Most Recent Messages in Coping

Dual chamber st jude medical with af suppressor dr2550

Alan (41) from edinburgh

New to club Had pacemaker in less than two weeks.

Is there anyone out there with same pacemaker as me ?

is it usual to leave the atral suppressor section of this device swithced off for first month?

How does it feel when it is switched on ?

Does it help with af?

How chronic is af?

and Is the maze operation the only way to completely get rid of it?

I had my first technicians appointme...

Read More...

Alan(41)edinburgh had a-fib last night

I am ten days into having my pacemaker and everything has been going fine appart from yesterday when i checked my pulse with one of those stupid watches and it gave me two readings below thirty so of course i panicked thinking my leads had come un done so i called my surgeon who luckily advised me that my pacemaker clinic was actually that morning.

So i went along and they checked me out and everything was ok they said my a fib was at 1%.( Is that good or not?)

I have a tw...

Read More...

Pacemaker in For One week

Hi Everyone Allan (41) Edinburgh

Well One week has passed and I must admit each day i feel a little stronger.I am able to sleep partially on my right side but not for long.I am no longer sleeping in affternoons and my wound is very tidy but still a little tender but no more pain killers.
I must admit i am glad my pacemaker sight is still sore as it reminds me not to carry anything heavy with my left arm which is incredibly hard to do.

I have a twin chamber pacemaker wi...

Read More...

thanks marty

Thanks for telling me about the "phantom shocks". I had my defib checked. Sure enough, the three shocks I thought I had were just of the phantom variety. Its a load of my mind. Thanks bunches. =)

Read More...

New Pacemaker in for 36 hours

Hi everyone Allan (41) Edinburgh

Well i have my pacemaker now.

The actually procedure took less than an hour and was totally painless.I didnt feel cables go into my heart it only made my heart beat a little faster .

The cut site is very tidy that does ache quite a lot for first 48 hours but pain killers help.
I have been up and about every day but by about 1 pm i am totally knackered but i feel strong in mornings is this normal. i guess it will take a while...

Read More...

panic

Two years ago I passed out at work do to an arythmia. That night a defibrillator was implanted. About a year after that, I started getting panic attacks. They were finally starting to go away when I got my first shock a couple of weeks ago. Now, I've been having dreams about it shocking me again. At least, I hope its a dream. When I wake up suddenly I don't really know if it is a dream or if it really shocked me. I still don't. I had one last night. The panic attacked harder than ever....

Read More...

Lyme Disease?

In July this year I suddenly went into Stage 2 heart block with a 26 pulse rate. The Doctors were stumped and watched me for 2 nights. Since I dropped into total heart block and my heart actualy stopped, the Doctors in there wisdom sent me to surgery for a PM implant. This was quite shocking to me,,I almost died twice! I could not understand what the hell happened to me so suddenly.I thought I was a healthy active 58 yr old male who had 2 months prior passed a yearly exam,,Well I was accepting...

Read More...

" ONLY 2 DAYS TO GO! "


ALLAN (41) EDINBURGH

Well the storys i have read on here over the past two weeks are so mixed i dont know whether to be relived or terrified.

My diagnosis was pretty text book intermitent episodes of afib mostly when i am asleep or during any sort of physical exertion now adays (strange) i never even knew what afib was till two weeks ago must have been suffering with it for years obviously getting worse now as i am exhausted all the time now get out of breath walkin...

Read More...

Thankyou so much!!!

Thanks to all of you who took the time to answer my post and offer all your support! I just knew that talking to others who have gone through this experience and are doing well would help me cope! I look forward to the day when I can help someone get through the initial post-op period and beyond as a veteran. Not trying to be sappy, but just the fact that you guys took the time to reply brought tears to my eyes, so as you can see, still a little emotional here. I'm sure I'll have many more qu...

Read More...

general info

hi ive just had my pm fitted at the age of 24.2/10/07. i just wanted to know is it safe for me drink to drink alcohol so soon after the op.and how long before i can play sports again

Read More...

Does anyone use Byetta?

Good morning. I was just wondering if anyone with diabetes is using the new pen Byetta. I just got the pen 2 weeks ago and am very pleased with my blood sugars. Diabetes and heart disease usually go hand in hand. I have a difibrillator that was one year old in Aug.

