Most Recent Messages in Coping
ICD Sparked 28 times
My mother-in-law (70 yrs. old) had an ICD implanted November 2010. 3 weeks later it sparked 28 times. She spent 3 weeks in the hospital/rehab after the incident. Her heart rate & bp are controlled now but she is petrified (can't blame her). She lives alone. Some days are better than others but she is scared to be alone most of the time. She complains of soreness ("like a sunburn") on her sternum. She also complains of her left breast (the side the icd is on) feeling very heavy; so much so she ha...
2 Sisters with SVT?
- by Elzbeth1017
- 2011-02-17 11:02:50
- Coping
- 3175 views
- 5 comments
I will have had my pm in 2 years next month. I'm 40 years old and was adopted when i was almost 2. I've the fortunate opportunity to meet my biological family including sisters. My younger sister by 2 years was diagnosed with the same condition..SVT and will be getting a pm next week. We are absolutely amazed that we have the same condition and at the same age will have put a pacemaker in. We have 1 older sister and a couple half sisters and brothers what are the probability that this could happ...
Are you still tired?
I come and go periodically from this site as I continue to find answers to my ongoing issues since receiving my pacemaker almost 5 months ago. As I tell everyone, "My pacemaker and I still have not become friends." One friend recommended I take it out for drink, talk to it and get to know it. I replied that the problem is the darn thing never shuts up and keeps me awake all night. :)
So that being said, I had become so sick and tired of being tired. I was "super mom" and so full...
the spoon therory
Not sure if anyone has seen this before but I had to share. It was sent to me today and was kind of ironic as I had someone at church ask about whats wrong with my heart. I told her I have cardiomyopathy and a few other issues, and she reply Oh wow, my brother had that and died! than she looked at me and said, I'm sorry I said that out loud. Actually was kind of humorous, but any way than I ran across this and had to post... Enjoy
The Spoon Theory
by Christine Miserandino www.butyo...
The most powerful words I've ever heard!
- by Christmmpace
- 2011-02-11 04:02:43
- Coping
- 1694 views
- 5 comments
The words that kept my heart beating
In the first year of having my pacemaker implanted I was suffering emotionally and physically. I was not use to my heart racing all night. I was having panic attack and thinking my heart was going to stop; other times I would think it was going to explode because of the rapid heartbeats. One night I was worrying myself sick. I was feeling very bad and my heart was pumping so fast I felt as though it was going to come out of my chest. I was afraid...
First Timer-please help
Hi everyone. Just joined. First pacemaker was installed this past Monday...evidently got a bad virus in the heart a few months ago. My heart muscle and arteries are in wonderful condition...no damage. Now, trying to live without lifting the left arm. no heavy lifting, etc...you know the routine. Will the depression go away? I had just skied four hours on Friday with my family. In good shape. Blood pressure and cholesterol always ideal. Feeling so sad and concerned about the future. How...
Being harassed
A few days a go, I posted a note about bouts of dizziness and breathlesness, just walking briskly (Read "Dizzy" 2011-01-28). I got very good input from several members.
I got busted however, since my wife took a look at the postings in the forum and found my request for help. Since the cat was out of the bag, I made the mistake of admitting this little problem to my sisters.
I called my cardio's secretary, but he doesn't want to see me before November. Now, my family is constantly o...
HELP! AV node ablasion & pacer placement.
- by babygirl76
- 2011-02-06 11:02:34
- Coping
- 1448 views
- 4 comments
Hi,I recently had to have an AV node ablasion with a pacemaker implanted and I have some questions.First,how long should the pain last in my shoulder on the side the pacer is? Is it normal to be short of breath & shakey,and is it normal to have pain when you try too lay down? Any answers will be appriciated.Had this done January 31,2011,and I'm very worried.
Family
Hey everyone,
Well this is my first post and I am really excited that I stumbled upon this website. I had an Adapta DR implanted on June 3rd of 09 for SSS and some instances of 2nd and 3rd Degree Heart block. For me and especially my family it was quite a surprise to find out something was wrong, I had gone all the way to my Freshman year of college with no major health issues at all. It took the combined effort of my main cardiologist and the EP Specialist to finally diagnose me afte...
7 more days and I am freaking out
- by sugarbunny09
- 2011-02-04 05:02:42
- Coping
- 1357 views
- 7 comments
Next Friday I will be getting my 1st pacemaker placed and I am 19 years old with a 15 month old. I am getting so nurvous about this. At times I start to cry thinking about after its in...pain, new feelings, scar and just adjusting. I found out I have a complete heart block in October 2010 but its not a life thretening thing. I decided I want to get it incase something were to happen. I have never passed out but I dont want it to happen say while I am driving. I am really feeling like i wish i co...
