Most Recent Messages

pacemaker resetting

has anyone ever heard of a pacemaker resetting itself because it can't pick up the signal because the voltage is too low?

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support?

Does anyone know of any support groups in the St. Louis, MO area?
Rusty

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Worried Newbie

Hi All,

I am from Scotland, how are you all?

I have found out that I am getting a pacemaker, I dont have a date as yet, but it will be soon. I have heart block, side affects are dizziness, fainting and irregular heartbeat. I also have very low blood pressure.

I am 37 and really feeling as though I am entering something that I dont have any control over. I found this site last week and it is amazing, it is answering so many of my questions. I think I will take g...

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Thanks Blake

I see on our account that we put in our home town ect. I didn't know you were planning on making that info available at a later date. That will be great if you could. If you did not want that part to be seen you just note that and it would be deleted from the profile. Great Idea and do it soon if you can Blake. And if i might ask a question Blake how do I send a personal message now with the change. I sent a couple and got no answer so i don't know if they went through or not. Thanks again for t...

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Travel plans for the UK

Happy Mother's Day to all the Mothers and to Fathers who are also the Moms. ;-)

Now..... time for an update on the travel plans..... just in case you guys are following this. My husband and I have our passports, tickets and I have been packed to leave for a week! We are leaving this coming Saturday morning to meet Peter and his lovely wife in London on Sunday morning. We are traveling from Wichita, Kansas. We have been friends for a long time (one year) and we are looking forward...

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Before you read I have an Idea.

Sorry, I guess that wasn't the last 2 posts. I meant the post of Pacergirl and Peter.nash. About there meeting up in the UK. It sounds like so much fun. Bowlrbob

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I have an Idea.

Because of the last 2 postings below why don't we see if Blake could set up a place under forums where we could list our country and home town. Then if we were setting up a vacation or even if we were going to be out and about on business we could look up other members. We could write them and if they were interested meet them. This would be a huge help when visiting a new area. We could avoid the usual tourist traps and have access to a guide who knows the best places to go. There would be no o...

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iPods may cause pacemaker malfunction

By Liz Welter
Marshfield News-Herald

Grandma or Grandpa probably aren't tuned into an iPod.

But if they have a pacemaker, someone else's use of a portable music player can cause problems.

iPods were used in a study which demonstrated that the devices caused 50 percent of the pacemakers to malfunction.

The study found that iPods affected the pacemakers for a distance of up to 18 inches. In one case the pacemaker stopped working.

"M...

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***Is'nt this just fantastic***

Hello there everyone.
regarding Pacergirls posting below....Yes we are nearly there, this time next week Susan and her husband will be here with my wife and I .. it is hard to believe all this has come from a click of a mouse on this fantastic site...I would like to thank Blake and co for their hard work in keeping this club up and running........ but also there would be no club without all the caring members there are here ...I would like to thank you one and all for all the support and ki...

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happy mothers day

happy mother's day to all the moms on our site. to-day is our day so we must try to enjoy it as best we can. some of us are sick and worried but this site helps the most with that i find. my daughter was born in 1965 and then our son 1967. he was our centennial baby. canada celebrated 100 years that year. it was also the summer of love and there was a lot of celebrating at woodstock. we had two children we were dirt poor and i swear we were happier then or is it just my memory is tainted. one th...

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Los Angeles

Does anyone know of a support group in the Los Angeles/Marina del Rey area?
Jean

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Beta Blockers

I was wondering if anyone out there is on a beta blocker. I have been on one since my pacemaker for SSS was implanted in 2004. I was wondering if anyone else was having problems with their weight because of the beta blocker. Also I have talked to other people who are on a beta blocker and they have been placed on a diurectic as well. But my doctor hasn't done that. I exercise, watch what I eat and I can't lose the weight.

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Thanks for your responses re Mom

Thanks to all of you who responded to my mom's problems with chest pain, shortness of breath. Karen, I hope you are feeling better, and would love to hear how your dr. appt. went (1st week of May, I believe).

Mom is still having the pain and breathing problems, and I am taking your advice Smitty, and others, and seeking a second opinion from another doctor who is not affiliated with her pacemaker implant's.

Best Regards,

Debra/legalwman

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site pain and keloids

Lately I feel I need to be trained as a Private Investigator to figure out what, if anything, to do about my current complication. I got my first PM 4 months ago and things have gone very well in terms of solving my cardiac issues. The problem is I still have pain at the PM site, can't sleep on my left side, seatbelt hurts, and lheavy lifting (e.g. moving furniture, lifting a suitcase, heavy yardwork) and some other activities cause increased pain/discomfort. My EP says my skin/tissue at the PM...

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SVC syndrome and pacemaker syndrome

hi everyone,

i am new to this group. i have learned a lot by just reading a few messages already! you are all so supportive of eachother. i have a recalled guidant defib with pacemaker function turned on. i am almost to ERI.

has anyone ever had SVC syndrome? my complaints are tight, full feeling in neck and face. eyes hurt and i have a constant headache behind my eyes. when i lay down it gets much worse. i get a stuffy nose with it and it gets difficult to swallow....

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Great site...

Hi Everyone

This is my first post on here, I hope i'm doing it all right!

I had my pacemaker fitted 23 March 2005 and cannot believe I have only just come across this site - I really could have done with chatting to you all about 2 years ago. My family and friends are fantastic but sometimes I think nobody really knows what sort of effect needing a pacemaker has on me mentally. It's great to know i'm not the only bionic person out there hahaha!

I had my pacemaker...

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Auto Seat Belts

This is my first day, so forgive me I ask a stupid question.
Do any of you have and issue relative to your car's safety belt? Mine crosses directly over my PM. Resently I had to applied my breaks quickly and the SB snapped down hard against my PM. I saw my Dr the next day and she said no one ever mentioned this to her before. - Jean

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2nd surgery recovery

Last Oct I had a St Jude PM implanted. Last month the tech found both leads were going into my lower heart. I went back in three weeks ago to have the lead fixed. The Dr had to remove the old lead and put a new one in. He went in thru the same incision. Now the cut won't heal well and the Dr told me today it looks infected. I am now on meds to cure the infection. has anyone had a similar problem. Can "water" collect in the wound?

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you guys are great!

hello,

i must say i have really been enjoying this group. i can tell most of you are young. it's nice to hear the different things you feel with your devices, complications, how you cope etc. i have read so many messages that have validated how i am feeling and then the dr. say "it can't happen" no, it doesn't feel that way etc. it's like we should all band togewther and march saying....something. i have picked a few of you out that i can truewly relate to.

thank you,...

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Sleep Apnea - high vagal tone

Hey guys,

I don't know if you recall but about a month ago I was told I needed a pacemaker by my cardiologist and then saw a specialist (EP) who said I didn't need one. My heart would stop beating for 3 seconds at times but only during the night..he said this was due to high vagal tone. I was also diagnosed with moderate sleep apnea and he believed that this may be contributing to that pausing and high vagal tone along with excessive physical activity.

I just wanted to let...

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You know you're wired when...

You can shop longer than the Energizer Bunny.

Member Quotes

I still feel great today and can’t stop feeling excited at my "new" life. Modern day miracles through medicine and electronic devices are amazing!