I have been told that I might lose some weight with Byetta. Boy, I sure hope so. But the main thing is to get my HbA1c test down to normal. My last test it was 7.1%. My sugar has been running 78, 88, and 91 before...

Read More...

Nervous "Pacer"

I'm a Newbie both to this site and to having a Pacemaker. In fact I just had it implanted On Monday, 3 days ago. I could sure use a little reassurance that all will be well from all you veterans. I am 54 yo, suffered from tachycardia for yrs and then Whammo, developed an intermittent block that made life miserable, I guess it was a Tachy-Brady Syndrome type thing. At the moment I'm bruised and sore, and worry often that I might have one of those "complications" I've been reading about, you kno...

Read More...

Ethical question

I am executor for an 89 year old female who has a 6 year old pacemaker shortly due to be replaced.

Yesterday she commented that she thought she would not have it replaced and what did I think. Of course, I told her I wasn't able to give advice on such an action but now I want to find out the ramifications of what might happen if she does refuse a replacement.
Would she just fade away or would she get horrific complications? I am sure I can guide her through this as she has a l...

Read More...

Only 7 days to go help!

Hi Allan (41)
from Edinburgh Scotland here.

been having really heavy thoughts lately.I know it is vital to everybody in this club to encourage each other and i have felt helped by what i have read.I just feel sad that I am coming to the end of my hearts natural existence before pace maker implantation next wedensday.It makes me wonder if i will ever feel natural again.Can you truly ever forget about your pace makers presence?.

I dont think anyone can truly get there...

Read More...

Support Group

My name is Brendaa and I am 40 years old. I had a pacemaker put in 8 weeks ago and am still in shock. My severe bradycardia and fibrosis came out of nowhere and I am having a hard time accepting my limitations. Because of my age, I was given a PM with a large battery and I am constanly experiencing discomfort. I spend most of my days crying and cannot find a support group in my area. I feel very much alone.

Read More...

new to me


Hi
allan(41) from edinburgh here.

I would just like to thank all the kind people who responded to my very first letter a few days ago.I am about to be fitted with my first pace maker in under two weeks and just being able to know you are not alone and can talk to people who really understand is brilliant.

I understand so much more about the procedure and what to expect and i would be a liar if i said I wasnt scared but I am armed with a lot more knowledge wh...

Read More...

Impact of stress

Hi again - I'm the new battery-operated trumpet player in the group. You might get tired of hearing from me. My wife picks at me and says I've been jabbering like a magpie since I can talk without gasping for air following the pacemaker implant less than a week ago.

I work as a senior public relations advisor for the Army. It's a stressful job normally, but with the Army conducting operations in an unpopular war, it's really been tough. The workload and expectations can be unrea...

Read More...

Why do people want to pop our postive bubble

My father Kenneth was admitted to A&E early June and fitted with a pacemaker. At the end of July was admitted into hospital again and diagnosed with a extensive left temporel inhomogeneous - high grade glioma cancer in the brain.

At first we were all shocked but agreed to be a very happy family to spend as much time together and to find as many alternative therapies. ie Essiac Tea, Coral Calcium C10 and Oxy-Element. I have started praying and have been trying to faith heal, which s...

Read More...

Husband doesn't understand

Hi, I think this site is great, I often come on here to read your stories when I need a boost or to know I'm not alone.
I had my pacemaker fitted when I was 22 in 2004, I am now 26. I sometimes feel a bit alone as my husband has never been able to fully understand how it effects me. He didn't come to the hospital when I went into have the operation (we weren't married or living together then, but had been dating for 6 years) and he's never really been able to talk about it with me. He says...

Read More...

Ding Dong of Doom

Hi, I had my pacemaker put in 2 years ago this month and was so scared I didn't know what to do. I posted a few messages and eventually started feeling better. I had passed out once in the back yard and just thought I was over doing. Then a week later passed out at work and then 5 times before the ambulance took me away and they put a pacemaker in right away. I'm 100% dependant and have had some anxiety attacks. One thing that does bother it is big powerful speakers. I went to a work party...

Read More...

You know you're wired when...

You have a high-tech ticker.

Member Quotes

I am a competitive cyclist with a pacemaker!