Most Recent Messages

Heartbeat in armpit

I just had a new PM put in after 10 years as my battery life ran out. I have a Medtroic Azure XT and I bascally pace 90+ % of the time in the atrium but at my first check up I was pacing 25% of the time in my ventricle so they made a slight change to my settings. I am pacing a little fast but I feel my heartbeat in my armpit , not always , but enough to be annoying and with no rhyme or reason. Originally I thought it was happeneing mostly when I woke up but now it seems to be more random any...

Read More...

Advice for upcoming surgery

My daughter is 15 and will be having surgery in a couple days to implant a pace maker.  This is all very sudden for all of us and Im trying to learn as much as possible in a short time. 

She was diagnosed with third degree heart block last year after having Covid.  She has always had a normal heart rate in the past and now has complete heart block and her resting heart rate stays in the low 60’s.   At that time she was not experiencing any heart related sy...

Read More...

8 months after implant

I'm a 62 year old male, I'm 8 months in since my implant . I was asymptamatic when I received my implant. I feel  the same as I did  before I got my dual chambered device. No issues  what so ever. I am a welder and still welding with no issues. I did speak with a tech from Boston Scientific 1st before returning to welding. I have returned to doing cardio , somtimes getting my rate up to 160 .I was told to go ahead by my cardiologist.  If anyone has any questions pl...

Read More...

Biotronik Episode Code 13

Does anyone know what kind of "episode" is Biotronik Episode Code 13? I can't find an online resource that lists the codes.

Read More...

Not good, but not bad echo results

Hey ladies and gents... for anyone that was curious about my echo results from yesterday; it turns out that I'm still a 16. Not surprising considering my hurdles over the last 5 months. I thought I'd be really upset about it, but actually was grateful that it didn't go down. I'm sustaining...holding my own. That is good. 

The next step will be to up my Carvedilol to 12.5mg twice daily, as I'm on a pretty low dose right now. I'm not willing to experiment with...

Read More...

Neurological symptoms after pacemaker insertion?

Hi guys,

Going through a tough time with symptoms nearly 3 months after 2-lead PM insertion and would love to know if anyone has gone through anything similar.

I'm a pretty healthy 57 year old.  I was diagnosed with permanent A-Fib in the summer, and two months later had a successful Cardioversion which restored my natural rhythm but unfortunately led to bradychardia and HR in the low 40s.  After admission to hospital, and while still taking bisoprolol and amiodarone...

Read More...

Multiple Questions

Hello everyone 

I am finding this site an amazing source of information and reassurance. I have now had my PM for just ovr 2 weeks and have already had it reset twice - initially DDD but now in VVI mode because I had a lot of ectopics and the PM would fire off causing uncomfortable sensations in my chest. I am now symptom free but have been left in a rather anxious state generally and finding new things to worry about! 

The first relates to how much activity I can d...

Read More...

Medtronics

Just wondering if my Medtronics monitor needs to have anything done like being reset after it was done unplugged by accident?

Their website has very little information and they take weeks to respond to text messages...

Read More...

Battery End of Life and Safety Mode

I had originally posted this as a response to another person with a battery concern. I am reposting to the general battery forum since it seems to pertain to some other posters.

I am now at 3 months before my battery end of life. I have a Medtronic dual chamber for bradycardia and other issues. I pace 95% of the time in one atrium and 45-55% in the other. I have it set to adjust to pace more/at a higher rate when I am exercising (called adjustable mode, I think). This will be my fi...

Read More...

Tricuspid Valve Repair - Regurgitation caused by PM Wire

Hey everyone,

I read some of the previous forms around this but couldn't find any recent ones. I was wondering if anyone has any experience getting a valve repair? I haven't been able to find as much online about a repair vs a replacement. I am mainly curious about recovery and the patient experience.  I have had to get a wire removed before and it was brutal for me, but I have never had a valve issue until now. So mostly just trying to figure out what to expect.

&nbs...

Read More...

Organization for women with heart issues

Hi All, 

Want to share this organization for those ladies with heart issues and men who want to learn more about it for the women in their lifes.

