year. I'm fine physically,but it's taken me about a year to believe this. I think it is really critical to understand what is going on and to belie...

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what is a complete heart block?

Is it when your arteries have a build up of fat or plaque?

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any advice on wireless connections

Maisie has had her Pacemaker since she was 2, her school are in the process of having wireless laptops in each class have heard so many things about this but woundered if any one had any advice

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Attention Ted

I have sent mail to your sbcglobal mail box. I hope it is still good.

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Thank you all

Thanks to all of you who posted to my WiFi question. (jessie, it was good to see your post! Thanks!) It's good to know there are no known issues with it. I think it was just me and my Easter dinner hangover. :-) I have been on a diet for ten weeks and totally destroyed it that day. LOL

I love the WIFI and the laptop! tee hee...I am such a geek!!!!

Happy pacing everyone!

Theresa

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Coughing Up Blood

Well, I came home from my EP Study on Tuesday night after my doctor was unable to recreate my SVT. She found that my potassium levels were very low, so she increased my dosage of supplemets, and sent me on my way.
I was feeling great on Wednesday, other than being slightly sore and groggy from the sedation, until about bedtime. I got this really heavy feeling on my chest, and I started wheezing. A few moments later, I coughed up a little bit of blood. This continued throughout the night, a...

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Wow you guys are the greatest

So 2 nights ago I came on line and found this website through desperation. I cried out with a loud voice for someone to help me and wow I got just what I needed. A group of new friends/ICD -PM family that shared that things are never normal, just a new normal helped me beyond measure. Ela-girl, Swede and Plumber-man were just fabulous in all of their dealings, even Nuka showed up and relented when she saw the team at work. 84 days after my ICD and I've found security in knowing that I have...

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Trlam21... sent you a message

Good day Trlam21,

I sent you a message... hoping it got through. When I click on your screen name I get a weird message that says "invalid user" but it appears to have sent... Just wanted to make sure you got it!

How are you doing today. I hope they are able to find out why things aren't working for you, and get you patched up and outta there! Please let us know!

Thinking of you, and sending lots of good thoughts your way!

Swedeheart

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Sitting here waiting for my EP study/Ablation

I'm just sitting here in the hospital waiting to get ready for my 2nd EP study and ablation for Vtachs. This is a nice hospital, private rooms, couch, recliner, nice.

I've been off my sotalol since sunday night and I feel great, actually. I forgot how bad that stuff makes me feel. Everyone I have talked to since I got off the meds for the procedure comment that I'm a different person.

I'm pretty sure this is going to work, but if not, I'm not going to take sotalol again. If...

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Hope it is all sorted soon

This message is for Triam 21 who is in hospital and a new member to our pm site. I am sure we all wish you a speedy recovery. Stay in hospital until they have sorted everything. Be kind to yourself and try not to worry. We are all thinking of you with lost of love.

Billie

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Correction

Triam 21

I mean lots of love. My fingers get away from me I type so fast. Billie

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Lead to the atrium come adrift

Hi folks. Thanks for reading this. My name is Matt - I'm a professor in engineering at Stanford University. My dad is 78 years old and lives in South Africa. One month ago, he received a pacemaker called Zephyr, Model 5820 IS1, made by St Jude. He's been experiencing ongoing irregularities in his heart beat and it now seems that one lead to the atrium has come adrift. Apparently, this was more likely since he had bypass surgery ten years ago so his atrium is smaller than usual and has scar tissu...

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You know you're wired when...

Intel inside is your motto.

Member Quotes

My pacemaker is intact and working great.