Most Recent Messages

LEFT HANDED GOLF

I am right handed and have icd implanted in left shoulder. I play golf left handed. No plms so far, appreciate any comments

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I'm not sure how to handle all of this..

I just turned 21 and I've been diagnosed with complete heartblock since May when I passed out and had a heart rate of 48. I was in the hospital for 2 days and have been on a heart monitor since then. I'm also 29 weeks pregnant which complicates the situation. They're trying to wait until after I have the baby to insert a pacemaker for the sake of the baby but the doctors have all told me I'm going to have to have one and they're worried about how I'll do in labor being in complete heartblock...

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One wk post Op

Hi Did write before but cannot find it. I had dual pacemaker one wk ago tomorrow. Feel fine. Using arms too much I think. How easy is it too dislodge leads? Worried about that? I am walking every day, is that ok. Set at 80 but not a higher no. Have not fainted for one wk either so that is good. Was 19 beats per min. when fainting. 12 times in July. Incision 5 in long. seems long to me. Any advice about use of arms. Trying to not lift them but hard kitchen cupboards etc. Feel like I can do anythi...

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thanks for response

Hi everyone, so I just posted a message in the wrong spot so now will try again. I appreciated the 4 responses I got to my first message. Im 48 with a pm, a week post surgery for a lead replacement. Had origanal pm put in on July 3rd. Yesterday was a sluggish day for me and my heart rate seemed slow and I truly had no energy. My cardiac nurse said that because of all the pvc's I have that when I take my pulse I may not be feeling all of the beats even though they may be there. Im so worried that...

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being pathetic!

Ok, so I had my pacemaker fitted on 24th July and have been lucky enough to have hubby at home to pamper me!! I have two young children 11 and 8 years old.

The thing is, hubby works abroad 80% of the time and is away next Monday - and already I feel so lonely and scared about coping with my p.m. and having to deal with the kids and trying to keep them amused during the summer hols as I am not supposed to drive.

Also how long till I can stop sleeping on my back!!!!!

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Slipping pacemaker

Hello again, Luke here.

I had a pacemaker installed about 20 months ago. It has been fine as far as I can tell, since it supposedly only works if I get below 40 bpm. However, a few weeks ago I noticed it had slipped from just below my collarbone about an inch. I can feel and see the leads. I did go to the cardio's offfice where they just did a phone check on it and I haven't had a report yet. The nurse said this was not unusual and not to worry. I tell you what, when a nurse t...

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Pacemaker coming!

Hello,

I just found out last week that I will be getting a pacemaker in the next few weeks. I am dealing with the news now but it hit me pretty hard in the beginning. I always thought it was for older people, I am only 26. I found this site yesterday and already it has been a HUGE help in giving me information. A little scary at times though reading the complications postings. Just wanted to see if anyone had any advice of what I should do or what questions to ask before I get t...

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pookie

i am in chat. jess

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Received PM yesterday

I received my PM yesterday. I came home today. So far I only feel a little pain in the area where the Pm is located. So far so good. I hope to get a good nights sleep with out being woke up for the nurse to check my blood pressure. she always came in just as I dozed off. I will write more later.

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Atrial Preference Pacing

I saw my EP on Monday, and some changes were made to my pacemaker because of high rate episodes. The atrial preference pacing feature was turned on in order to make the pacemaker keep up with these episodes in hopes that it will pace me out of the abnormal rhythms. I have been having strange feelings since these adjustments were made. When my heart rate gets up, the pacemaker paces me even faster to try and sustain a more normal rhythm. Has anyone had any experiance with this feature?

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Side effects

I am taking propofonone 3 times a day and want to know if anyone is having unusual side effects. Also five months prior to my condition (had icd implanted 6-19-08) I found that I can't smell or taste most things. Fruits and vegetables I can taste because of the strong flavor, I can also taste sweets, sour and salt. I am only 52 years old. Any suggestion other than a ENT?

Dave

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slow/fast heart rate

can anyone tell me why my heart rate should fluculate so much? im having my pacemaker reimplanted deeper on 14.8.08 but recently had a holter monitor for a week as i was experiencing episodes of fast heart beat .my gp said the results showed sinus rythmn but the rate went between 60 and 145. the cardiologist will talk more next week but i was wondering why the rate goes so high. im on propanolol twice a day but the side effects are awful but without them i dread to think what the heart rate woul...

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Pain

It's 3 weeks now since I had my pacemaker.
The area around the pacemaker is still very tender , and sometimes a throbbing pain, worst if clothing touches that area. The pain is like someone stick a needle there, like a stinging or pulling pain. In the morning, it gets better but gets worst as the day goes on. When I stand up, it's like something pulling the skin downwards on the chest.
Also not much feeling in this area; quite numb.
Is this normal? how long to go before it gets be...

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Battered and Bruised!!

Hi guys!!

Another quick question....

I had my surgery on 24th July and I am STILL very bruised and swollen.... how much longer do I have to wait for all bruises to go!!

Hope you all ok!

Louise xx

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PS To Whom do I believe?

Thanks for your input, I figured it would be safe to wait another 6-8 weeks because I do a lot of lifting and stay active, I don't have much trouble keeping my weight down. Also when my heart stopped it stopped for an extended period. However I was surprised at how long most of you were told to keep your sling on. I was told to keep it on for only 48 hours. They did tell me to keep my arm down for a month, but the sling was off in 2 days.

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wall motion test

my husband is having this test on the 18th. anyone know anything about this test? jessie

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40 years with a pacemaker


August 5, I celebrated 40 years with a pacemaker. I received my first one when I was seven after having open heart surgery for a ASD.

I have survived two cardiac arrests and a heart attack. I received an ICD in Jan 2005 which is my 12th device. Aug 2006 I had my second open heart surgery to replace the mitral valve.

I don't know everything there is to having a pacemaker. I find I am learning all the time. I think the Doctors that work with me are also learning about...

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New to the Pace Maker world

Hi, Im a 48 year old woman and I received my St. Judes pacemaker July 3rd. On my first check up 2 weeks later I mentioned to the cardiac nurse that something did not feel right and it turned out that one of the leads had moved so I was rescheduled for surgery. I had surgery on July 31st and they ended up replacing the lead as it was not working correctly. Im having a really hard time learning to trust "Penny"(my husband named her!) Prior to getting Penny I had been back and forth to the dr's so...

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can hearing aid be used

I would like to know if iIcan use a hearing aid ( digital ).

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Unborn child with Congenital complete heart block

Hi all,

One news that is getting much attention in my country is of a Unborn child with Congenital complete heart block :-( same case as mine and few of our fellow friend in this site. There is lot of debate whether the couple should be allowed to abort the child. However court has rejected their plea. Please stand by the unborn child he/she needs our prayers...

Pls see links for the complete news:

http://timesofindia.indiatimes.com/Cities/
...

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You know you're wired when...

Your electric tooth brush interferes with your device.

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I am no expert, but I believe that without the defibrillator that I have, I would be dead.