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how to create support group at local hospital

Hope you are all well!! and behaving?!!

I am thinking of setting up some sort of support network at my local hospital. When I had Gerry fitted last year I had nobody local to chat with or visit..... apart from all you lovely guys on here.... which I always recommend to new patients by the way!!! As you all know, it is a very scary, depressing time and I think patients need a shoulder to cry on from time to time....and general meeting up locally and chatting.... I am sure my new...

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Hope you like this one!

My 4 year old daughter and I were walking along and she stopped to bend down and pick up an M&M that was on the ground and was about to put it in her mouth. I told her to stop right away since we do not put things on our mouth that have been on the ground. She asked me why. I told her because things on the ground are dirty and have germs and once they are on the ground they should never go in our mouths. My daughter looked at me astonshied and said, "Mommy, how come you are so smart?" I thought...

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Pain in implant area.

I have had my pacemaker for a year now without any complications. Yesterday I started having pain in the area where it is implanted and it is continuing today. It aches and itches and every once in a while I get a sharp pinch. I would think that after a year everything would be healed up. Is this anything to worry about?

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changes after pm checkup

hello, i hope someone can help me with this one. I've had pm for 9 months now. i went on 11/10/09 for a checkup before that i was feeling great. the next night i start having a dizzy spell lasted about 2 to 3mins. again in am next morning a min or so. i'm wondering if it was just the small adjustments that will need to b gotten use to. they were only expanding the battery life kept the settint gs at 60 bpm. not doing anything at those times resting.

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wpw

it would be great if anyone had any imformation about wolf parkinson white syndrome and can it run in familys

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one anxious nellie

Hi all

nellie here, loopy lou wrote a little about me yesterday letting you know i am now a full anxious club member.

I have now had lucky inside me for 2 weeks and i hate the way the pacemaker is making me feel.

Last night was my worse night, my heart was doing crazy weird things happening, lucky clicking in.

i know i am very lucky to be here, i just can't stop crying.

nellie xxxxxxxxxxxxxx

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commented should have posted message

Hello

I posted another message titled nightsmares. unfortuneately after reading a comment I forgot to scroll down till end write new message so it became another comment - so if interested in reading this message look for comment under.my first post (forgot name) written by Laura P.

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Health Update

I have not been feeling great this fall. I visited my cardiologist last month and got some good news and not so good news.

My pacemaker is working fine. My doctor tells me that I should not have open-heart surgery to replace my pulmonary valve. I've been considering doing it to feel more normal and also to play more sports. The reason she advises against it is because I have a relatively good quality of life and she expects a new procedure called “percutaneous pulmonary valve repla...

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heh, go figure

Well, I don't know when exactly it happened, but it was sometime this week. At some point during this past week, I stopped hating my pacemaker. Now, I'm not saying that I like the little turd, but the urge to cut it out is no longer there. I guess it just comes with the realization that without it, I would be dead by now. Either way, over the last couple days, when I think about it, I actually don't get depressed about it anymore, it just is what it is. Just wanted to update ya'll as so man...

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Any Pacers in Shropshire / Midlands area of UK

Hi everyone,

Was just wondering how many members there are out there from the Shropshire / Midlands / East Wales as im South Shropshire.

Thanks Hayley

Ps See my profile for my info

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New ICD

I got my ICD put in a week ago. Can anyone tell me about how long the site will be sore? I am so scared I will do something to mess it up. I also have other problems that make it hard for me to stand without using my arms. The doctor said I could push just not lift but I am still scared. I also read where a gal had a panic attack on here. I did that too and looked on paper had 3 of symptoms so went to hospital after calling. That is all they could figure out it was. This is all so new to me I am...

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lead removal

I have an atrial lead that is bad( impedance has gone up significantly) and has to be replaced.. Has anyone else had this procedure done? My lead is 13 years old and I am expecting the doc will use a laser to remove it . Any insights about the removal procedure? Thanks

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Impedance

Frank, Smitty, or Inga... can you explain impedance to me? I know it goes up at the end of battery life but don't understand what it is. My report today says 6-9 months battery life left but the tech said it'll be more like 2-4 mos since the impedance jumped from 2 to 6 this check. I go back in Jan and plan to ask to have it replaced at that time (Jan is not as busy as March and April, lol)

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A Big Thanks...and a Long Story

To all of you that have helped me through...thank you. I am 10 weeks post implant today and am getting better. I am still having desperate/high anxiety moments (as I did last night). And thank you to those who checked in with me last night to help me get through it. Knowing that there is a support system here helps and my appreciation goes deeper than I could ever tell you.

I called the EP office today and to my dismay was completely blown off by the nurse practitioner whom I asked to...

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why do u have a pm?

heyy...=D
i was reading the postings and people are like i got my first pm in last week and i'm kinda wondering why u get them mid life?
like i've had mine since 198mths and have had it changed because i had three holes in my heart as a baby so i got a pacemaker....i really should find out more on that but any way.

My question is what reasons are people getting pm's for and like when was ur 1st ne and stuff like that...... thenk.....
=]
ballerine.nm

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For Ladies Question

Hello Ladies,
Question: Can I use a battery operated home electrolysis machine ? Its used for hair removal or does anyone go for laser treatments at the doctors office for facial hair removal ?

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As I recall.........

or more aptly as medtronics recalls - my recalled lead snapped last week end - ( the only symptom being the defibrillator firing harder than normal, but thankfully just once. Monday (when the pacer interogation revealed the condition of the lead) I found myself going to the hospital instead of to work. 15 hours later I was home - with a new unit and lead. The medtronics rep says they will pay $2000 towards the replacement cost - Has any one out there dealt with medtronics to recoup costs...

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all new reference points

Hi Everyone,

This my first contact I have had since my surgury 2wks ago. I talked to family and friends about how I feel totally different. I feel like II finally and maybe for the first time. Looking in hindsight I may have started to have this as a teen but since it wasn't constant and only slightly a problem (ya only slightly< hmmph)I wasn't even checked for it. My friends laughed at me for walking as if drunk and having to look down at my feet to walk. For about a decade I thought...

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Work in powerplant

I was searching trying to find information on ICD/pacemakers and electrical generating plants.

I will be getting a ICD/pacemaker in a few weeks. My job requires me to be in large hydroelectric poweplants. I do not work on the generators but are around them. I asked my doctor about this and he said he wasn't sure but the manufacturer should know. I have no idea who the manufacturer will be. Anyone have any info on this?

Thanks

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born with heart condition

hi im kelley (kellbell) i joined recently I was born with a heart condition and had open heart surgery in 2002 and was fitted with a pacemaker afterwards. post me a comment and let me know about yourself. thanks!

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You know you're wired when...

The mortgage on your device is more than your house.

Member Quotes

My pacemaker is the best thing that every happened to me, had I not got it I would not be here today.