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Not prepared for the recovery tim

July 20th I had pacemaker surgery and like others who have posted comments, I was totally unprepared for the pain involved and the recovery time. I tried to go back to work one week after the surgery and ended up staying for 4 hours. That night I was in so much pain that I could barely handle myself. The next morning I went to my primary care doctor. They ran precautionary tests but basically said the pain is normal and that it can be 6 to 8 week for recovery. I was floored. Not one time d...

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New Website for Non Compaction

Hi everyone!
Just wanted to drop a line and say Hello!
The new website is up and going for non-compaction.
The purpose of the website is to help direct patients diagnosed with LVNC or non compaction to our support sites (as well as to the pacemaker club for ICD support).
The website is www.non-compaction.org

Hope you'll check it out!
Thanks-
Candi

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Less and Less Activity

Been awhile since posted anything, but do keep reading the site, in 07 had heart attack, full blockage on right, stented, later more stents another on right, one on left, damage to heart, had ICD put in 08, told in 09 not any thing else they can do for me as my arties are hardeing (please excuse spelling). except give medication. I am 69 years young. In the last three months since been put on Diovan, 80 mg once day, seems my engery level has been reduced to near zero, walking distance cut to le...

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pericarditis

Hi
2 hours after my first pacemaker implant, I developed pericarditis, the pain was hell - but now 2 1/2 weeks later I still feel some pain breathing, any one else have this happen?
I started walking, 2 miles at a time but breathing deep is still uncomfortable. Is this ok, fine - what do you think?
pat

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Taking A Short Vacation....

Hi Everyone...

Just wanted you to know that I'm feeling a bit better (stomach issues had me down since late April) and I won't be around for the next couple of weeks as my twin sister is coming home this Friday for a visit!!!!! I am SO excited.

Take care everyone!!

Pookie

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PICTURE OF THAT DINOSAUR

If you want to see a picture of the massive dinosaur that gave me such a shock type in in google
Dinosaur lands end
.the 5th hit down should read BBC-Cornwall- People walking with Dinosaurs. Click on that. Ref previous post Dinosaur Job. Cheers Peter

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Texting

Is texting while pacing really hazardous??????

Someone just told me that it was dangerous to text cinse I have a pacemaker. I text all the time, and I do sometimes feel kind of dizzy headed.

No one has told me this before. I called my doctor but they won't return my calls.

Help,
Trinity

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Coenzyme Q10

I just bought Coenzyme q10 today. After taking a 100mg soft gel, I got a headache and my mouth was a bit dry. I read the side effects of coenzyme q10 and headache is a side effect. Has anyone else had this reaction. If this would be ongoing I won't continue with it. thanks

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My grandma is getting a pacemaker

Hello,

I'm new to this site and I mainly joined because we just learned today that my grandma is getting a pacemaker. I'm not really sure if it's the pacemaker or the defi that she is getting, but my question is this.

Her son who is my uncle and like a dad to me had a heart attack at 41 about a year ago. He used to smoke a lot and so he has stents on his veins. We have not told him anything about grandma going to get this device and I'm not sure if we should. My uncle is pr...

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women with pacemakers

ok, how do I wear a bra???
I know what to do about the seat belt in the car but - it's over 2 weeks now and I want to go out, how in the world do you put on bra that the strap won't hurt??? Do I keep a bandage on the site? I'm hoping some one can tell me?I'm hoping too that when I get back to running that the bra strap won't hurt me as the miles go by and the strap moves?
thanks you
Pat

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How much of your pacer can you feel?

Now that I have recovered enough to get back into a regular work out schedule I am starting to drop the weight I put on post surgery (5 lbs so far) and I am noticing that I can feel every little bit of the pacer. I was told it was put in in the muscle but I can feel the outline clearly, feel where the leads connect and I swear I can even feel the leads themselves. I sort of expected it to be more of an indistinct lump not something when I can feel so much of the outline.

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Coreg CR & BP

I have been on Coreg CR for both heart and high bp. I still have morning hypertension that gets better later in the morning, but any stress or anxiety of any kind (like visiting the doctor:) and my bp shoots wayyyyy up. My coreg cr dose is one 40 and one 20 because a 60 is not available. My doctor does not want to increase it because of possibly going too low and feeling bad. Anyone else with that problem? Would appreciate your input. Otherwise I feel o.k. with the Coreg Cr, but I am concerned a...

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HELL OF A SHOCK

I work in a hospital that treats cancer patients that are terminally ill. Yesterday I was asked if I was willing to get involved in fund raising for childrens cancer reseach. I was told it meant driving a jeep towing a trailer supporting a walker who was walking from Lands End to John A Groats, that is the whole length of the country. The trip would take 8 weeks. I went down to the caravan site where the walker was staying and the jeep and trailer was parked. To my utter astonishment I was confr...

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pacemaker

yes i needed to know my mother in law had a pacemaker defubilator put in a month ago, she is 53 yrs old and she complains she doesnt' feel any better but her swelling and her color looks alot better. my question is she is lazy could this be part of it? should she be up moving around going places walking or doing something to get her blood flowing to make her feel better? she came in this weekend and she said it wore her out to walk across the mall, is this possible or is she using this as a exce...

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sub -pectoral implant vs just under skin

What would be some of the advantages and drawbacks of these types of implants. If deeper, I can be more active and not worry? Thanks, Steve.

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Home after head pain

Hi, I am home now after the shooting pains in the back of my head after being in the hospital for 4 days. I had a pacemaker put in on July 8th. They took all kinds of test, and all the results came back negative for anything. They even interrogated my pacemaker again. I have to see my primary doctor in a couple of weeks for a follow up. I think they believe that it will go away in time. One if my lympth nodes are swollen a little in that area around my neck, but they could not find anythin...

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SSD ?

Just a quick question...does having a PM/Defib qualify a person for SSD? Not that I want to have that qualification, just wondering. I don't have (yet) any other problems other than the cardiomyopathy. Thanks!
MsM

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MRI

HI
It has been years since i have been here. I have 2 boys age 9 and 8 both with pacemakers both where inserted at birth due to complete heartblock. My husband age 39 received his pacemaker in 2004. My boys are doing so great i take them every 6 months for their check ups and PM check ups. They call their PM Batteries. Both of them even play Rugby wich i will have to stop at the end of the year.

The reason for my post is that my husband was diagnosed with brain cancer end of las...

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Pregnancy and the Pacemaker

I am almost 26 and have been married for about 7 months. My husband has been with my from the first medical appt to the first pacemaker and now the replacement I had last September. Having children has always been important to both of us. Next September were going on a late honeymoon and plan on TTC after that. I have an AV block that is treated with my pacemaker. I am taking no heart related medication just something for my migraines which I plan on weening off of the summer before.

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Sudden pulsating sensation

Hi, fellow members:
I've got my PM implanted on the right side since 4 and a half years ago. Today I've had the most strange sensation. The muscles around the chest area of the implant, have begun to pulsate at the heart's rythm for a while, stopped and then begun again. This has lasted for some minutes,time to go to the nearest Emergency Room, where I've taken an electrocardiogram, that's been found OK. All the time I've been feeling well, and so I' feeling now,but the thing sounds ver...

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You read consumer reports before upgrading to a new model.

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I live an extremely normal life now and my device does NOT hinder me in any way.