Most Recent Messages

To HAIR Or Not

Your not gonna believe this, I don't. My hair has been falling out rapidly. So I go to the Doctor and he says, "its due to the lack of oxygen caused by my heart condition". Has anyone ever had this happen to them?

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Medical Alert Tattoo

I'm not a fan of medical bracelets, or just bracelets in general so I've been thinking about a heart tattoo on my inner wrist with the pacemaker symbol inside. Has anyone ever did this? I was told by my doctor it would be a good idea to wear a bracelet since I'm so young but since I've had the device I never end up wearing it like I should. So I figured a tattoo would be the next best thing, but i'm a little nervous since it will be there forever....let me know what you think:-)

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Hi

Hello friends
I have not been on here for several months due to not feeling too well again.
About 4 months i went to my pm clinic with a problem. Over my pm site there seemed to be a swelling which was very tender to touch. The technician just said that the doctor would laugh at her if she called him to see me and nothing was wrong and sent me away with a 12 month review appt. This pm was inserted Dec 2004 my second one. First one inserted in1987.
Since then i have had trou...

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pacemaker,jaundice,blockage in liver

I spoke with the doctor and there are several masses blocking his liver duct's presumed melignent. They are sending him a=back until he can have a biopsy in 1 week. ou would think there would be urgent basis. But there is a waiting list. No one can find any informationon his pacemaker. I'm trying to contact the institution he had it done at. I know they won't give me any info. I've called lawyer'[s. I didn't tell my husband that they think its cancer & there are several masses. He is in too m...

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pacemaker/umbilical herniation

My husband had the ct scan done. Had been severely sick since. Bloated,turned severe jaundic,hypo-glycemic. Then in that week the bely button herniation. I've been checking the internet & my nursing books. But anything someone could add would be appreciated. He is in hospital & they want to send him home. Blocked liver duct, cancer?But it all seems to tie into the pacemaker when checking the web. I think he should be sent to Toronto. they have him in Kingston east caner hospital learning dr. w...

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any help

i have this strange feeling come over me it is a feeling i cant explain realy empty feeling in stomache i am alright one day then the next day good for nothing.i feel cold and fatigued just want it to go away i am 5 weeks with my pacemaker still get thumping sensation left side under ribs not so bad now as have not been doing much

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such a blessing

Well i have my little blessing!!! A litle boy named Landon Oliver he was three weeks eatly. 6lbs 10oz 20.5in long. So everything was great.....i loved being pregnant!!! One problem. I started feeling like i couldnt catch my breath. Which i just put off to being pregnant. It just kept getting worse and worse. I ended up making it till 36weeks and 5days. I went to the dr to get an echo....just to make sure everything was okay for delivery. Well when three drs walked into the room i knew something...

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Amiodarone

Hi there!

I started Amiodarone at the end of February this year. Since May I have reduced the dosage bit by bit; this is the first week with just 600mg/week (taking it mondays, wednesdays, fridays). I saw my EP on Monday, and he said that if I'm doing well with such a low dosage there won't (most likely) be any bad side-effects. I was wondering what your experiences are. What was the lowest dosage you did well with, and were there really no side-effects?

The thing is that...

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Pookie & Lloyd

Hi Everyone.

First, thanks for everyone who sent Lloyd & I messages when he was sick: as he got Swined :) He is very much on the mend as of today, thank goodness. He was a bit of a cranky patient!!!

Secondly, I need to vent so please bear with me: I feel SO alone and cry a lot because I am so frustrated. With that being said; I haven't been on this site as regularly as I had hoped because I have SO much on my plate. First the puppy was sick, then he passed it onto both...

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SSS and AV block too

Hi to all!
After exchange infos with Frank and Inga for a while I give you my news: I was today with my cardiologist for a PM control and we talked about my settings and of course about the symptoms I had and still have. And taking care of your advice, I asked him why I was been stimulated on the atrium and the ventricle too: I do have SSS but also AV nodal dysfunction (Av block).
Therefor I have a dual chamber instead of a one chamber PM and also the reason of the stimulation on both....

