Most Recent Messages

Post Message!

OMG...the WRONG pacer!

Hi all! I went on March 27th for a new pacemaker finally after 11 years. I was so excited because the ones of today are so advanced over the ones 11 years ago... Well, my Dr. and I decided on a Medtronic, I did have a St. Jude "recalled" pacemaker so getting the Medtronic was exciting for me lol. Anyway, she was not doing surgery the day I was to get my new one so another Dr. did the surgery. Come to find out he put a Boston Scientific in instead of the Medtronic! I was livid to say the least. I...

Read More...

Pookie Update

In my last post (in response to a post by Arabella, my dear friend) I explained why I went to the ER on Wednesday and what was done (and not done) and what was promised.

WELL...the pain down my arm got worse, the numbness spread into my entire right side of my face, so I ended back in the ER again yesterday!! This time is was from 8pm last night until 9am this morning. BUT...this time I got a doctor who did blood tests, which are all fine, and he did a CT scan of my head....which is...

Read More...

Anyone being woke up with head rush things?

Hello,
Ever since an adenosine stress test after my pacemaker I have these strange electrical surge feelings and head rush things at night. Has anyone else had the same experience? The cardiologist says the pacemaker is fine and the adenosine goes out of you fast but I know what it feels like and it feels like the painful electical rush of the drug opening all the bloodvessels at once. I have not felt normal since the test Feb. 11th. If anyone else has had a similar experience I would l...

Read More...

Dinner for Peter

I will be having dinner in memory of Peter on Wednesday. My husband and I are not people that go out much. So, I am going to set the table and make a nice dinner for us and set a place for all my pacemaker friends and Peter, Nina and daughter. Anyone who wants to join us is welcome. We will hold our glasses in a toast to a wonderful friend.

Read More...

electric toothbrush

Hi All

Does anyone use an electric toothbrush? I was using one for a while and wondered why my heart always jumped about while brushing my teeth - I then realised it could be the toothbrush interfering with my pacer. I hate using a manual brush but am a bit concerned now, are electric toothbrushes safe to use?

thanks

Read More...

sinus node syndrome

Hi All

I was diagnosed with sick sinus node syndrome and had a pacer fitted - does anyone know if this develops into (CHF) or if it is something that gets progressively worse? I have been feeling a lot of pauses lateley and am a bit worried.

Thanks

Read More...

ONLY A YEAR LEFT

I went for my pacemaker clinic this week. The nurses told me I have one year left on my pacemaker. So exactly, what does that mean ? I am confused. Does the whole pacemaker get replaced or just the battery ?? I have had mine since 2002. Could someone explain, one pacemaker club member to another what happens...... thanks

Read More...

Just Checking

Nothing has changed on the site is several hours and I am just checking to see if it is still active.

Read More...

New Pacemaker help

Hay,
Im 16 just had a new pacemake on wednesday. Came home yesterday. Im obvioulsy a bit sore but it feels like i have a massive bulge or something in my stomach not like my last pacemaker. Also i keep twingin like jumping sort of a spasm.
Has anyone else felt like this?

Read More...

Baby it's cold outside!

This morning started out COLD!!!! Burrr, then it turned to a freezing rain... then the dreaded sleet! and now the WIND!!!! I watched all this happen while at the beauty shop getting my hair "highlighted" because if I am going to be stuck at home I like to look good! ha ha! =)
We are forecasted to receive 12 to 15" inches of SNOW!!!!! A BLIZZARD!!!!!!!
My goodness where has Spring hidden itself? This has all happened in a mater of a few hours. The temp has now dropped to 29 degrees...

Read More...

Off Topic

This has been a sad week for pacemakerclub members in regard to losing members. I also experienced an unexpected loss when my husband of 44 years collapsed and suddenly died today. There are no words to describe the pain of this. I was the one with the heart problems...not him. I guess we never know what lies ahead for us.

Please hug those close to you and express your love for them. And don't take anything for granted!!!

Love you,
Suze

Read More...

Should I Be Concerned?

I have been doing really well as far as my heart rate is concerned since my complete sinus node ablation in November. The ablation left me pacemaker dependant...I pace 100% in the atria.

The low setting on my pacer is 70 bpm. All through the night and this morning, my rate has been over 100 bmp. This has not happened since before my ablation. My resting rate is ALWAYS 70 because of the pacer!

I am having constant, dull chest pain. My heart beat feels very forceful, and I c...

Read More...

peter's dinner

i will attend next wed. night at 6:30 and raise a glass to peter in his memory. thank you for the great idea susan hugs xxx jessie

Read More...

In memory of Peter & Debbie....

What a sad couple of weeks. I think this must have hit all of us so very hard and as I type, I am very upset.

Anyway, I would love to join you all for dinner on Wednesday 1st April 2009 in memory of our dear friends......

I have decided that my family are going out for dinner. My hubby and 2 children - and we will take photos of the evening and will post them on here..... hope I don't have spinach between my teeth!

Hmmm, bright top eh? ok will see what I can...

Read More...

we just got bk

hi all well ive managed to get a ptint out of hubbys pm check and i dont under stand a thing it says so here goes hope someone can help
here goes
atrial lead impedance 566
ventricular lead 405 impedence
voltage 2.78 base rate 60
rest rate off
a pace on pvc
pmt detection rate 110 min
im trying to understand it all

Read More...

A Prayer for all of you

Hi everyone, this was sent to me by some that cares dearly for me and when I read it I thought of all of you that are having challenges and thought I would share it with those that inspire me. Kathy

The prayer:

Father, I ask You to bless my friends, relatives and those that I care deeply for, who are reading this right now. Show them a new revelation of your love and power. Holy Spirit, I ask You to minister to their spirit at this very moment. Where there is pain, give t...

Read More...

Follow up to Blood loss

Hello

thankyou all for your coments, here is a follow up i went to see the surgeon today and i am haling well,but now i am consider anemic and taking iron and i also have some major swelling my feet,ankles,legs,hands and face are swollen ,the dr says you might be in congested heart failure due to blood loss and he is also concerned about blood clots so i am having a dopler study tomorrow to check for blood clots,i talked to my reg primary dr and they said i should go to er to be eval...

Read More...

Dinner in Peter's honor

Hi everyone,
The dinner in honor of Peter will be on April 1, 2009. If you would like to join me.... please dress properly, enjoy a fine restaurant wherever you are and raise a glass in his honor. A spot of tea, wine or whatever you would like to honor Peter Nash with.

I will be looking forward to seeing the pictures!

love, Pacergirl

p.s. Don't forget ladies... Peter loved beautiful bright tops on the ladies!

Read More...

more word of wisdom

do what makes you HAPPY be with who makes you SMILE LAUGH as much as you BREATH and LOVE as long as you LIVE you are the AUTHOR of your LIFE if changes are needed make them take care my pacemaker club friends tee x

Read More...

Swelling ok implant site

Anyone wake up swollen near their PM site?? I wake up really swollen but then as the morning goes on I am back to normal?....
Lately I have been a tummy sleeper could this be the problem? I am almost 2 months post implant...
Thanks
Renee

Read More...

You know you're wired when...

Muggers want your ICD, not your wallet.

Member Quotes

So, my advice is to go about your daily routine and forget that you have a pacemaker implanted in your body.