Most Recent Messages

Shortness of Breath

I had pretty severe shortness of breath which was my primary symptom that led to the PM. I have been fine for a year with my PM. Over the last two weeks or so I have had bouts with shortness of breath again and they are getting more frequent. My PM was just checked on Thursday and they say it is fine. Anyone ever go through this? I have an appointment with my PCP on Friday.

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pacemaker location problem

hi all,
this is my first post here,as i felt that this was the place where i could share my concerns.my 2 yr old niece was born with a slow heartbeat.after doctor's advice ,a pacemaker was implanted on her leftside on 07/13/07.after a month, today the doctor tells them that her tissues are not growing,so they have to relocate it somewhere near the stomach in a couple of days.she is in India,and is being treated at the best hospital from a doctor who studied here in the U.S.we are all ver...

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To Smitty

Hello My Friend,

Thank you for your recent postings on several subjects and your words of wisdom. When you post it makes everything right in MY world. I especially like your last posting under the Religion & PM debate. You summed it up extremely well and I appreciate how well organized your thoughts are. I tend to be all over the place. This topic has created some of the most interesting responses in a long time which is very healthy. The number of "reads" is really up there! W...

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Anyone here from Vegas

I am going to Las Vegas next week and just wondered if any of our members are from there. It would be fun to get together with someone from out of my area to talk to and meet while there. It is nice to meet people with similar problems and find out we are not alone. I have Bradycardia and VVS. No other heart problems. If you reply I will send you a private message and let you know where I will be staying. Bowlrbob

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strage feelings

hi everyone already put this essay on but in wrong place. Its been 4wks now since l had PM put in,had check up with doc tor, had check up with clinic,all seems fine, so why is it that l still get the strange feeling l used to get before l would blackout? Which l can only descibe as a swimming in the head and tingle in the ears,hot sweat up my neck and hands last 3/6 seconds. l'v mentioned this to docs and techs they say l might be over sensitive but it is a worry should l be more concerned or is...

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Laying on Leftside

Hey there, I am new to the group. I got my pacemaker a couple of years ago. I recently starting having weird heart beats when I lay on my left side. It is inconvient because my baby monitor (video) is on that side. So I have to lay flat and turn my head. Has any one experienced this?
Thanks :)

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Where I am going next

HI everyone,

I am still in hot pursuit of the right care, but I believe I may have found a place that is willing to step out and take a chance to help me! In the next few weeks I should have an appointment to another medical center in another state.

So far with talking with these folks, they seem like they really want to try to help me. I am looking forward to it, and as the spiritual person I am, I think there may be some divine intervention going on here too.

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Doe's anyone fell this way

Its been 4days since my PM was put in and i feel really spacy all most like I am on L.S.D or stoned. I feel really wierd about my perception of my suroundings, its like I am out of body. Has anyone felt like this do to the surgery or is my head just playing games with me.

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Hi Folks

Got back from the mainland last Friday. We had a good trip and it was great to see Kay (Rewired Aussie) Unfortunately I was still suffering the effects of flu and my energy level was so low we only saw each other for about an hour. All is not lost I am spending a week in Melbourne on my way back from New Zealand in November and have set aside the five days so we can have some contact again. It was nice to go away and nice to come home again. The weather here is freezing cold at night but su...

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Elliptical?

Hi- do you guys know how long we need to wait until doing the elliptical trainer (the one without using your arms)? I am walking and riding the bike and it feels great! I am anxious to do the elliptical. Also, any hints for sweating to keep the area dry? I know that I need to keep it covered in the shower for a month but does that also apply to sweating? Any ideas?

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Private Messages

Admin. and others...I was just wondering if those of you who have recently used the private message feature on this forum have had this problem: I go to enter the person's name to send a message to and it says in red next to it "invalid user" when you KNOW that isn't right (re: that person exists on the site and is an active member)? I continue with the meesage anyways and then send it hoping it sends--and it seems like it has. The message pops up in my 'sent' folder. I haven't heard back fr...

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VasoVagal Syncope

Tilt Test was positive, all Heart Test Normal, wearing belt for a month, then may have implant machine for a month. Cardiologist not so sure syncope since it only happened after the medicine was introduced. I have passed out this year over 12 times. Blood Pressure and Heart Rate Drop and then I hit the floor with my face no warning.. Am I a candidate for pacemaker if Belt test and machine in test so nothing.
DesertRose

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Backpacking

Hello I love to go backpacking but after a recent trip to isle royal national park I'm afraid I'll never be able to do more than day hikes. I could never get my pack in a comfortable position that didn't irritate my pacemaker site so I ended up wearing the shoulder straps down around by upper arms which was brutal. Has anyone out there found a backpack that's design is pacemaker friendly? I've looked at lumbar packs but haven't found any with a capacity for more than just a day hike.

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Thank YOu For THe GREAT Comments Everyone!!!

Thank you everyone that commented about me riding my Seadoo again! It makes me feal GREAT to know that there are alot of us "Young" folks (lol) still having a great time! Many of you sound like your even more active after pacemaker implants. WOW! God Bless and KEEP YOUR SENSE OF HUMOR!

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Religion & Pacemaker

Hi all,

I have waited over a year to post this. I still have not gotten over the event and want some feedback just to ease my mind.

I met a neighbor at our pool last summer. We did not know each other except in that aspect. Our children are of different ages but got along well.

One day, she noticed my scar from my bathing suit and asked me what had happened. I said in a very casual manner I have a pacemaker implanted. She turned dreadfully pale and her face...

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What 65 means

My son found this website for me and encouraged me to join. I have to tell you though that it will be my son or husband who checkes the site and writes my questions and replies. In fact my son will guide me through this process since the internet and computers are something i know very little about. They can do the internet and I'll do the cooking. I always say: "stay with what you know".
Anyway here's some of the details of my pacemaker: Got it in November of 1991, after the operation I w...

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New member- a few questions

Hi,
I just joined this forum, thanks already for the helpful information.

I'm female and in my 30's and I got a pacemaker 3 weeks ago. I had a few cardiac arrests and went to the ER, so there wasn't much planning involved. The surgery was fine, but I ended up with a significant pnuemothorax, which bought me a few extra hospital days and a really fun chest tube. There's no real reason for the CA, except bradycardia and a funky sinus node.

Anyway, I want to know if anyo...

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phanthom strikes again

i jumped out of bed it was really weird my chest hurt i had shortness of breath my bp 98/52 hr 55 my head hurt i went and had my device checked no problems where found this is not the first time within 15 mins.my hr was78 my bp 128/70 i have had this thing(st.jude v193) since 01-15-05 and have pulled my leads out 06-06 my real shocks have come while i was asleep and i jumped out of bed........murf

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exercise restart

I have a Class I heart block which is being corrected with a pacemaker. I am inerested in the experience of others as would regard exercise restart and any limits that are known. I do use a pulse monitor during exercise and adhere to aerobic pulse rates.

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Sorry for not posting lately!

To all the new people on the site which seems to be many I want to welcome you all.
Still haven't been up to par lately and haven't been having as much energy as I wish. I have also been a little down more lately as I am 21 and fighting this battle all alone or atleast sometimes it feels that way. My sister is more support line and as she is getting farther along in her pregnancy she hasn't been able to keep up with me as much. I saw her this past weekend and she gave me a lot of encoura...

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You know you're wired when...

You make store alarms beep.

Member Quotes

My ICD/pacer is not a burden. I still play tennis and golf.