Most Recent Messages in General Posting

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~~~~~Photo Album~~~~~~

Hi Guys,
Just thought we all need a bit of a reminder about the Photo Album we are trying to raise $500.00 for.. it has now been running for about six weeks and although we have managed $300.00 in donations.... it is not a lot when you consider how many members we have...I honestly thought we would reach the target in a week and still have some to go to Blakes charity.

It would be great to get this off the ground and for those who want to show their faces this will be your chance...

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Best pacemakers.....?

Hi to all:)
I will have my pacemaker replaced soon. Since I had an AV-node ablation I have a dual pacemaker..and I am totally dependent. I do not know almost anything about pacemakers.
Which once are good or not so good. I need to get to get something very dependable...since my life depends on it:(.
Any suggestions would be very appreciated.

Anyone else here with an AV-node ablated?...I did meet one person from UK.

Thanks
Krys
PS: I did post my fi...

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Medtronic class action

Does anyone have information regarding the current status of the class action law suit against Medtronic?
What I heard was that a settlement was reached just a short while ago.
Anyone here involved?

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Any updates on Valerie?

Has anybody heard how Valerie is doing? I tried calling her the other day but got her voice mail. Hopefully one of you have heard how she is doing and can give us all a update.

On another note. Sorry I haven't been able to keep up more often. Still am not up to par. Met with my surgeon this week who told me he has no idea what the next step is and he was glad that I made that Mayo apt. Oct is coming and i'm ready for it to be here. So thanks for all the continued prayers..

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Help

Hello (hope you guys can understand my english). My husband passed out some days ago,so i called 911,after 18 hours of monitoring ,the cardiology said that his pulse was so low,so he needed one PM,We were so in SHOCK,my husband is just 37 years old and He's in a good shape.after 4 hours he got the device(PM).He 's having trouble @ work,however his DR said that he may return to work NO RESTRICTIONS.He's (helicopter)Flight mechanic,so! sometimes he should be flying as a part of the crew,He love...

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Abbreviations

Just a suggestion!

Could someone give us newbies a "cheat list" of abbreviations?
EG: PM = pacemaker
BP = blood pressure
ICD = ?
VT = ?
ICD = ?
ARVC = ?
PVC = ?
PVB = ?
etc etc etc

Would be soooooo appreciated to have a general list. Maybe even listed under FORUMS?

Thanks!

Pat

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What are "P" waves?

I just had my second pacemaker check since getting it. During the testing, everyone came into the room to look at and check out my readings. They told me that my "P" waves were really long (like this was very unusual). I didn't know what to make of this information. Does anyone know just WHAT a "P" wave is, and is it something that I should be concerned about?

Barb (thanks)

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ER visit for PM

I almost passed out Friday night just all of sudden. I was a passenger in a car. Pacer was not keeping heart rate at 60 setting when I checked it. After going on for an hour called Dr. to do a reading over the phone and they could not do during hours the device clinic was not open. Could not believe this.We live 1 1/2 hours from my clinic. They said to go to the ER where we live. They don't have the device to check my pacer. But decided we would go to our local hospital. The physican in the ER c...

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anesthesia and other complications during pm replacement

Has anyone experienced complications with their anesthesia during a pm replacement? I did not respond to the Fentanyl/Versed treatment during mine and I'm wondering if anyone has heard of or dealt with that. I felt and remember so much of the procedure. Including the doc and team "tucking their tails between their legs" and leaving the room after rushing through the procedure and sewing me up. I am sure they just turn and leave when a patient is asleep, but when they are awake and staring at you...

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Travelling with Pacer

Hi I am living in Australia and I have been paced for 42 years.
My husband and I are finally taking the honeymoon we never
had and we booked a cruise to the South Pacific.
The cruise will last 11 nights.
I am having trouble getting travel insurance as they feel a pacemaker is a high risk. I had to fill out all these papers and get my cardio to fill them in also. Still don't know how I will go.
Has anyone had this trouble especiallty travelling from
Australia. Den...

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Reg. frequency of PM checks

I read that people get their PM checked with different frequencies. I am 100% paced and have 2 phone checks a year plus one office visit. I have a PPO insurance with a major insurance company, they won't pay for that many services. I live in California. Any one else have this problem?