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12r. old son needing battery and lead

I POSTED A COMMENT EARLIER ABOUT MY SON RYAN, WE LEAVE FOR DUKE HOSPITAL ON THE 9TH , MY LITTLE BOY HAS HAD A PACEMAKER SINCE 15 MN. OLD, HE HAS A 3 LEAD PACER NOW, BUT THEIR TALKING ABOUT A PACER/DEFIBRILLATOR THIS TIME, JUST WONDERING IF ANY KIDS/ TEENS HAVE THIS ALREADY.
EVEN THOUGH I JUST SIGNED BACK ON THIS SIGHT I WAS ON SEVERAL YEARS AGO WHEN RYAN WAS 7 I RECEIVED SO MUCH SUPPORT AND WAS SO THASNKFUL FOR THAT. I HOPE SOMEONE CAN HELP ME NOW, AS RYAN HAS HAD 6 HEART SURGERIES BUT I AM...

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12 yr. old child needs replacements

MY NAME IS CHERYL, I HAVE A LITTLE BOY RYAN WHO IS 12, HE HAS HAD A PACEMAKER SINCE 15 MONTHS DUE TO TWO DIFFERENT HEART DEFECTS WHEN HE WAS BORN, HE GOT A 3 LEAD PACER AT 7 YR. OLD, AND NOW ON NOV. 11 WE GO TO DUKE HOSPITAL TO GET A BATTERY AND A LEAD CHANGE, THEY ARE TALKING ABOUT PUTTING A PACER WITH A DEFIBULATOR IN HIM, DOES ANYONE HAVE ANY INFO, ABOUT THIS KIND OF PACEMAKER ?

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another doctor's appt in the morning

Hello everyone! I have posted before and gotten a lot of great advice. This club has helped me so much. My last post was about not being able to exercise. I had my check-up two months ago and my heart rate was 155. The doctor said that is why I am having such a hard time exercising. We did a monitor and it is staying around that rate most of the time. It is either sitting at my setting of 70 or high. It does go up and down a lot. The doctor said that within a matter of three minutes it had jumpe...

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What's Wrong with me cont.

Hi, I am feeling somewhat better. My short term memory is still a bit off, but I am better than I was. I have called the Doc. and they can see me on Monday next. He isn't sure that it is my heart so we will get it checked out.

I would like to add that your comments and suggestions meant more to me than you will ever know. I felt awful, I was home alone and you all were here for me. I want to thank each of you. Your encouraging words, your advice and suggestions, each one I carefully c...

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Phone Checker

Today I got the phone transmitter in the mail and I completed the checkup. But when I put the magnet over the pm....it felt strange. Like my heart was beating harder, thumping harder...I asked if it was supposed to "feel funny" and the lady on the phone said no...not really.

Has this happened to anyone else?

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liftin weights

just wonderin does anyone lift weights im 22 and want to get back into the gym

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liftin weights wit a pacemaker fitted

just wonderin does anyone lift weights wit a pacemaker fitted and could gave me a some advise im 22 and want to get back in the gym

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What is wrong with me????

Am loosing my mind? That is the question of the day. My sort term memory is gone! I can't remember if I mailed something, lost it, or completed it? This is making me feel just like before the pacemaker. I feel panicked and dreadfully full of that awful feeling of doom. I think I want to cry because I still know I should "know" things. I haven't felt this way in a long time. I am due for a new pacer soon but I was fine 2 days ago, but now I don't know!
If I call the doc he will think I am b...

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BILLIE

I AM HERE IN CHAT. I NEED TO TALK WITH YOU PLEASE JESSIE

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10 yr old with pacemaker/ defibrillator

i babysit a 10 year old with a pacemaker/ defibrillator, she in on her second one now. she got it when she was 5 or 6 i'm not quite sure. but recently like last month she had to have her first one replaced and now lately i've noticed changes in her. she is lying about if she ate or not like she tells her mom she's eaten breakfast here and tell's me that she ate breakfast at home. things like that. so i'm worried about her. i know there is not a lot i can do because i'm not her parent, but i figu...

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You know you're wired when...

You have a maintenance schedule just like your car.

Member Quotes

I had a pacemaker when I was 11. I never once thought I wasn't a 'normal kid' nor was I ever treated differently because of it. I could do everything all my friends were doing; I just happened to have a battery attached to my heart to help it work.