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Anyone else diagnosed with Lenegre's Syndrome?


I don't know if it is 'just in my head' - - - - - - is it possible to feel more fatigued the more the pacemaker has to be used?
Does it matter - maybe - what the underlying condition is that requires the pacemaker in the first place??
Has anyone else been diagnosed with Lenegre's Syndrome?

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Fainting

Hello!
Quick re-cap: I had my 3rd ablation about 6 weeks ago. First 2 were sinus node modifications for IST, 3rd was for sinus node re-entry atrial tachycardia.
I was doing better until I fainted night before last. I saw my doctor yesterday, he adjusted my pacemaker and told me to come back in 3 months. 3 months...are you kidding me!!! I can't go on like this for 3 months! Still having issues because of IST.
On the way home I fainted while sitting in the car. I have NEVER fainte...

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Are any of ya'll on FaceBook

I think we should start a community on FaceBook, and represent pm/icd's. I would love to be able to interact with ya'll on FaceBook. It would be fun.
If ya are......send me a friend request Angelie Alderman

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I have a pacemaker - do I need it?

Not quite sure what happened to me in 2001 when I was 55 but I passed out on airplane and a Dr on board suggested I be cardio tested. I did that - I was subjected to every test imagineable and flunked the infamous tilt table test - they said I flat lined for about 5 seconds and then I restarted myself. My Dr said I should have a pacemaker installed. I did and am now on pacemaker #2 (the first one had an internal problem). Anyway, since I had the first pacemaker installed, the pacemaker has ne...

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great news about lead and question for Electric Frank

Went to my EP yesterday for check. Concerned about lead because I had been told the lead wire could cause wear (and trouble) from swimming by cardiologist. My EP did a PM check and found I have 7 years left on battery...was 5 years at last check. Thats my good news, and even better was being told that there was no wear to my one and only lead and to enjoy swimming as much as I want. The lead wire was not at all tight and lots of coil in the wire. My question to you, Frank, is that under lead su...

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Pacemaker brands

I am coming due for a new pacemaker generator and am wondering if a Medtronic or a Boston Scientific DDDR PM is better. Which one has a longer battery life and which one has better features...any info is appreciated.

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ERI mode

What is ERI mode? I'm new to Pacemaker Planet and still learning. Thanks.

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IM services...

We need to find a way to list all of our AIM, ICQ, etc info on the site. I know a lot of us have them and chat is so inconsistant...

Guess we could list all of our messenger services on our "hobbies" line on the member info

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MRI's & Pacemakers

Saw this article you all might be interested in!

http://www.ivanhoe.com/channels/p_channelstory.cfm?storyid=19798

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Dizzy & light head

Hello there my friends:
I have a few questions. First of all, I went to my hair dresser & when I held my head over the sink, I got very dizzy. When I got up was very dizzy, to the point where I felt like passing out had to sit back down on the chair. After sitting for a minute I tried it again, was very dizzy had to hold on to the hair dresser, fortunaly there was also a sofa near I had to set down for couple minutes.Is that normal. Now yesterday all day was very dizzy and light headed.

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Healing time

Can someone tell me how long does it take for the swelling to go down?

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(Emergency) Healthcare in the UK

Hi guys,

I'm headed to London this fall for some film school (for about a month), and am tempted to ask around about emergency healthcare in England and Scotland. Has anyone had experience with the system? It's pretty scary to pass out in the street pretty much anywhere, but I'm wondering if the way the Brits respond is different than the treatment you might receive in America. Thanks in advance for anything you might be able to pass along!

(I am also accepting pub/park/res...

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Medical tourism

hi all,
This is in response to Mike's question ( exsailor66) about medical tourism. I don't seem to be able to get the private messaging to work, so I hope it's ok on here?
I found this site I wanted to share. Perhaps someone can benefit.
http://www.europaenmedicaltourist.com/heart-surgery.html
Just go the pacemaker section, it has a contact at the bottom of the page. They will get back to you with details of what they can do for you, plus a price.
Hope this helps
E...

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feeling low

hi guys i just thought id have a little moan. i hope you dont mind ive had my ablation 2 weeks ago and i feel alot better so why do i feel so low. iam having my pm moved on friday at the moment it just doesnt seem to end the hospital appointment and operations. i wrote a few weeks ago about depression and how people cant get out of it. well ive been so surprised by the affect of not taking my medication has had on me. the last ten days have been hell withdrawl symptoms but it is like a cloud of...

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Question

Im going to cardioligist tuesday just want some advice. Im almost 4 weeks into my implant, 10 weeks after high risk bypass, and an ef at 20%. Started back to work last tuesday, was able the first 2 days not having to do alot, got tired and a little short of breath, thursday and friday I tried to do more work, well thursday i got short of breath pretty bad and light headed, friday got short of breath and dizzy felt like my head was numb I had done quite a bit of work, kinda of scared me cause i r...

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I'm new to this....

I just received my 1st pace maker 2 weeks ago tomorrow. Every time I get up and move around, I fell little electric shocks in my chest area....as soon I am sitting still, they calm right down. I said something to my doctor about this at my last check up and he said something about my heart & pace maker not working together. He has given me a RX of Diltiazem CD ER to control heart/pacemaker rhythms. It is not helping, that I can tell. This constant "flicking" feeling in my chest is driving...

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Good Information site

Good morning,
Just sharing a site I find to be very informational and easily understandable. Copy & paste the url in your browser window.

http://www.nhlbi.nih.gov/health/dci/index.html


I placed a short-cut link on my desktop for quick access. I hope you will find it as informative as I have.

"Happy Canadian Thanksgiving" to all whom this greeting applies!.....

Karen...from the Lake of the Ozarks.

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Today is the Day...

...of my 2 year pacer anniversary! And things are going great. Had a check on Monday and no issues--just some PMT's due to my upper rate setting and my new found love of running. LOL Thanks to all my pacer friends for their support over the past two years. I even got water baptized at church today on the anniversary of the new life He has given to me! How cool!

Happy pacing!
ela-girl

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Staying Healthy

Sometimes this whole pacemaker thing is weird for me. I've had mine for 16 years, but it was implanted when I was just 11 and so often I feel like Im learning things about it for the first time, things that if I had been implanted as an adult I would probably already be aware of. Sometimes thats a good thing and sometimes thats a bad thing.

I had a sucessful ablation done when I was 18 (I'm 28 now) so for all of my adult life I've really been able to ignore my heart condition for th...

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Boston Scientific Rate Smoothing PM

Does anyone out there have one of these?
Any opinions on this kind of PM?

I am scheduled to get a replacement of my current (faulty) PM and the doctor is suggesting this kind.

Thanks!
Chesca

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You know you're wired when...

Your device makes you win at the slot machines.

Member Quotes

My pacemaker is the best thing that every happened to me, had I not got it I would not be here today.