 

https://www.womenheart.org/

 

 

Read More...

GENERAL CHECK UP

Hi all, hope everyone had a nice holiday. I recently saw my EP for a general check up and he changed the settings on my pacemaker from 55 to 60 which he then told me was normal. My last EP who since retired had my pacemaker set on 55 to save life on the battery. I dont know if its me or the higher setting but I feel im not sleeping the whole night and feel my heart more so since he raised the BPM. I was wondering if I should say anything or give it some time> my check up was 2 weeks ago.

Read More...

notifications

Today i recieved an email saying someone had posted a comment to my query of "vaccine".  Knew that was an old one looked it was from Oct.  Did PM that person  and suggested  that they post in the forum their question.  So that aothers would see and give answers.  As we do not generally look at ours or other old posts.  Nor at this point our  we notified about someone posting to an old query except the poster.

new to pace

Read More...

Heart rate with a new pm

First I'm 77, and do the treadmill every day at 2.5 mph.  Ok, no speed demon here. I had a St. Jude pm and routinely had a heart rate on the treadmill of 125 to 133. Two years ago I had it replaced with a Boston Scientific pm. Now my heart rate only goes up to 110 with the same speed of 2.5 mph. Is this a pm adjustment issue? 
M'Liz

Read More...

Help with AFIB I don't know what to ask for

I was diagnosed with sick sinus node syndrome and AFIB April of 2023 and recieved a pacemaker September 1, 2023.

Prior to the pacemaker implant I was taking 40mg lisinopril nightly. I complained of what I thought was cardiac cough and the cardiac nurse switched me to losartan potassium 50mg.

I had issues with this medicine (see note to follow) and then she switched me to clonidine .1mg which I also had problems with. At this point I told her I would rather take lisonpril and cough...

Read More...

Stupid Magnets

Hello! I'm new. I tried Joining 526236 times before and it never let me verify. But then I was like "what if my long name is the problem!?" And I was right!

So to celebrate I just wanted to say hi and introduce myself. I am a 35 yo dude who has a problem with passing out due to Vasovagal Syncope which is caused by a cocktail of conditions under the Disautonomia Family. I got my pacemaker installed the day before Thanksgiving, and I can almost sleep ony left side again. I a...

Read More...

General Anesthetic

Hi I'm new to the site 

I had a pacemaker and ablation surgery 18 month ago and now I have got to have surgery on my shoulder.  I'm worried about having it done the first private hospital said it could not do it but I have found one that says it can. Can any one tell me if they have had surgery after having pacemaker and ablation surgery and what the risks are.

 

 

 

Read More...

Boston Scientific Accolade Exercise Settings

I  enquired ( by e-mail)  from my hospital pacemaker physiologists  whether I could get  some relief from breathlessness on exercise initiation, which remains a problem for stairs, lifting, and the start of length swimming etc. Her kind response is the following:

"I am more than happy to look at your rate response again .I am aware of the Boston literature; however my personal experience is that the main benefit is in patients whose only form of exerci...

Read More...

An Exciting New Chapter for the Pacemaker Club!

Today, we are reaching out with an announcement that marks the beginning of an exciting new chapter for the Pacemaker Club. First and foremost, we want to express our gratitude for your continued engagement, contributions, and support for this forum that has helped so many. The Pacemaker Club has been a vital community for individuals with pacemakers for over two decades, and we are honored to be entrusted with its future.

Since the announcement last week that ForHearts Worldwide has ac...

Read More...

I Sometimes Have Panic Attacks Now

Hello fellow club members!

I just wanted to talk about a tough experience I'm having. I hope others can read about it and not feel alone with similar experiences.

I got my first pacemaker about 1 1/2 years ago, after suddenly beginning to wake up in the middle of the night feeling sick, only to pass out within a few minutes. This turned out to be due to vasovagal syncope with asystole, trigger unknown.

The first time it happened I thought it was just a fluke, maybe...

Read More...

You know you're wired when...

You’re a battery-operated lover.

Member Quotes

I am an avid scuba diver.