Most Recent Messages

Post Message!

Outings ;-)

Greetings Everyone,
Just a quick note to let you know what a fantastic time we are having here in the UK! Peter and Nina have been the most gracious host! We have been out to see the countryside today where we enjoyed a beautiful lunch at a wonderful English Pub. Nina and I have also spent some time shopping! We have also been to view some beautiful churches and the open air market in Great Yarmouth.
We are so thankful to be here, what a gift it is to be with such wonderful frie...

Read More...

Very discouraged

Hello Everyone,

A few weeks ago I posted looking for anyone else out there like me and no one responded with a similar situation. I am getting very discouraged and worried. I am back at Mass General once or twice a week because of problems with my PM. They just can't seem to get the settings right. My problem is my heartrate dropping dramatically when I exercise but this week, as I was exercising my heart went the other direction. I have a very high heart rate to begin with when...

Read More...

Pacer's in Boston MA

Hi!

I hope everyone is doing well and enjoying the start of summer.

So I was wondering would any Pacers in Boston, MA want to do like an outing! Such as a picnic near the Charles River or at a Park near Harvard Square. I think it would be cool to have a Pacers Unite thing...

Please let me know if you have any thoughts or suggestions... Come one come all and I'll try and set something up...

Have a great day!
- Alexis

Read More...

Pacers to best friends in less than a year

Hi All,
Just to say what a great time we are having here,
Susan and Tim are wonderful people,I still can't believe they came all the way from the States to see me......and thanks to all of you that gave me the encouragement to get fit again .I would like to say that I did manage to meet them on arrival in the UK so mission accomplished!!!!
Even the English weather has been kind to us it has been warm and sunny so far this week.
This has been an experience of a life time for m...

Read More...

Static electricity shocks

I read the message from Starrider about the shock from a laptop which made me think about this. I feel that after I got my pm I get more static shocks and that they are bigger than before the pm. Sometimes it even feels like the pm stops for a few seconds - I am 100% paced and the feeling I get is like when the pm is turned off by the tech who check the battery on the pm.
Anyone else have the same experience?
Thanks

Read More...

Help!

I know i've already talked to some of you and how so many of you have helped me with everything lately. I had my appointment today to see what else they can do for me the options aren't so exciting. My SA Node seriously has a mind of it's own. The SA seriously thinks that it can overpower everything else.
I go in for another ablation on June 19th. I feel like i'm a pro now at these. The doctor said that they see that having two happens some but three times doesn't happen as often. Has a...

Read More...

Don't worry Blake...

...for all of our thoughts and prayers will be with you during your ablation on Wednesday!
So that comes to a total of one zillion thoughts and an infinite amount of prayers. That should hold you off till then :)
May God bless you and your family.

Take care!
~valerie
P.S. send us post cards......well,...okay, how about just an update when you are feeling in tip top shape (or "tick tock" shape). I added that corny joke just for you.

Read More...

when is the best time to get paced

This is my second time trying to post this, so apologies if the last one went through and I am repeating myself.

Hello Everyone,
I am looking for thoughts or advise from mums with pacemakers on when is the best time to get a pacemaker.

I have a complete congential heart block, but to date I am relatively asymptomatic. I have been doing alot of reading re congenital heart block and it has scared the living daylights out of me. On my last visit to my cardiologist we de...

Read More...

when is the best time to get paced

This is my second time trying to post this, so apologies if the last one went through and I am repeating myself.

Hello Everyone,
I am looking for thoughts or advise from mums with pacemakers on when is the best time to get a pacemaker.

I have a complete congential heart block, but to date I am relatively asymptomatic. I have been doing alot of reading re congenital heart block and it has scared the living daylights out of me. On my last visit to my cardiologist we de...

Read More...

Home from the Hospital....

I wanted to let you know that I am home from the hospital in Burbank and have had quite a week. Let me start by reporting that I had lead extraction and pacemaker replacement due to multiple problems with my PM since the initial implantation in April 2005. This surgery was done by a wonderful physician that I would highly recommend if anyone is in need of this procedure. There was one very serious complication which was that I went in to a late stage cardiac tamponade (SP?) in that my heart w...

Read More...

