Most Recent Messages in ICDs
Life Change
Like everyone else I am so glad that I found this web site. I am a 43 year old female and was scheduled to have neck surgery in May. So as procedure I went to have my pre-op done and the nurse told me that they would not do surgery on me that I needed to see a cardiologist asap. So that afternoon I saw a cardio MD. He did a heart cath the next day and said my EF was 10% and I also had a left bundle block. It was like my life just ended. They put me on medication for 90 days to see if my EF got a...
Waking at night and placement changes?
I had my ICD placed 2 weeks and 2 days ago. First I have noticed waking at 4:30 or 5 am to a racing heart that I can feel beating in my shoulder blade. Has anyone ever felt this? I am also feeling like my device has shifted closer to my sternum. It seems a little more uncomfortable and I thought maybe both new developments were due to the inflammation improving. Any words of advice or experiences?
Father's possible replacement
Hello...My father has a pacemaker/defibillator and has had it for about 5 years now. One of the leads is bad and they are going to see if just the lead needs to be replaced or the whole thing. I guess they won't know until they go in. The Dr's said that it went bad because the pacemaker is constantly working because he is in Afib all the time? Not sure what all that means since my dad doesn't ask questions enough. I am wondering if either of these procedures are something to be scared of?...
Acupuncture with an ICD
I've had an ICD since 2008 and, thankfully it hasn't shocked me yet. On the advice of my cardiologist, I went back to gym (this was the location of my "cardiac event" which thanks to an AED and some great gym staff, I survived) Now I've got a shoulder injury which is driving me mad! I'm following an exercise program from my physiotherapist to fix it, but progress is slow. I would dearly like to try acupuncture, my electrophysiologist says "it would not be sensible", but I thought if the needles...
Medtronic Faulty Leads Settlement
I know I have this lead in me but I have no clue if I'm part of this lawsuit or if it's a class action suit I'm automatically included in. Does anyone have any info to find out?
http://www.bizjournals.com/phoenix/stories/2010/10/11/daily52.html?ana=e_du_pub
Curious...
I just had a ICD implanted a couple of days ago. From what I've read, all the leads start from the actual pacemaker itself, which resides in my left should area. Why then is there a incision on my left groin too? (I was so caught up in the drama of the procedure I didn't have a chance to ask!)
Also, my left shoulder still remains just about as tender as it did the day of my procedure. Shouldn't it be feeling better by now?
Thanks!
I'm supposed to get an ICD but I'm afraid...
- by Fljournalist
- 2010-09-28 06:09:38
- ICDs
- 4347 views
- 14 comments
I am a 48-year-old female who had VSD closure/open-heart surgery at age 11. I have had no significant issues with my heart until now. I had an episode at work to where I was trying to walk to my car but became so winded that I could only manage to walk a few steps at a time. I went for an EKG and chest Xray a few days later and found that my heart was beating too slow. Long story short, after three months of monitoring me, my cardiologist has ordered me to have a defibrillator implanted. I've be...
Biventricular PM
I presently have a PM that I have had for 6 years. I have cardiomyopathy and have a leaky mitral valve and an ejection fraction of 20 to 25%. Luckily I haven't had too many complications and have had a fairly normal life but in the past year I've had a harder time when walking or doing physical activity of being out of breath, more than normal. In the past month I have had a huge decline in the things that I can do physically and am pretty much down to sitting around the house. The doctor has me...
What's After Amioderone
Diagnosed with Cardiomyopathy when I was 48 (5 years ago) was implanted with an ICD and have had many shocks. I was originally prescribed Sotalol - eventually I was switched to 200 mg once-daily of amio (other meds are ramipril and bisoprolol). I have had 2 ablations and 1 PVI (for a fib). I am finally stable. There are early signs that some of the toxicity issues (ocular) are starting. I plan to bring this up when I see my electrophysiologist in a few weeks, but I was wondering if anyone in the...
