Most Recent Messages

Help us start a List!

Ok. Many members have been asking about all those initials and abbreviations that are always floating around this web site being used like they are common vernacular. SO...I suggest we help each other out and post what we know so that reading posts will be easier (and maybe we'll all get a little bit smarter in the process)! :) I'll even start!

VVS = vasovagal syncope
NCS = neurocardiogenic syncope
SCD = sudden cardiac death
BPM = beats per minute

Now it...

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EP visit

ela-girl and randrews, you asked me to keep you posted on the EP visit. I can't seem to get the private messages working so I will post here. Visit went well, the ep says I have VVS. He is taking me off all meds and he raised my bpm to 70 (was 55)for now. I keep getting light headed or dizzy episodes caused by v v s and he feels that by raising the bpm that will help get me away from them. When I have not had any for awhile he will start lowering the bpm. If this does not work he said we can try...

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guest speaker

The Hospital for Sick Children cardiology department is having their annual gathering in September 2007. We would love to host a guest speaker who is also a famous (or not-so-famous) pacemaker recipient. We are looking for a sports person or a singer or someone who tends to be inspiring. We usually host a guest speaker, last year it was a magician, illusionist.
We have about 100 children and their families who attend. It is run by the fabulous medical team at HSC.
Is there any way...

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cat scans and pacemakers

Hi,
I just wanted to know if anyone ever had problems when they had a cat scan? I just had a cat scan today, I have had many in the past, so I'm very used to them, but today something strange happened, I was fine when they were scanning me, but when the machine started moving around me, I felt my heart starting to beat hard, it reminded me of when I have my pacemaker turned off to see how my heart is beating, It was getting harder and faster, so I told them to stop, they thought I might be...

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HRT and pacemakers

Are there any ladies out who have a pacemaker and who also take HRT?

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More Questions!

I went back in yesterday for another visit. I put off going to the ER the night before because I knew that they couldn't do anything for me. I have had my pm for 7 weeks now and this entire time has been up and down for me. My heart has started to do most of the work and has gone back into tachycardia once again. I didn't think that this would be possible as they have burned so much of my AV and SA Node. As they changed more settings on the pm they told me that overtime I would just start to ada...

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Getting a replacement....

I was told yesterday that its time to replace my 6 year old Guident dual chamber pacer out. The doc has decided to replace it with a Medtronic. Just curious if any one has a Medtronic and has had any issues with it. I'm not too comfortable with Guident any more because of all the issues they have had over the last couple of years but I don't know anything about Medtronic and what kind of a track record they have.

Thanks,
Janice

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Spring is finally here and it's time for some Golf

7 months post op here with a dual chamber St. Judes PM for a 3rd degree heart block. Had it installed just before October and when I posted then, it was the end of the golfing season here in snowy western PA. It was a long winter and oh did I have cabin fever. Today was about 70 degrees and sunny so it was finally time to test the golf swing... I have read many posts about golfing with a PM in and really had no concerns about it, especailly after 7 months of healing. I did however call my c...

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2 lead to 3 lead

First of all special thanks to Smitty, Surferman, Suze for your posts. It is a comfort to hear from other folks in similar situations. My husband wants to know if anyone here has had a 2 lead changed to a 3 lead and if so how did it go? He's pretty much decided to go through with it as there isn't much choice at this point. Again this evening he was having trouble, but we hopefully avoided another ER trip with the nitro spray. I'm going to try to call cardio tomorrow and see if there is any...

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Marathon Success

Just so everyone knows, you can maintain an active life with a PM. I just completed my first ever 2007 Boston Marathon in 5 hrs with no issues or complications. I also trained with the Polar F2 heart rate monitor without issue. What a feeling crossing that finish line !

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I'm Back

Hello Everyone!

I've been away for a while as I have been busy taking care of my Mom who after four months after my Father's death and my PM implant began suffering with a bit of depression and anxiety.

My Mom has always been a very strong woman when it comes to moments of crisis, she has always been someone's "Rock of Gibraltar."

After the crisis of my Father's death and my surgery passed, the reality of my Father being gone and all the concerns of being a new...

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Newer Wires in ICDs May Have More Failures

Implanted Defibrillators: Wire Trouble
Study Shows Newer Wires in ICDs May Have Higher Failure Rates Than Older Models
By Salynn Boyles, WebMD Medical News

They were supposed to be more reliable, but the wires now used in devices implanted to protect the heart actually appear to be less reliable than earlier versions.

In a newly reported German study, the annual defect rate was as high as 20% after 10 years of use for wire leads used in implantable car...

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Plastic Surgery

Has anyone ever had any plastic surgery done – perhaps some kind of fat filler around the ICD – to minimize the appearance of the "lump" you see from the device? If so I'd be interested to hear your experience. I don't even know if this sort of thing is done but I thought I'd throw it out there.

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Support Groups in Rhode Island

Does anyone know of any support groups in RI or maybe even Southern Massachuesetts? I am a 44 year old female ane would love to find other people to talk with!

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unsuccessful lead revision

Hi,
Am 16 mos. post PM implant for 2nd degree HB and vaso vagal syncope. Went in to have my ventricular lead replaced due to a gradual decline in its sensing ability but my Ep found scar tissue and new capillaries had grown around the lead where it enters the vein totally blocking it. After 1 1/2 hrs. attempting to insert the new lead he gave up and closed.

Now before removing the old pm and inserting a new one on the opposite side he'd like to do a tilt table test saying this...

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Three strikes and you're out!

Has anyone had this experience? In the past 10 months I have been into surgery, first to implant the PM and then to repair the leads twice. In each case I have become very ill two days after returning from the hospital. I mean sick in bed! No appetite, weak, sick to my stomach for two or three weeks! The Drs can't figure it out. They say you must of caught the flu in the hospital. Three out of three times? Could a PM make you sick like that in recovery? Help

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Followup To First PM Interrogation

Took everyone's advice and contacted my cardiologist yesterday about the chest pain being caused by the rate response being turned on last week during my first PM interrogation.

After some discussion, my cardiologist agreed to my request to turn off the rate response, due to chest pain. He did say that my heart's internal pacemaker will raise my heartrate without the PM, so there was no critical need to have the rate response turned on.

It was the opinion of my cardiolog...

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Fluoroscopy

I have moderate to advanced arthritis in one of my hips and tomorrow I will have a fluoroscopy with cortisone shot. I was wondering if any of you have had this done and if it gave you nay problems with your pm. Also, did you have to take antibiotics before the procedures. I have to take that for any dental work.
Thanks in advance.

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lenora

again anyone hear from Lenora. I am getting worried. My memry is bad was it her sil or jessies that has the cancer problems. My prayers to them both .Anyone ,help please I need to know she is ok.
Susan

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changing from a 2 lead to a 3 lead

Hi everyone, I recently posted because my husband has been having bouts of CHF and several trips to the hospital because of fluid build up in his lungs. A little reminder on background - he has had cardiomyopathy for about 9 years and last Oct. had a Medtronic 2 lead ICD implanted because of v-tach. Now because of the CHF and it seems they are out of options other than a heart transplant our cardio wants us to talk to the EP about changing this one out for a bi-ventricular (3 lead). He is so...

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You know you're wired when...

You have the perfect reason to show off your chest.

Member Quotes

A pacemaker suddenly quitting is no more likely to happen than you are to be struck by lightening.