Today's Special Pacer:

Todd.

HAPPY BIRTHDAY TODD!

Todd Harris (tah1432): May 22, 1970

37 in 2007……you wouldn’t happen to be born at 7am or pm would you? Because that would be cool:

Born at 7, and now your 37 and its 2007
All these 7s! I feel a lottery number coming on….

May you have a wonderful birthday and perhaps win the lotto :)

Take care,
~valerie

Read More...

felt electrical shock from laptop?

Hello folks...

This laptop has been overheat and shutting down...And this morning i got a shock in my left hand while lifting one corner of it. Actually got shock a couple of time.

I did call up the manufacturer...and checked the web site...seems this particular model does have issues...and was advise to bring it in...

In the meantime...still typing on it ...how ever wearing a rubber glove on the left hand.

Opinions...Smitty?...anyone...

Read More...

Bradycardia and atenolol

After a routine check up revealed Afib, I saw a cardiologist who put me on Atenolol to slow the heart 50mgs. A week later I was having dizzy spells, went in to emergency at Brigham and Women's where it was confirmed that my heart beat was slowing down to as low as 7 beats per minute at times.The Dr. recommended a pacemaker and I reluctantly agreed. Now I am starting to wonder, if I had gone off the atenolol long enough, would the bradycardia have stopped. In other words was the pacemaker necessa...

Read More...

Questions for Dr.

Hi Everyone,
I have my first Dr. appt with the electrophysiologist since she put in my pacemaker for bradycardia. She is with Brigam and Women's Hospital and not a Doctorr on my Heath Plan (I was originally diagnosed for Afrib heartbeat speed up after a routine checkup and had one appt. with my Health Plan Cardiologist before the bradycardia started)
The pacemaker seems fine and no problems with bradycardia.
However even though I can't seem to feel any heart speedup, I do noticed...

Read More...

cardiofocus

Hi Everyone,

Someone suggested I check out cardiofocus.com.(I think in response to my questions about stroke).It is very negative and
scarey. It portrays Afib as a progressive disease with stroke twice as likely as the regular population even with anti-coagulants-otherwise 5-6 times more likely.It states that our quality of life is severly reduced-the equivilant of severe rheumatoid arthritis.Not very comforting. Anyone have a different perspective ( I have a pacemaker for bra...

Read More...

blood clots

I have read a lot on here about blood clots.
That people are more likely to have strokes after PM is implanted. My mom just had a stroke and I am concerned about that and much more.

Read More...

Bradycardia Part II

Hi,
Has anyone ever decided they did not need the pacemaker after they got one and took it out? Jim

Read More...

24 yrs old and tired of being tired!

Hello,
I'm brand new to this site and this is my first post. My short story is that I'm going in on June 5th to consult about/get instructions/and schedule pacemaker implant. I am 24, married with 2 elementary school aged children.

Here's the longer story: I have what my dr. calls a severe case of NCS or VVS (neurocardiogenic syncope or vaso-vagal syncope) with the extra kicker of >5 seconds asystole (heart stops when I faint), and thus he has been pushing the pacemaker for a...

Read More...

Heeeelp! Squeezing in throat...

I recieved my PM two weeks ago after a Holter test showed a sick sinus problem (Mobitz I & II). All went very well with the implant.
Prior to getting the PM, I would get a strange squeezing or pressure sensation in the hollow of my throat (just below the adams apple). I don't get pain in my chest though.
I have had 24 hr pH tests, X-rays, scopes, you name it - all negative. Of course, in readin many of the postings here, after a while they say it must be in your head, anxiety, panic, e...

Read More...

We're here ;-)

Hello everyone! Well we have good news... My husband and I are here at Peter and Nina's home. We are having a wonderful time! Peter is doing fine and Nina is beautiful!.. We are so thankful for the wonderful friends we ave made here in the UK. How very lucky are we.
We will keep you posted of our exciting activities as our visit progresses.
Hope everyone has a wonderful day.
Pacergirl and Peter .... Timbo and Nina ;-)

Read More...

You know you're wired when...

You’re a battery-operated lover.

Member Quotes

A properly implanted and adjusted pacemaker will not even be noticeable after you get over the surgery.