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Having a pacemaker / living with one

I have had a pacemaker most of life (39 years), if you have thoughts, feelings, or strange things happen to you that you would like to discuss then just email them to me. repwork@gmail.com

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Blue Australia

Hi Everyone,

Has anyone heard from Billie? I know she & Brian are away, and she was in contact w/me via my regular email, but I haven't heard from her since before Xmas and I'm a bit worried.

Pookie

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Droped pacemaker

My pc is only 7 months but it seems to have suddenly droped does anyone know what this is and what the risk.

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Sick

Hello folks, I have been sick for more than a couple of weeks now. Not too serious, just my tummy rumbling and feeling very cold. Yesterday I began to "toss my cookies" I have dropped 7 pounds in a weeks time and went to the dr. today. I am very sick with "flu like symptoms" I don't have the flu.. the dr ran test. My immune system has gone into overdrive according to the test they performed. I was so dehydrated that I was given IV fluids. I am now back home awaiting the test results. I feel awfu...

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Blood Clots???

Good Afternoon,

Has anyone experienced blood clots after their surgery???

Today is my one month anniversary since my CRT-D implant and those 30 days have been relatively challenging, including a severe flare up of Gout that's slowing abating.

Now I noticed a lump in my left arm...my PCP says it's a blood clot...probably related to the surgery. He seems to think it is in a so called superficial "cephalic"l vein and should resolve itself without further complica...

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How soon may I exercise after a PM implant?

I had my PM installed 14th December. The first week was like hell, but I went to work each day and life is slowly coming back. I'll have my 2nd check at the hospital next week, and will ask for their advice on training and other things. But is there anybody with sports and exercise experience? I'm 63, very active and need a really good reason to take it easy the coming months!

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Boston Scientific

Has anyone brought a lawsuit against Boston Scientific for a faulty pacemaker and won?

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Lightheadded...sort of

Just a quick question for those of you who suffered lightheadedness before you got your pacemaker....do you still experience a feeling like you are GOING to get dizzy / lightheadded and then it doesn't happen? (obviously because your pacemaker kicks in)!

I have found that a few times since I got pm 5 weeks ago, I get a feeling like I'm going to have one of the usual lightheadded spells that I used to get before my pm, but then it doesn't happen. It's weird...feels like a half a second...

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Medtronic carelink Monitor

Hi all ;)
I got my Medtronic carelink Monitor today this afternoon
so now tomorrow we are going to hook it up and I am to send a reading to them... this is all pretty interesting... I have read about it..but wondered what it will send...? dumb question maybe... also when I put it on my PM will it feel like the
interrogation did the first time? does anyone know?
and will it show paplations that once in awhile i get?
anyways, just wanted to know
Thank you
br...

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5 Ways To DeStress !!!

Happy New Year Everyone!

I was just going thru what I think were my helpful posts and stumbled across this one: I re-read it myself and feel a bit better already! I find January so gloomy and blue. One thing I would like to add to this article that helped me was I started getting Massage Therapy late last year and plan to continue it this year!!!!!!!!

Anyways...enjoy and hopefully this might be of some help to someone out there :)

I found this article in The C...

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2nd surgery for wrongly placed lead wire??

Is 2nd Surgery nec to correct lead wire prob?
Comment posted by kubie on 2010-01-05 18:35.
My husband had emergency Surgery on Nov. 8th, 2009 when his PM was first implanted. We were "out of network" for the surgery, as this was determined to be an emergency. He is 66 yrs old & generally in good health. He had suffered from syncope & dizziness for several months & had a gazillion heart tests prior to his PM implant.

Anyway, DH had a Right Branch Bundle Block. His PM has two...

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Correcting sp in previous email

Mistake in earlier message --

The two wires in DHs PM -- one is atrial & one is ventricular. I think that is correct info. Sorry, my very long email says "arterial" lead wire; it should say atrial, I think.

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2nd surgery for wrongly placed lead wire??

Is 2nd Surgery nec to correct lead wire prob?
Comment posted by kubie on 2010-01-05 18:35.
My husband had emergency Surgery on Nov. 8th, 2009 when his PM was first implanted. We were "out of network" for the surgery, as this was determined to be an emergency. He is 66 yrs old & generally in good health. He had suffered from syncope & dizziness for several months & had a gazillion heart tests prior to his PM implant.

Anyway, DH had a Right Branch Bundle Block. His PM has two...

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Looking for online MD eval


Where can I get FREE info & eval of all local MDs, incl cardiologists, surgeons, etc??

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Subpectorial implant/stimulation

Hi guys,

Been awhile since I last posted. In the past 6 months I've had an ablation to stop 2 to 1 pacing when my heart rate goes above 140 (goes to 140, drops to 70 for 2-3 minutes); didn't work. After multiple programing changes, had a lead revision to remove the v lead (the thought was that there was too much scar tissue at the tip) and to place pacemaker subpectorially for better protection. Xray the next am, determined not enough slack in lead, subsequent operation to lengthen...

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new PM settings and BP

I have had totally radical blood pressure after the PM was installed. My doc started me off at 90 BPM and 6 weeks later dialed it down to 80 and then 5 weeks later down to 60 where it is supposed to stay. He said none of these settings would affect my BP. However each time my rate was lowered my BP got better (lower) over time. Now my BP is perfect 9 times out of 10 when I check it.
Question, has anyone else had this experience?
Thanks!!!

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Bicycling in aero position + PM?

Is there a problem with the normal PM position and bicycling in a typical aero/racing posture, where the upper body bent low and the arms forward to a handlebar positioned forward and low? Bad description, but bicyclists hopefully know exactly what I mean...

I am having a bivent PM implanted soon, and as I was training on my indoors rollers tonight, I realized perhaps a PM would be noticeable and in the way for such a bike riding posture..

Can any bicyclists help me out wit...

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Abnormal rhythems

I am wondering what everyone here does when they feel abnormal rhythems, skips, palpitations etc?

I some times feel PAC's, and it feels like a harder beat than the rest and it throws me off.

I sometimes feel some really good beats but then it seems like a valve is hesitating or a beat is hesitating, not following the normal or preceeding pattern of beats. Does that make sense?

Wondering if anyone else has this and what you do when it happens. So far I've been pra...

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JAMA Article

I just read the JAMA article on pacemaker approval processes and posted an article about it at http://tinyurl.com/ya42spk. This is kind of the Cliff's Notes version of the article, if you care to read it. The article itself is pretty dense and hard to get through unless you like reading a lot of scientific data.

Bottom line: the testing methods used by manufacturers to get pacemakers and ICDs cleared by the FDA could be more scientifically sound.

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Wonder if this is normal?

for a few months now I get out of breath slightly especially when I bend down to pick something up,also from time to time I sweat ,three months ago when i saw cardialagist,he did a sonogram of my heart and said all is fine.I see him in amonth, but I notice if I do something with lifting,I am slightly winded. Does this happen to others with pacemaker,I will call doctor tomorrow and tell him again about this issue. I have a Medtronic with two leads.since 2006.Please answer me I am so worried.ist

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You know you're wired when...

Your ICD has a better memory than you.

Member Quotes

Since I got my pacemaker, I don't pass out anymore! That's a blessing in itself.