72 times a charm
hi to all icd friends i am new to this site but in a short time of reading all of your stories i almost feel a bit of relief knowing that your not alone when you have all these crazy feelings...
i only had my icd for a month and it shocked me 72 times the first night and 10 the next day there are no words to say what it felt as some of you know what i mean ...but i was blessed with making it throw thanks to all the wonderfull docs that were there for me and alot of help from upstairs.. it...
3rd Implantation
Hi everyone! I was diagnosed with dilated cardiomyopathy last 2009. I just had my ICD replaced for the 3rd time since then. The reason was that with the 2 previous icd's, the batteries got depleted after firing continuously ( > 20 shocks each!). The manufacturer's impressions were CRT-D Malfunction. They really gave me much fear that I have tried my best to get out of the trauma for 4 months. Now with this 3rd one, I requested that maybe it's okay to turn off the icd and my doctor agreed. She s...
My First Time
Hello to my pacemaker and defibrillator friends. Although I have been a pacemaker/defibrillator recipient for ten years, and now fitted with my third device, I have only been a member of this wonderful support group for a short time. To this point I have been an enthusiastic but passive reader of your stories, experiences, questions and responses. I now feel ready to contribute and be an active member.
My name is Neville and I am a sixty-four year old Australian guy from Mildura, 550k...
CAN MY ICD POP OUT?
Has anyones PM Defib. popped out of the skin? The Doctor has suggested needing to move it over, I just don't want to go through the procedure again. It was implanted in Jan. I have breast implants that prevent the ICD from dropping where most do. I also have a sternum that is collapsing from radiation treatments from years ago. I'm thin so it really is obvious that I have the PM. I have long QT and had extreme tachycardia. I just am afraid that the devise may pop out and if that did happen...
icd removed
Hi everyone on 8/10/10 my device was removed. On8/11/10 I got a new heart so far all is good with the transplant. Went from an ef of 10 t0 15 now 65 feel great a little tired but no pain at all.
Twitching daily
My father has had an ICD for about 6 months to address a-fib. He had several adjustments to address random and what I understand to be, common twitching.
The problem is that he has significant twitching in the abdominal/chest area every morning at the exact same time of 6:02 am. He minimized the pain by going to the basement and covering himself with cookie sheets.
He recently moved to progressive/assisted living in another town about 20 miles away and hoped that whateve...
ICD scares me, should I get it?
Hey folks, as you can tell from my title, I am new to this forum. Here is a little bio
I am a well conditioned 45 yr old male, with a 25 year history of cardiomyopathy; an EF of arounf 30%. I actually served my last year in the Marines with this issue and didn't know it till I got out. About three years ago I kept feeling terrible, and getting chest congestion. It was finally determined the dilated left ventricle has caused my mitral valave to leak. Now I have a nice mechanical v...
Hello
I had an ICD implanted on July 30th following "sudden death due to cardiac arrythmia" outside a hospital emergency room. The electrical impulse problem with my heart came as quite a surprise as did waking up in the trauma room surrounded by medical personnel.
I'm feeling fine and returned to work full-time on August 23rd. I'll be interested to read your messages/postings to learn about some of your experiences.
Best wishes
10 Shocks from hell !
I would like to share my story of the scariest day of my life. I had my AICD implanted 12/09. I went to the hospital throwing 20-30 PVCs a min. The heart block and the fact that my EF rate was down to 25-30% was the reason for the AICD. I have felt fine and I have been in for my AICD checks and all was good. I had another echo back in april and my heart had gotten stronger (EF 40-45%).
Hear is the story>>>> on 8-4-10 I was out weed eating as usual
and yes it's hot but I had just co...
LOW heart rate !
Hi all, Well, i have a question. i have been experiencing very slow heart rates as low as 40 bpm up to 52 bpm. I feel no other side-effects. This occurs from time with no specific times to write down. Other times the rate is my NORMAL paced rate of 71 bpm.
These all are at normal resting times. The rate climbs like it has always climbed when exerted.
Please if anyone has any idea let me know. Thank you
Jon
PS if you read my first post it gives my history.
What Kind do you have???
Sound off I will start what kind of IDC do you have??
Medtronic Virtuoso VR defibrillator
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