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Am I always going to "FEEL" it?

Ok, I'm 28 and I got a pacemaker back in March of this year, and I am curious if any of you guys "feel" the pacemaker?? Mine is above my chest on the left side and the muscle that the pacemaker is on always feels weird....does anyone else have these kinds of things going on or am I just silly?

Thanks!!

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I'ma New Kid

MY mom like tottaly turned crazy when she found out about this web site. I think it's really Kool to interact with other special people like me!!!
I am 11 years old and got my first Pacer when i was born. This is my last year in Elementary school.
I have lots of friends who are there to help me through my life.
When you first meet me i just seem like a normal kid with a normal life but people need to know that i am special in a special way. My fave Band is Marianas Trench, they ar...

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Still here---saying hello

Hi everyone,
It's been a while since I was last on, so I wanted to write quickly.

I am not yet getting care for my SVC syndrome, but that may change soon. I am finally expecting to take a trip out of state for care on Sept. 21st. At the medical center I am headed to I am going past the EP and straight to a vascular surgeon to talk about my options. One of the nurses I've spoke to who set me up was surprised that a venogram had not yet been done.

As for my thyroid, due...

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Update on Maureen's husband.

Hello all you good people.

Maureen e-mailed me, and asked that I post an update on her husband's condition.
John had by-pass surgery yesterday, and is still in critical care, because he has a low blood pressure. If he does better tomorrow, they will move him to a room.
They had him sitting up, and dangling his legs, over the side of the bed already.
She says that he looks good, but he is in a lot of pain, and they were giving him Tylenol, which wasn't helping.
They...

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UPDATE ON STESS TEST

WELL I WENT IN AND GOT MY STRESS TEST AND OF COURSE MY HEART RATE WAS DOING GOOD BELIEVE IT AND I SHOULD BE THANK FULL BUT, HE STILL DON'T KNOW WHAT IS WRONG. HE SAID I AM GOING TO JUST WATCH YOU AND SAID THAT HE THINKS THAT MY BP MAY HAVE SOMETHING TO DO WITH IT NOW! GO FIGURE SOMETHING ELSE. SO KNOW I HAVE TO MONITOR THE BP AND PULSE FOR THE NEXT MONTH TILL I GO IN AND GET MY HOLTER. SO HE CAN CHECK . SO I CHECK MY BP AND PULSE JUST A LITTLE WHILE AGO AND IT WAS 106/64 PULSE 47 WHICH IS WHAT...

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New 3-leads pacemaker..?

Hi everyone!
I am new here...and looking for some answers.
My AV-node was ablated about 5 years ago. I have a dual pacemaker and I am totally dependent.
I heard about some kind a new pacemaker with 3-leads. The third one is there as a backup in case of malfunction.
If anyone have any information about that I would appreciate that very much.
Believe me it is not easy to live that way. Knowing that if anything goes wrong with that pacer that will be the end of my live. S...

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Stress Tess

I continue to learn about life with a pacer. I am 5 weeks post op and pretty much all things have returned to normal. The only thing that still bothers me is my left arm. It still has a little pain form the shoulder jount down and there is still a numb spot of about a 3 inch circle on my upper arm on the outside. Hopefully this will go away.

I has a stress test yesterday and learned that I can not have a tread mill test with a pacer as it shows too many false positives. So, I had...

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Trouble

Well i had some trouble on here the other day once I logged in the first time under ladytex73 for some reason it said i was not in the system so i tried to log in several times but no good but i did redo it and i am ladytex only. so ladytex73 and ladytex are the same person.

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pm and ambulances

i have a rather strange question but would be grateful for any thoughts. can being a passenger in an ambulance have any adverse effects on the pacemaker. i have recently been travelling as a passenger in a ambulance on a weekly basis accompanying my husband to hospital for his treatment. the round trip is three hours. when i get home im dizzy,lightheaded and feel as if im going to pass out this can last for 24-36 hoursand am fine again until next trip.
any ideas as to if symptoms could be r...

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You know you're wired when...

Bad hair days can be blamed on your device shorting out.

Member Quotes

I feel so blessed to have this little gem implanted in me. When I think of the alternative it is quite overwhelming sometimes.