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For Frank & Terry

Frank& Terry,

First let me call this what it is. It is self-serving babble.

Of course both of you are correct. I knew I was stepping into scared territory on this one and started to stay quiet. Wish I had now. But Frank, Steve asked if his pacemaker could have a negative effect on his EF. That is what I was referring to. I'm aware that pacemakers have a positive effect on EF for many people. I just wish I could say I was one of those people then maybe I could get an...

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Rate Response Problems

I am having a lot of problems with the rate response function from my pacemaker. My rate is set to 80 BPM but under any attempt at activity I can only get an increase up to 83-84 BPM.
I am always tired and need a nap after any extended walking or attempted excercise.
What do I do now?

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implant

I am having a pacemaker this thursday - Is there anything that I need to know that is just routine info?? thanks, Di

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New Here...

I should have searched for this group earlier...I'm STILL trying to come to grips with the fact that, at age 44 (implant at 43) I have a defibrillator/pacemaker. I'm not dealing with it very well. Many issues to deal with, PM/DF just one small part...

But just wanted to pop on and say hello. I hope to find support here that I've not found anywhere else....

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What am I to do

I am 50 YO male and a father of two beautiful girls 2 and 4. I was diagnosed with Bradycardia on 1/31/09. I was having light headed episodes while driving and thought it was neurological or my high stress job. Episodes were due to toprol xl, a beta blocker that I was taking because I had slightly elevated BP (>130). Off meds, had cath work done, heart and pipes are clean. Have worn several HOLTER monitors and event recorders. BPM decent during the day ( >50) while sitting at work, higher...

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What to do

I am 50 YO male and a father of two beautiful girls 2 and 4. I was diagnosed with Bradycardia on 1/31/09. I was having light headed episodes while driving and thought it was neurological or my high stress job. Episodes were due to toprol xl, a beta blocker that I was taking because I had slightly elevated BP (>130). Off meds, had cath work done, heart and pipes are clean. Have worn several HOLTER monitors and event recorders. BPM decent during the day ( >50) while sitting at work, higher (60-75)...

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Getting Poked by PM?????

I have been experiencing "Little Shocks" for about 2 months!
It feels like I am being zapped! It last for 15 - 1 minute. Happens at all different times no rhyme or reason! At first I thought it was my heart! Like a sharp/stabbing pain. I went to my EP who said while it is very rare some people experience a "POKE" from the PM touching nerve endings. He also said there is nothing that can be done for it as if he moves it it's very likely to happen again, that some people are just very sens...

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trying..

hi. im pretty new with this. i've had heart issues my whole life. born with hole in heart. it was repaired when i was 1. about 5 years ago found out the patch is starting to come off a bit, i have another hole in my heart, and a leaky valve. then my current stuff started about 3 yrs. ago. i was contantly dizzy, lightheaded, chest pain, running into walls, falling, fainting, passing out for more time than i should have. no one believed me it was my heart. i kept going to the er and they told i wa...

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Pacer noise

I have had discovery 1283 for about 6 years -I have this noise that is like morris code or tapping at different times of the day. I notice it most at night. Would it be some type of setting that is monitoring me. I have been assured that the pacer has no moving parts so it is not possible, however I think I know a heart beat and a tapping sound with a bit of rythm. If anyone has any ideas I would like them. Jan

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BLAKE - admin - Sept. Fundraiser info.

Hey Blake hope you are well!

As you have probably noticed I am heading over for the above fundraiser!!!!! But please could you give me any more info at this stage? I am just trying to sort out my finances for the trip!!

And who else is going?????????????????????!!!!!!

Love & Hugs, Loopy Lou xxxxxxx

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CABG!

Your last posting was 'dead funny'!!

Has your Cardiologist been watching too much of that old movie.... 'Solent Green'??!!! ha ha ha ha very funny!

Now then young man, I think you should come over for this fund raiser in Florida! what do you think!?

Love & Hugs, Loopy Lou xxx

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Getting new unit

This is my 2nd PM. My first installed in Sept. 2004. Just got my new unit April 8th. My old unit was a Medtronic AT500,This is a ADSR01,WHAT a differnce. I have Afib, top of Heart has been over 350bpm for the last 3 years. The Dr. didn't put the top lead on this time because it has done nothing to pace the Afib. Since 04 I have had so much pain in my heart,and swelling above my heart. Nobody could figure it out. I had stabing pains most of the time with the old PM. It would feel like someone had...

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Dizzy Disco

I get dizzy every time I stand up

when my world is spinnin', I wanna throw up

I disguise it well with moves

that everyone approves

just wear your plastic shoes,

'cause I never seem to ring my cup.

The best thing since Disco, peace-out, word-up.

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ekg electrodes

Since I wear EKG electrode patches almost daily, I'm going to start creating "FASHION ELECTRODES".

These hypo-allergenic patches can be suited to meet all of your fashion needs. Available in all colors to match any outfit perfectly, additional cubic zirconia and other jewels may be added (at additional cost) for that special night on the town.

As an added bonus: you can get shaped electrodes in heart shaped, flower shaped, or your favorite sport (baseball or football shaped...

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heat

Hi really glad i found this great place. my question does any one find it harder to deal with heat or the cold . I got my pacemaker in Sept last year ,this winter i had a really hard time with the cold , but we have a few 80 + days already and i can hardley stand it . I not sure how i am going to be able to work in the heat this summer.or how to go about talking to my boss about my health or is just me? thanks

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Ejection Fraction (EF)

Hi everybody..hope you are well!

Can a pacemaker have a negative impact on one's ejection fraction (EF)? I'm learning terms as I go along.

Or, can just having a pacemaker yield a different reading or measurement just by the fact that it has some control over heart rate?

Does that make sense? Thanks.

Steve

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QOTW and other random things floating through my head @ the moment

Hey!!! Since a lot of us aren't feeling our best, here is a quote that either could A) help you relate to your own emotions and make you laugh, or B) make it worse. I kinda doubt the second, but I put it there as a disclaimer. Anyhoos, here it is:

"No one can feel as helpless as the owner of a sick goldfish."
- Kim Hubbard

Well, I was @ a Key Club convention in Richmond, Va this weekend and I haven't had t...

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My first post-op 5K

Some of you might remember earlier postings where I mentioned getting back on the treadmill and into running after my PM implant last November. My first goal was to get my 4 mile average pace back below 11 minutes per mile, then below 10:30/mile, and then below 10:00/mile (about where I was pre-op). With the nicer weather, I've been running a bit outside, but haven't been timing anything.

On Saturday I ran my first 5K organized race since the PM implant (I had a couple of earlier ra...

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still pain when i move my arm

Well,I went to the doctor Again, told them about the pain in my arm that seems worse now after 4 months of having the PM implanted. They said have no ideal and it was not coming from the PM,I know it is ,I can move my arm up and forward but not straight out or back,and the pain nearly makes me pass out if I reach out for something.It was placed on the right side,I am a lefty.I have a boston scientific with two leads,have both fast&slow heart beats.They tested my PM and said leads were still in p...

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im confused

hi every one ,well im so confused ,we had a call of our gp saying he wants to see hubby regarding a letter he had from the cardiologest at hospital ,they now want him to start taking beta blockers ,he has a pm ddd st judes and a merchanical mitral valve ,and at the pm check up they said all was fine apart from a few bursts of af ,.why do they put you on beta blocker ?he had pm fitted because his heart beat was very very low .with missed beats and af im so confused as his heart beat now is good...

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You know you're wired when...

You have a T-shirt that reads “Wired4Sound”.

Member Quotes

We are very lucky to have these devices.