Pain and fatigue
- by smallworldbigdream
- 2011-02-02 01:02:34
- Coping
- 1210 views
- 2 comments
Hi
I made a few posts in the past few months on some problems. Even went to the doc but he says i am fine or he didn 't get the picture ...i don 't know. Anyway, i am getting tired easily in the psdt months,which means i don 't have this problem before.Now even attending school seems to be taxing. By the way i am studying in singapore,a junior college student.As for the pain,i usually experience it at the area near my shoulder and sometimes my head.It feels like someone is trying to p...
New pacemaker after heart block 2 -- ANXIETY
Hi,
I'm 42 and just 10 days ago got rushed to ER with a pulse below 40 for a pacemaker. They said it was heart block 2, showing signs of heart block 3. I had no idea, but I was feeling dizzy and short of breath on minimal exercise. Now I'm just trying to learn all I can and this site has helped cure some of my anxiety. But what I can't really comprehend is will I be able to live a normal-ish life and have a reasonable life expectancy? Can someone my age live for another 30 years or longer w...
The Winter Weather and Me!
- by Seniorcitizen
- 2011-02-01 04:02:00
- Coping
- 1282 views
- 10 comments
My name is Joan and I am a senior citizen. I have my 2nd pacemaker for 3 years now and the first one was for 6 years.It happens to be one of the big ones because they had to put 3 leads in this time and it looks like the size of a pack of cigarettes or deck of cards and is very high up so one can see it anytime I wear anything that is not covered up. Really don't care about that aspect of it. I use a pillow at night to sleep so that it does not lean on the mattress but on a little baby pillow. I...
Flying
HI all, I'm going to be flying for the 1st time with my new pm. Do I have to get a second seat? Just joking. What I would like to know can I go thru that total body scan. Iv'e read if you go thru it in 10 sec. I heard don't let them use scanner. I just hate the dreaded pat down. Any comments :-)
Patsy
frustrated follow up
Thanks for all your kind messages. I really don’t feel alone anymore. Anyway, just a follow up. I got my hands on the last report of the interrogation: the comments of the EP were: ......patient can not tolerate AV dissociation in DDIR mode. Pace in DDDR mode at fast rate to minimize post extrasystolic pauses. ......
he picked up a systolic murmur as well.
One of the other doctors who was present at the interrogation wanted to do an echocardiogram...
frustrated
Hi there new friends,
veronika here. I am still having problems, being "wired" with a HR of 80. the EP put the rate up from 60 to 80. Since 4 days I try to reach him, I leave messages on the answering machine to see him and have my HR "tweaked" to 70 bpm. I phoned again yesterday and was upset that they did not get back to me. his secretary said: he is thinking about. I wish I could talk to him and find out why he put it to 80. I feel "propelled" and have trouble relaxing with 80 and told t...
Pacemaker & esophagus surgery
Has anyone had experience with esophagus surgery while having a pacemaker? I have Barretts Esophagus and a tumor in my esophagus that is cancerous. I will need surgery to have it removed and was wondering if there were anyone out there who had gone through a similar experience.
Thanks
Tom
chronic cough too!!!!!
- by oldwoman59
- 2011-01-27 05:01:36
- Coping
- 1375 views
- 2 comments
Yes!!!!!!I thought it was just me!I do have a cough on and off!It sounds like I have bronchitis.My Dr.says my lungs are cleared but now I will question him about my blood pressure.I am taking Ramipril,Spironolactone,and Carvedilol.I wonder if that is causing me to cough.Thanks for sharing!
hiatal hernia
- by fiddlebritches
- 2011-01-26 10:01:45
- Coping
- 2704 views
- 4 comments
Has anyone ever had a hiatal hernia with a pacemaker? I am still having chest pain (PM put in December of2010). All the block tests are coming back ok. Doctor says pain from this hernia can mimic symptoms of heart attack. Any comments?
Am I the only one????
- by oldwoman59
- 2011-01-26 01:01:13
- Coping
- 1215 views
- 1 comments
Thank you to everybody who answered my letter. I had no idea a viral infection could cause this. I have allergies, so every so often I catch colds and sometimes develop a little bronchitis, but then it goes away. I am NOT a smoker or drinker, and used to walk every morning about 1 mile and felt o.k. My surgery went very well. All my Drs.were wonderful. They advised my family for me to get 100% rest while I was home until I felt stronger and was out of the red zone.&...
You know you're wired when...
Jerry & The Pacemakers is your favorite band.
Member Quotes
I love this new part of me, and very, very thankful that this technology exists and I know that it's all only going to get better over time.